Hi. I have been very unwell for two years. After many different hospitals and doctors i have been diagnosed with Behcets. I have all the symptoms that i have read on here. I also get a very stiff painful neck, does anyone else have this also?
I am under Addenbrooke hospital who seem very good. I am at the beginning of my treatment path, up until now i have been on steroids which have kept me well all summer came off them 4 weeks ago, addenbrookes started me on colchicine at my last appointment but they gave me terrible tummy cramps and sickness. Back on the steroids today as i have started to feel awful again and can only about manage to do the essentials. Back to the hospital in 4 weeks to discuss new medicine options. All very scary to be honest and just starting to realise that this is not going away
Glad i have found this support forum as i have found out so much info and its so good to know im not alone!!!