Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,479 members•4,420 posts

All posts for October 2017

Hi all, just a quick question,...

Hi all, just a quick question, I have just been put on azathioprine but I was told not to start it till my TMPT was back withing normal range. Does anybody...

Hi all, just a quick question, I have just been put on azathioprine but I was to...

Dolores81

•7 years ago

7 Replies

Request For Coping Strategies

Hi everyone, You all seem so far away. I live in Canada and finding a local support group/community has proven to be difficult. I have been diagnosed with...

Hi everyone, You all seem so far away. I live in Canada and finding a local sup...

UKToronto

•7 years ago

7 Replies

Recently been diagnosed with behçet's

Hi everyone, I just wanted to say it's been a long journey to finnaly get diagnosed, as I'm sure many of you guys have too. Just wanted to share my story as it...

Hi everyone, I just wanted to say it's been a long journey to finnaly get diagno...

Dolores81

•7 years ago

1 Reply

Want to take advantage of all our features? Just log in!

Eye ulcer

Hi everyone I hope all is well as can be. I have this horrible very sore eye ulcer which is a pain when I blink or even open my eye.

Hi everyone I hope all is well as can be. I have this horrible very sore eye ulc...

pete11

•7 years ago

6 Replies

Who inspires you? Nominate a rare disease star!

Who inspires you? Nominate a rare disease star! Nominations for the EURORDIS Black Pearl Awards 2018 are officially open! Nominate the individual or...

Who inspires you? Nominate a rare disease star! Nominations for the EURORDIS Bla...

UKADMIN

Partner•7 years ago

Be the first to reply

Bone marrow transplant for Behcet's

I'd have to be much further along than I am to consider this, but this is amazing: "Complete resolution... complete remission."...

I'd have to be much further along than I am to consider this, but this is amazin...

julietoo

•7 years ago

3 Replies

Northern Ireland Behcet's Group meeting dates

Next meeting dates for the group in Northern Ireland are as follows: 11am 11th November 2017 11am 10th February 2018 Everyone welcome to join the group for...

Next meeting dates for the group in Northern Ireland are as follows: 11am 11th N...

UKADMIN

Partner•7 years ago

Be the first to reply

Omega 3 oils having good results !

Hi there , My son has Behcets and was prescribed colchicine . He was diagnosed finally about 14 months ago at age 25 having had symptoms all his life. Just to...

Hi there , My son has Behcets and was prescribed colchicine . He was diagnosed f...

lizcook

•7 years ago

15 Replies

possible Behcet's Disease?

Hello, As my title might entail, I haven't been officially diagnosed with behcet's syndrome. I came here for some serious advice, because people are so quick...

Hello, As my title might entail, I haven't been officially diagnosed with behcet...

sarahgrace28

•7 years ago

4 Replies

Azathioprine

Hi guys I was officially diagnosed with Behcets just over a month ago after 4 years of various problems. I'm currently on a 5 week course of steroids as the...

Hi guys I was officially diagnosed with Behcets just over a month ago after 4 ye...

sineadx

•7 years ago

8 Replies

Rare Revolution Magazine article on Behcet's!

Have a look at page 38 here:...

UKADMIN

Partner•7 years ago

1 Reply

Other Options When Usual Options Fail?

So I’ve likely had GI issues and some neurological issues going back to childhood, but I was an anxious clumsy child, and they seemed to improve somewhat in my...

So I’ve likely had GI issues and some neurological issues going back to childhoo...

NerdyChristina

•7 years ago

5 Replies

No diagnosis - possible Behcets?

Hi all, My symptoms starting developing around this time last year. In February I had a lymph node removed which was confirmed for "Castleman's Disease"...

Hi all, My symptoms starting developing around this time last year. In February...

Leeds229

•7 years ago

9 Replies

clinical trial

I was invited to part in a clinical trial I had my first infusion 2 weeks ago next one tomorrow early signs look promising my ulcers have been away about a...

I was invited to part in a clinical trial I had my first infusion 2 weeks ago ne...

bobthomas1962

•7 years ago

9 Replies

REPORT ON FIRST INFUSION OF REMICADE (100mg INFUSION). HERE IS WHAT IT WAS LIKE.

WOW! I HAVE A LOT OF PEOPLE THAT LIKED MY POST AND ARE NOW FOLLOWING ME! I GUESS YOU ALL WANT TO KNOW WHAT TO EXPECT IF YOU GET REMICADE OR AN INFUSION. Hi...

WOW! I HAVE A LOT OF PEOPLE THAT LIKED MY POST AND ARE NOW FOLLOWING ME! I GUES...

sneakyblonde

•7 years ago

11 Replies

Neuro - Behcet's Basilar Artery blockage?

