Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,246 members • 4,330 posts

All posts for October 2017

Hi all, just a quick question,...

Hi all, just a quick question, I have just been put on azathioprine but I was told not to start it till my TMPT was back withing normal range. Does anybody...

Hi all, just a quick question, I have just been put on azathioprine but I was to...

•6 years ago

Request For Coping Strategies

Hi everyone, You all seem so far away. I live in Canada and finding a local support group/community has proven to be difficult. I have been diagnosed with...

Hi everyone, You all seem so far away. I live in Canada and finding a local sup...

•6 years ago

Recently been diagnosed with behçet's

Hi everyone, I just wanted to say it's been a long journey to finnaly get diagnosed, as I'm sure many of you guys have too. Just wanted to share my story as it...

Hi everyone, I just wanted to say it's been a long journey to finnaly get diagno...

•6 years ago

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Eye ulcer

Hi everyone I hope all is well as can be. I have this horrible very sore eye ulcer which is a pain when I blink or even open my eye.

Hi everyone I hope all is well as can be. I have this horrible very sore eye ulc...

•6 years ago

Who inspires you? Nominate a rare disease star!

Who inspires you? Nominate a rare disease star! Nominations for the EURORDIS Black Pearl Awards 2018 are officially open! Nominate the individual or...

Who inspires you? Nominate a rare disease star! Nominations for the EURORDIS Bla...

Partner•7 years ago

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Bone marrow transplant for Behcet's

I'd have to be much further along than I am to consider this, but this is amazing: "Complete resolution... complete remission."...

I'd have to be much further along than I am to consider this, but this is amazin...

•7 years ago

Northern Ireland Behcet's Group meeting dates

Next meeting dates for the group in Northern Ireland are as follows: 11am 11th November 2017 11am 10th February 2018 Everyone welcome to join the group for...

Next meeting dates for the group in Northern Ireland are as follows: 11am 11th N...

Partner•7 years ago

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Omega 3 oils having good results !

Hi there , My son has Behcets and was prescribed colchicine . He was diagnosed finally about 14 months ago at age 25 having had symptoms all his life. Just to...

Hi there , My son has Behcets and was prescribed colchicine . He was diagnosed f...

•7 years ago

possible Behcet's Disease?

Hello, As my title might entail, I haven't been officially diagnosed with behcet's syndrome. I came here for some serious advice, because people are so quick...

Hello, As my title might entail, I haven't been officially diagnosed with behcet...

•7 years ago

Azathioprine

Hi guys I was officially diagnosed with Behcets just over a month ago after 4 years of various problems. I'm currently on a 5 week course of steroids as the...

Hi guys I was officially diagnosed with Behcets just over a month ago after 4 ye...

•7 years ago

Rare Revolution Magazine article on Behcet's!

Have a look at page 38 here:...

Have a look at page 38 here:...

Partner•7 years ago

Other Options When Usual Options Fail?

So I’ve likely had GI issues and some neurological issues going back to childhood, but I was an anxious clumsy child, and they seemed to improve somewhat in my...

So I’ve likely had GI issues and some neurological issues going back to childhoo...

•7 years ago

No diagnosis - possible Behcets?

Hi all, My symptoms starting developing around this time last year. In February I had a lymph node removed which was confirmed for "Castleman's Disease"...

Hi all, My symptoms starting developing around this time last year. In February...

•7 years ago

clinical trial

I was invited to part in a clinical trial I had my first infusion 2 weeks ago next one tomorrow early signs look promising my ulcers have been away about a...

I was invited to part in a clinical trial I had my first infusion 2 weeks ago ne...

•7 years ago

REPORT ON FIRST INFUSION OF REMICADE (100mg INFUSION). HERE IS WHAT IT WAS LIKE.

WOW! I HAVE A LOT OF PEOPLE THAT LIKED MY POST AND ARE NOW FOLLOWING ME! I GUESS YOU ALL WANT TO KNOW WHAT TO EXPECT IF YOU GET REMICADE OR AN INFUSION. Hi...

WOW! I HAVE A LOT OF PEOPLE THAT LIKED MY POST AND ARE NOW FOLLOWING ME! I GUES...

•7 years ago

Neuro - Behcet's Basilar Artery blockage?

I have some severe CNS and NB symptoms, I also have had a stroke and several partial strokes over the years. I had a brain scan that found a 50% basilar artery...

I have some severe CNS and NB symptoms, I also have had a stroke and several par...

•7 years ago

Genital Ulcer appearance

Hi I recently have been getting sores perianal. I know they are there because they feel sore! I've had lots in distant past and a few recently. I finally...

Hi I recently have been getting sores perianal. I know they are there because th...

•7 years ago

Do 'mild' symptoms inevitably get worse?

Hi I am waiting for a diagnosis but I am quite convinced that it is Behchets. I am aware that my symptoms seem to be a lot milder than a lot of people that...

Hi I am waiting for a diagnosis but I am quite convinced that it is Behchets. I ...

•7 years ago

Back to work

After 18 months and being very unwell, I've found a supportive job as a GP doing just 8hrs40mins a week. This is all I can manage at present but it's a start...

After 18 months and being very unwell, I've found a supportive job as a GP doing...

•7 years ago

Probable Bechets newbie

Hi everyone, 5 years of ulcerated colitis then total colectomy and J Pouch created. 20 years of ongoing pouchitis has followed this surgery . 9 DVTs and a...

Hi everyone, 5 years of ulcerated colitis then total colectomy and J Pouch creat...

•7 years ago

Fairly horrible photo of my hand

Sorry for such a graphic photo, but someone asked for updates. The reason I’ve put this one is it shows how deep the ulcer/lesion had gone down, you can...

Sorry for such a graphic photo, but someone asked for updates. The reason I’ve ...

•7 years ago

Work and chronic fatigue

Hi, Has anyone found it a struggle to work full time with fatigue? I currently am full time and my work are looking to do a staggered return to work for me....

Hi, Has anyone found it a struggle to work full time with fatigue? I currently...

•7 years ago

Do you live in Northern Ireland and have Behcets?

Hi I was diagnosed with behcets about 15years again and am having a particularly bad time at the minute. I live in Northern Ireland and cannot find any GP or...

Hi I was diagnosed with behcets about 15years again and am having a particularly...

•7 years ago

Finally, starting Remicde!

Hi everyone, I haven't posted for awhile... I have end stage NEURO BEHCET'S DISEASE. MY DOCTORS HAVE WAITED, UNSURE OF WHAT TO DO, AND VERY CONSERVATIVE - IF...

Hi everyone, I haven't posted for awhile... I have end stage NEURO BEHCET'S DISE...

•7 years ago

Urticaria and BD

Is there any connection between BD and urticaria? I've been suffering from hives for the past six months. It's a sort of persisting nettle rash mainly on my...

Is there any connection between BD and urticaria? I've been suffering from hives...

•7 years ago

Can any one help?

Hi I've had ulcers down below for around 2 weeks now does anyone know what they think this is? I'm waiting test results from gum clinic but the doctor is...

Hi I've had ulcers down below for around 2 weeks now does anyone know what they ...

•7 years ago

Symptoms

Do you get numb feet with BS

Do you get numb feet with BS

•7 years ago

Salisilic acid

Fedup.com.au Just read an article on the above site and thought it might be useful to someone, it's rather long but does have a few extra leaflets about food....

Fedup.com.au Just read an article on the above site and thought it might be use...

•7 years ago

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