The Behçet’s Syndrome Society represents Behçet’s disease patients and their carers in the UK. Equally importantly, we exist for those not yet...Read more
Just got back from a hospital appointment, and very unhappy and frustrated!
Lexx_5 days ago
10 Replies1 Like
sam051117 days ago
Hi there, only been diagnosed with BD at the begining of this year, after years of thinking my migraines were hormone related. Unfortunately...
13 Replies1 Like
Could Behcet's be my problem?
healthaware22 days ago
hope9115 days ago
Hi, I am 61 suffering with headaches for ten days in row. Three of those days were migraines. I also had open heart surgery one month ago an...
Soph1922 days ago
I was recently diagnosed with Behçets roughly 2 months ago. I'm taking 10mg of Predisolone which has stopped my mouth ulcers for the last ...
What specialist treats Bahcets
nancyd13 days ago
I'm new here. Diagnosed with Bahcet's this year. I am seeing a treatment with a rhuematolgist because when I was in the hospital I was incor...
Anyone from manchester uk
Hidden9 days ago
Hello. I'm keen to connect with someone as I'm feeling really isolated with this illness and my family are getting fed up that I'm not bett...
My visit to the Birmingham Centre of Excellence
Hidden24 days ago
Hi there....I've just been to the Birmingham COE on the Friday morning clinic. It took a couple of months for me to get the appointment...
5 Replies4 Likes
Jennifer428421 days ago
It's been a while since I posted and I'm in between dr's right now. My appointment is on the 27th. I wanted to ask everyone if they have eve...
Hidden13 days ago
So I'm new here because I think I may have Bechet's. Back in January I had an outbreak of genital ulcers. Of course i was tested for HSV and...
Inflixamab, and face rash.
Hidden8 days ago
Hi, I have had 2 doses of Inflixamab and am due for the third in 10 days. Over the past few days I have developed a facial rash mostly on my...
3 Replies1 Like
just joined this forum as my symptoms could be behcets.interesting to read posts here.i have had a huge (increasing abdomen -size and weight...
Behcets in a day!
don576614 days ago
Hi guys I live in Dundee Scotland and I am looking to plan a Behcets day, Professor Fortune. And her clinical team have also offer to do a t...
Hi. My 18 year old daughter has had several ulcers in the last 3 months. She has had an abnormal one in her vagina in which she had it caute...
Best Doctors for Behcets, Plus exhaustion and an "Off Label" drug
sneakyblonde15 days ago
Hi, I am Cindy and I am new. I don't know which tag to use. I see many people asking about Meds, Eye problems and how to get their docs to L...
4 Replies1 Like
On the cusp of hopefully being diagnosed bit need advice
Hidden10 days ago
Celgene drug trial for oral ulcers-USA and other country locations.
rooser123 days ago
Got this email from ABDA. subscribe to them. they have a drug trial for ulcers. see pic
Curly14305 days ago
Hi I seen a post from a lady called Donna about getting our own group for the Scottish area I would travel to this just to meet others and s...
Infliximab and Methotrexate
mtmunster14 days ago
Hi -I just want to ask people's experience of being on these 2 drugs together and how long they take to work? I've been on infliximab since ...
Hiddena month ago
How long ago were you diagnosed with Behcet's Syndrome?
Start a Community