I have some severe CNS and NB symptoms, I also have had a stroke and several partial strokes over the years. I had a brain scan that found a 50% basilar artery...

I have some severe CNS and NB symptoms, I also have had a stroke and several par...

ambersorganics

•7 years ago

2 Replies

Genital Ulcer appearance

Hi I recently have been getting sores perianal. I know they are there because they feel sore! I've had lots in distant past and a few recently. I finally...

Hi I recently have been getting sores perianal. I know they are there because th...

spiceyandsugar

•7 years ago

23 Replies

Do 'mild' symptoms inevitably get worse?

Hi I am waiting for a diagnosis but I am quite convinced that it is Behchets. I am aware that my symptoms seem to be a lot milder than a lot of people that...

Hi I am waiting for a diagnosis but I am quite convinced that it is Behchets. I ...

Bocksey

•7 years ago

10 Replies

Back to work

After 18 months and being very unwell, I've found a supportive job as a GP doing just 8hrs40mins a week. This is all I can manage at present but it's a start...

After 18 months and being very unwell, I've found a supportive job as a GP doing...

juliebover

•7 years ago

14 Replies

Probable Bechets newbie

Hi everyone, 5 years of ulcerated colitis then total colectomy and J Pouch created. 20 years of ongoing pouchitis has followed this surgery . 9 DVTs and a...

Hi everyone, 5 years of ulcerated colitis then total colectomy and J Pouch creat...

swanseakev

•7 years ago

5 Replies

Fairly horrible photo of my hand

Sorry for such a graphic photo, but someone asked for updates. The reason I’ve put this one is it shows how deep the ulcer/lesion had gone down, you can...

Sorry for such a graphic photo, but someone asked for updates. The reason I’ve ...

lesleyg

•7 years ago

14 Replies

Work and chronic fatigue

Hi, Has anyone found it a struggle to work full time with fatigue? I currently am full time and my work are looking to do a staggered return to work for me....

Hi, Has anyone found it a struggle to work full time with fatigue? I currently...

Kirstymarie04

•7 years ago

5 Replies

Do you live in Northern Ireland and have Behcets?

Hi I was diagnosed with behcets about 15years again and am having a particularly bad time at the minute. I live in Northern Ireland and cannot find any GP or...

Hi I was diagnosed with behcets about 15years again and am having a particularly...

1962duff

•7 years ago

18 Replies

Finally, starting Remicde!

Hi everyone, I haven't posted for awhile... I have end stage NEURO BEHCET'S DISEASE. MY DOCTORS HAVE WAITED, UNSURE OF WHAT TO DO, AND VERY CONSERVATIVE - IF...

Hi everyone, I haven't posted for awhile... I have end stage NEURO BEHCET'S DISE...

sneakyblonde

•7 years ago

11 Replies

Urticaria and BD

Is there any connection between BD and urticaria? I've been suffering from hives for the past six months. It's a sort of persisting nettle rash mainly on my...

Is there any connection between BD and urticaria? I've been suffering from hives...

alfredo884

•7 years ago

12 Replies

Can any one help?

Hi I've had ulcers down below for around 2 weeks now does anyone know what they think this is? I'm waiting test results from gum clinic but the doctor is...

Hi I've had ulcers down below for around 2 weeks now does anyone know what they ...

Suzy170

•7 years ago

13 Replies

Symptoms

Do you get numb feet with BS

Mccullagh

•7 years ago

5 Replies

Salisilic acid

Fedup.com.au Just read an article on the above site and thought it might be useful to someone, it's rather long but does have a few extra leaflets about food....

Fedup.com.au Just read an article on the above site and thought it might be use...

doileyqueen

•7 years ago

Be the first to reply

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for October 2017

Hi all, just a quick question,...

Request For Coping Strategies

Recently been diagnosed with behçet's

Eye ulcer

Who inspires you? Nominate a rare disease star!

Bone marrow transplant for Behcet's

Northern Ireland Behcet's Group meeting dates

Omega 3 oils having good results !

possible Behcet's Disease?

Azathioprine

Rare Revolution Magazine article on Behcet's!

Other Options When Usual Options Fail?

No diagnosis - possible Behcets?

clinical trial

REPORT ON FIRST INFUSION OF REMICADE (100mg INFUSION). HERE IS WHAT IT WAS LIKE.

Neuro - Behcet's Basilar Artery blockage?

Genital Ulcer appearance

Do 'mild' symptoms inevitably get worse?

Back to work

Probable Bechets newbie

Fairly horrible photo of my hand

Work and chronic fatigue

Do you live in Northern Ireland and have Behcets?

Finally, starting Remicde!

Urticaria and BD

Can any one help?

Symptoms

Salisilic acid

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive