Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,246 members • 4,330 posts

All posts for August 2017

It might help someone...

Hi everyone, I started with behcet's symptoms around 8 years ago, diagnosed 4 years ago but nothing really happened since then, still asking to be referred to...

Hi everyone, I started with behcet's symptoms around 8 years ago, diagnosed 4 ye...

•7 years ago

Behcets syndrome

hi all this is my first post on here but i have been on following an reading on here for about 6 month im female 38 an been diagnosed with behcets for roughly...

hi all this is my first post on here but i have been on following an reading on ...

•7 years ago

Health problem from foods

I do not know how we can do to control all foods in the markets which imported from other countries they used much more chemical fertilizers as results affect...

I do not know how we can do to control all foods in the markets which imported f...

•7 years ago

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London group meet up!

LONDON SUPPORT GROUP MEETING / get together Saturday 23rd September 1.00pm The Venue: The Boathouse Café -The best entrance is the one by The London Central...

LONDON SUPPORT GROUP MEETING / get together Saturday 23rd September 1.00pm The V...

Partner•7 years ago

Methotrexate

Hi there i feel like my blood is boiling from the inside and go very hot could this be medication

Hi there i feel like my blood is boiling from the inside and go very hot could t...

•7 years ago

Can you help the Genetic Alliance with this study? Read below:

WHAT DO YOU THINK ABOUT CHANGE IN RARE DISEASE CARE, TREATMENT AND RESEARCH? The UK Rare Disease Forum (the group charged with monitoring the implementation...

WHAT DO YOU THINK ABOUT CHANGE IN RARE DISEASE CARE, TREATMENT AND RESEARCH? ...

Partner•7 years ago

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Support Group in Australia

Hi my name is Sue and I have been diagnosed with Behcets since 1986. I was 16 years old. I have not had an easy journey, however to many my life has appeared...

Hi my name is Sue and I have been diagnosed with Behcets since 1986. I was 16 ye...

•7 years ago

Maybe Behcets??

I had some pain in the right hand almost 9 months ago which i thought maybe due to a sprain or injury or repetitive work. Visited an occupational therapist who...

I had some pain in the right hand almost 9 months ago which i thought maybe due ...

•7 years ago

Looking for other teachers (particularly a couple who have also had campath/Alemtuzumab)

Hi Realise this is very specific but know from here and was also told on G2 (Infusion bay at Addenbrookes - formally PSSU) that there are a couple of other...

Hi Realise this is very specific but know from here and was also told on G2 (Inf...

•7 years ago

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Tooth loss

Hi everyone. For the past two weeks I have been uffering bad pain in my front bottom teeth. I have always had quite sensitive teeth so I just guessed it was...

Hi everyone. For the past two weeks I have been uffering bad pain in my front bo...

•7 years ago

Uvula

Any one else get hardcore ulcers on their Uvula. Got grade 2 Esophagitis too. Had a Fundoplication surgery on my stomach which has helped reduce the reflux...

Any one else get hardcore ulcers on their Uvula. Got grade 2 Esophagitis too. Ha...

•7 years ago

Please help searching for a diagnosis in US

Have retinal vasculitis abd branch retinal artery occlusion of my right eye. It was diagnosed last year but I was told this had been "brewing for a very long...

Have retinal vasculitis abd branch retinal artery occlusion of my right eye. It...

•7 years ago

What now?

I was diagnosed with Neuro Behçets, treated for the symptoms with gabapentin, metho prednislone, immunosuppressants and Diamox Been pretty much left to it by...

I was diagnosed with Neuro Behçets, treated for the symptoms with gabapentin, me...

•7 years ago

Hyperadrenal POTS?

Okay, so before I even had my Behcet's diagnosis, my doctors were concerned about my autonomic nervous system. I had periods where my blood pressure would get...

Okay, so before I even had my Behcet's diagnosis, my doctors were concerned abou...

•7 years ago

Pain

Hi ladies and gentlemen hope all is going the best it can get with our Bechet's. I should like to ring out what pain relive you are prescribed. I started on...

Hi ladies and gentlemen hope all is going the best it can get with our Bechet's....

•7 years ago

Behcet's and Fibromyalgia

Hi, Has anyone been diagnosed with fibromyalgia following their Behcet's diagnoses? Today I had my check up at the COE in Birmingham and was told I have...

Hi, Has anyone been diagnosed with fibromyalgia following their Behcet's diagno...

•7 years ago

SLEEP PARALYSIS AND SPDS?

Just a quick question I've been suffering with ChronicSleep Paralysis, insomnia, and also have SPDS ( sleep Phase Delay Syndrome. And when I say Chronic I can...

Just a quick question I've been suffering with ChronicSleep Paralysis, insomnia,...

•7 years ago

37yrs Till Diagnoses

Hi, this is my first post to the Bahcets Syndrome Society. I've only recently been diagnosed with Bahcets Disease. Ive been ill since I can remember. Since...

Hi, this is my first post to the Bahcets Syndrome Society. I've only recently be...

•7 years ago

Daith piercing for headaches

Just wondering if anyone has had their daith pierced and if so has it helped their headaches? I've had mine done a week and a half. Since then I've not had a...

Just wondering if anyone has had their daith pierced and if so has it helped the...

•7 years ago

Stomach Issues!!

Sorry for the essay! I'm still having no luck with my consultants! Still going back and forth with my diagnose's.. I was privately diagnosed last year so now...

Sorry for the essay! I'm still having no luck with my consultants! Still going ...

•7 years ago

Behcet's and diet?

Hello, I was given the diagnosis of Behcet's about 6 months ago, AFTER years of doctors visits, rounds of steroids, debilitating pain and fatigue, and just a...

Hello, I was given the diagnosis of Behcet's about 6 months ago, AFTER years of...

•7 years ago

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