The Behçet’s Syndrome Society represents Behçet’s disease patients and their carers in the UK. Equally importantly, we exist for those not yet...Read more
Howare24 days ago
19 Replies1 Like
Nervous and unsure.
Tai_me_in_happy3 days ago
Hi there! I've spent hours in the last 4 days reading up on many different syndroms, diseases and viruses. But it keeps coming back to Behce...
11 Replies1 Like
BatchA6 days ago
Hi .before I was diagnosed with bechets I was ill for seven years , I've been on colchine tablets for ten year . My illness is getting worse...
9 Replies2 Likes
Behcet’s Centre of Excellence Does Not Work for Everyone.
Kitty79013 days ago
I was diagnosed with Behcet’s disease in 1980. I have been treated at my local hospital by a consultant who trained with a Behcet’s expert y...
7 Replies2 Likes
Rheumy says suspected Behçet's, but gp won't do anything!
Aimi4014 days ago
To cut a long story short, been under a rheumatologist since last September. Symptoms are joint pain, mouth and genital ulcers and horrendou...
12 Replies2 Likes
Newby - Desparately Seeking Advice or any Level of Hope please....
spiceyandsugara month agoPOPULAR
Hi I am one of the patients who nobody wants to help, I'm in between departments all saying its the other person's remit! In fairness to gas...
Logan3602 days ago
My son has been taking colichicine from June last year when he was diagnosed but over the last few weeks he has been having really bad nos...
Fever with flare up
Jaynep8 days ago
Does any behcets suffered have bad fevers when their having a flare up ?bad enough to have to get up at night to change night clothes and b...
12 Replies1 Like
Hair loss and bruising
B13085913 days ago
Diagnosed last month
steph3525 days ago
Hi all im a 35 year old irish woman with 2 gorgeous girls who are 8 and 5 and an amazing husband who is trying his best to understand this ...
10 Replies1 Like
Colchicine Side Affects?
gillianTS9 days ago
Hi, I started a trial of colchicine 500mg 10 days ago and I am wondering if I am having some side affects from taking this new drug or I am ...
Soph1921 days ago
I had my rheumatology appointment yesterday and I was quite disappointed with it! Although I was diagnosed privately I finally had an NHS ap...
Feeling frustrated with my diagnosis
Danae_mae2 days ago
Hello, I'm having a hard time getting my diagnosis confirmed and I feel so frustrated. You see about a year ago I was given a diagnosis of...
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Colchicine and Simvastatin
fortunate20 days ago
Does anyone take Colchicine and Atorvastatin? I take Colcicine 500 micrograms twice daily. I have just been prescribed Atorvastatin for hig...
Travelling for work.
MrsB119 days ago
Hi. Work keep making me go to staff overnighters. These these are 4 hour round trips, and the meetings go on into the evening. Every time I ...
HELPYa month ago
Hello im new here my daughter has Behtets it took quite some time to diagnose as its a foreign disease and my son is going through tests ju...
7 Replies1 Like
Mylifewithbehcetsa month ago
Hı I thought I'd document my visit to the Liverpool centre of excellence here it is xxx
Victoria4015 days ago
just a question, I was diagnosed with Behcets at birth as I had ulcers in both places and my mum has it, my daughter has it too, anyone else...
3 Replies1 Like
sam0511a month ago
Anyone got any tips for re-introducing exercise? I am awake for the normal 16 hours a day now, and I am more active - housework, walk to the...
Men help me out here.
Miatamana month ago
Has anyone had any issues with getting a vasectomy? I'm on Cellcept which slow healing, I'm have ZERO Behect's issues. I'm very nervous to g...
How long ago were you diagnosed with Behcet's Syndrome?
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