Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,391 members•4,391 posts

All posts for June 2017

waiting for diagnosis

I have a nearly 16 yr old son with Down Syndrome and Cystic Fibrosis, who has had giant mouth ulcers, recurring for 12 months that swell his jaw to the point...

I have a nearly 16 yr old son with Down Syndrome and Cystic Fibrosis, who has ha...

•7 years ago

What helps me during flares...

I thought I'd take this opportunity to share what helps me with this community. When I have a bad canker sore outbreak there are usually 2-4 directly on my...

I thought I'd take this opportunity to share what helps me with this community. ...

•7 years ago

Behcet's resources for new members and people newly diagnosed

Welcome to the group! I live in the U.S. and I've had Behcet's disease since 1979, but it took 17 years to get a diagnosis. Since then, I've helped other...

Welcome to the group! I live in the U.S. and I've had Behcet's disease since 19...

•7 years ago

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Side effects of medication

I suffer from very painful joints flare up due to Behcet. I have resisted going onto medication other than steroids because of their side effects and the...

I suffer from very painful joints flare up due to Behcet. I have resisted going ...

•7 years ago

Advice

Guys I am only a week or so into colchicine and my ulcers have flared up big time, just the usual 6-8 mouth ulcers but at least 8 genital ulcers... they are...

Guys I am only a week or so into colchicine and my ulcers have flared up big tim...

•7 years ago

Diagnosed in February this year

Hi all, I was diagnosed in February this year but have had symptoms for 6 or so years which gradually got worse. Originally I was told I needed to just live...

Hi all, I was diagnosed in February this year but have had symptoms for 6 or s...

•7 years ago

Holiday insurance - while on clinical trial - help please!

Hi I'm on the Campath clinical trial for my BD I need to get holiday insurance does anyone have any advice my current insurer won't insure me while on the...

Hi I'm on the Campath clinical trial for my BD I need to get holiday insurance d...

•7 years ago

14 year old son info needed

hi I'm elsie my son who. is 14 has had a flare up and has gone blind in one of his eyes and is currently in hospital we still haven't had a formal diagnosis...

hi I'm elsie my son who. is 14 has had a flare up and has gone blind in one of h...

elsie_hetherington12

•7 years ago

New Health Unlocked App!!

. You can download it from app store. https://itunes.apple.com/app/apple-store/id1016950959?mt=8

. You can download it from app store. https://itunes.apple.com/app/apple-store/i...

Partner•7 years ago

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Check out Rare Revolution Magazine!

Hi all, we are spreading awareness of Behcet's with an article in a future issue of Rare Revolution Magazine and you can subscribe for free ahead of the issue...

Hi all, we are spreading awareness of Behcet's with an article in a future issue...

Partner•7 years ago

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High platelets count

Hi Has anyone experienced high platelets count part of BH? Trying to avoid lumbar as doc think the BH might have mask a blood disorder but in a weird way I am...

Hi Has anyone experienced high platelets count part of BH? Trying to avoid lumba...

•7 years ago

Problems with balance and migraine

Hi Has anyone got severe problems with their balance? Been suffering with more and more headaches and my balance is getting worse to the point than iam afraid...

Hi Has anyone got severe problems with their balance? Been suffering with more a...

•7 years ago

Newly diagnosed

Hey all, So this all started 2015 when I started getting mouth ulcers, I was diagnosed with geographic tongue it went and I was fine until October 2016 where I...

Hey all, So this all started 2015 when I started getting mouth ulcers, I was dia...

•7 years ago

Rash

Has anyone ever got a rash like this or know what it could be? I've been quite tired and really stressed recently as well.

Has anyone ever got a rash like this or know what it could be? I've been quite t...

•7 years ago

Behcet's support meetings and get togethers, including a talk on the Management of Pain and Fatigue in NI!

June Behcet's Support get together / meet ups in Northern Ireland, London and Liverpool. Newry, NI Sat 17th June 2pm - 4pm - Speaker on Managing Pain and...

June Behcet's Support get together / meet ups in Northern Ireland, London and Li...

Partner•7 years ago

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Hey there

Hey I'm Danielle I'm 35 and from Cardiff, I'm self employed as a childminder and a mum to 1 child. I was diagnosed about 2.5yrs ago but I've known since I had...

Hey I'm Danielle I'm 35 and from Cardiff, I'm self employed as a childminder and...

•7 years ago

Diagnoses is likely

Hi guys, at last I had my first visit to my rheumatologist after years of Gps and dermatologists not talking my symptoms seriously... I have not yet been fully...

Hi guys, at last I had my first visit to my rheumatologist after years of Gps an...

•7 years ago

Eye pain

Does anyone have pain in the eye that feels like it's bruised when you move it?×

Does anyone have pain in the eye that feels like it's bruised when you move it?×...

•7 years ago