Behçet's UK | HealthUnlocked

Hi there, I am have just received my second dose of Rituximab after having a Spinal stroke (T2-4). My specialist said the stroke was caused by a flare...

So sorry for the lengthy post! I have a range of issues which have been ongoing for many years like ibs, distended tummy (I looked 6 months pregnant on most of...

Had a traumatising experience with an Endoscopy 2 days ago..Immediately after the procedure (that I just about made it through) My face swelled, particularly...

Hi, my current life insurance has expired and I'm finding it difficult getting a quote when I say I have Behcet's. Has anyone else encountered similar...

Hello, I'm Josaphat from Madagascar. My first symptom for Behçet disease appeared in Mars 2020. I had sores in my mouth. After that It started to appear my...

has anyone here with behcets experienced poor oral health? i found it was never an issue for me until recently, i went to the dentist and she said that i had...

Hi friends, hope you’re all doing all right! I’m just a tad curious how often you guys struggle with genital ulcers? I’ve been diagnosed for around 3 years...

Hi Everyone, I haven't posted in a while, as I have been struggling for 8 years to try to get a diagnosis. My symptoms were similar to Betchets, but as I did...

Hi. I was prescribed Qulipta for chronic migraine last June, and have been taking it since then. A sideeffect has been pretty severe constipation, which can...

Hi all-well I am from the US with a Behcet's diagnosis. It took 3 Rheumatologist telling me it was impossible due to my ethnicity. Wow I lost my mind,...

Hi all! New to this forum, great to see this community for this horrible and widely misunderstood condition. I've been diagnosed with Behcets for almost 4...

Hey Everyone, Really hoping someone can help been going round in circles for sooo long. I get constant mouth sores it has been going on for over a year now,...

Hi everyone. I have been using Instillagel syringes for years for my genital sores but recently I had to have a smear and my GP could not manage to do it as I...

Evening I’m on infliximab, azathioprine and thankfully down to 2.5 mg prednisolone. I just had a rheumatology appointment and was seen by a new guy who is...

I have gotten severe nausea (a few hours after ingesting specific food/drink) and woken up at night feeling severely sick and weak with vomit and/or diarrhea...

I had a Behcet's flare-up in late August. All of my lesions, GI issues, terrible headaches have all subsided, but I am still suffering with terrible fatigue!...

Hi All, I've not been on for a while, diagnosed with Behcets just over a year ago.. My wife and I signed up for life insurwnce recently, hers went...

My own experience was mixed when I attended the Behcets centre in 2018. As a blood cancer sufferer I was referred by the hospital treating me to St Bart’s to...

Hi there, I’ve been diagnosed with “likely Behcets” (don’t think they’ll ever give me a firm diagnosis). I started experiencing galactorrhea (producing...

Has anyone experienced pins and needles sensation through out your body and shooting pains without diagnosis of neuro- Behcets . I have had mri and cat scan...

A brief summary of my Behcets history. I am a 73 year old UK male and have suffered from Behcets since the age of eight starting with the usual symptoms of...

Hi, The Infliximab isn't working as good lately and the eye problems are continuing to increase . So the decision by the Rhuematologist and others is...

Melanie Sloan, a researcher in Behavioural Science at the Department of Public Health and Primary Care, Cambridge University, kindly got in touch with me to...

I was diagnosed with Behçets about 17yrs ago & it has got progressively worse especially the pain & fatigue! I have been vaping CBD with my normal juice for...

Hi everyone! I’ve recently been put on daily colchicine after years of treating my behcets-symptoms with prednisone. Its only been about 4 days on colchicine...

Hi there, Do any of you have gastrointestinal involvement with your flares? I am 5 years into my illness, and 6 weeks post Covid & complications. I have been...

My betchets has been causing havoc over the last twelve months I’ve heart problems sick to death of ulcers infections and now three weeks ago I had to have my...

Hi there, I'm new to this forum. Currently in the midst of a significant flare, post COVID infection 3 weeks ago. I have very sore nasal sores/scabs, which...

I had COVID couple year ago was really sick but never had go hospital. Since I have taken Moderna vaccines . Both got really sick and not long after second...

I was diagnosed with a Bartholin Cyst through a GP around 2.5 months ago, and had been off/on antibiotics during this period. Recently, I went to an OBGYN who...