Behçet's UK | HealthUnlocked

Hi everyone I hope that you are all as well as you can be. Currently I am despairing so hope that you can give me some advice and / or guidance please. After...

Hi Everyone, I'm on colchicine for my Behcet's (along with mycophenolate +/- prednisolone). Rheumatology clinic had recently recommended increasing the dose,...

Hi all,I went to my Liverpool CoE appointment yesterday and they are starting me Adalimumab. Just waiting for it to be delivered, then I can get started on it....

The symptoms of Behçet's disease were aphthous ulcers in the mouth, ulcers in the genital area, mostly lower extremity erythema nodosum lesions, and acneiform...

Hi, I have recently stared vomiting violently everything I take my medication. I have been on the same meds (prediselone, azathioprine, coltrocine,...

Hello. Since I last posted its now been confirmed macular degeneration has started the right eye has a lot of scar tissue, also CNS involvement Been put on...

Hi All, I have a question about joint involvement. I have recently switched medications from Azathioprine to Mycophenolate Mofetil, which I take along side...

Hi All, I've had a few Covid-19 infections, and subsequently have long covid/post covid syndrome. And it's made it quite difficult for me to decipher what...

We would like children and young people with Behçet’s to join us at a face-to-face workshop to create resources to share with other children, young people and...

Hi, I have just received an almost certain diagnosis from a dermatologist whilst I wait for my referral to London for my diagnosis. I suffer with joint pain...

hi all, I’ve just recently been tentatively diagnosed by my GP, after (at least) 3 years of health issues, exhaustion and those ulcers (so so horrid). I am...

Evening everyone,I'm interested to hear from anyone who has been diagnosed with neuro bechets. How it was diagnosed and what symptoms you had/have? My son who...

Iv e said I’m not having any more vaccines whenever I had a covid vaccine or booster I have had severe flare ups body just seemed to go into overdrive ulcers...

Dear all,I'm happy to have found this support page for Behcet. I'm female, 39 years from Germany, suffering from ulcers since 2019, right now on an episode...

I usually bruise and come out In positive pathergy after blood tests. But today this one hurt a lot! And it looks like blood pooled under the skin, it’s quite...

I am a Behcet's on Azothioprine 50 mg twice a day, Cochicine 0.5 mg twice a day and taking Medrol 2mg/4 mg per day, since one year.Earlier I used to have...

My doctor has me on Colchicine and Otezla. My symptoms have eased, but I still get the ulcers. I just assume the medicine is helping somewhat. When I got my...

The 2024 conference took place on Saturday 19 October 2024 and was a hybrid event – those who wished to attend in person could do so at the Holiday Inn...

Hello everyone, I am wondering if you have something to discuss about cerebral atherosclerosis and Behcet’s. Thank you very much!

Hi everyone, I was wondering if anyone ever got DSA because of Behçet and how did that help? Also how hard was to get it? Wanting to do a MFA in movement...

I’ve just been put on Mycophenolate 500mg once daily - increasing to 1000mg twice a day over a 4 week period. Bloods booked for every two weeks for the next 6...

Lucinda Elliott, a Masters student at the University of Wolverhampton, is conducting research into online support groups and how they impact those with...

Hi all. I went to my Liverpool appointment last week and they have now officially diagnosed with Behcets (it was incomplete/likely Behcets last time I went)...

Hi everyone! I’ve been diagnosed with Behçet in 2020. From that point on it’s been a rollercoaster of doubts and misunderstandings between doctors and I can’t...

I’ve been suffering so badly, recent visit to the GP and they wrote to my team. My nurse rang and my appointment has been expedited to the end of October and I...

I’ve always suffered with joint pain and back pain. I had a steroid injection on 16th September and over the weekend my lower back pain has come back with...

I've just taken my first tablet of colchicine after being diagnosed on Monday. Obviously I took to Google to find out other side effects, hair loss has been...

I'm currently on loads of different supplements to try and help boost my immune system, reduce inflammation and for joint health. Recently when I'm having a...

I was diagnosed yesterday finally after 5 years of suffering. I've had genital ulcers for the past 9 weeks, the worst it's ever been, they start to heal, then...

Hello, Has anyone here with Behcet’s also been diagnosed with cancer? Unfortunately I am in this situation. My Behcet’s was in remission before the cancer...