Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,252 members • 4,332 posts

All posts for September 2017

Just joined!

Hi I'm a new member with 9 months diagnosis of Behcet's, symptoms mouth ulcers, joint pain and erythema nodusom. Taking colchicine daily and prednisolon on...

Hi I'm a new member with 9 months diagnosis of Behcet's, symptoms mouth ulcers, ...

hoda_16

•7 years ago

4 Replies

Waiting for diagnosis...

Hello everyone. After a year of being treated for genital herpes (even though 4 swabs have come up negative), I am finally being referred. The GUM clinic...

Hello everyone. After a year of being treated for genital herpes (even though 4 ...

Bocksey

•7 years ago

9 Replies

Suffering

Hi everyone, This isn't my first time on this forum but I've not visited for sometime. I'm 28 years old and have been suffering for the past 10 years with my...

Hi everyone, This isn't my first time on this forum but I've not visited for so...

Sammie_88

•7 years ago

6 Replies

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Which Aloe Dent?

Anyone who uses Aloe Dent? Which one do I buy? With fluoride, without fluoride? Thank you

Anyone who uses Aloe Dent? Which one do I buy? With fluoride, without fluoride...

jf44

•7 years ago

1 Reply

Severe reaction after infliximab infusion!

Has anyone ever had a reaction after infliximab infusion? I've got very painful skin which keeps flaring into a rash and is very dry. I also have a droopy left...

Has anyone ever had a reaction after infliximab infusion? I've got very painful ...

kezzle

•7 years ago

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Medication and menstrual cycle

Hello Ladies, I was recently put on Azathioprine and colchicine for my BD and my cycle seems to have stopped completely. I also have the mirena coil and am...

Hello Ladies, I was recently put on Azathioprine and colchicine for my BD and ...

ch1982

•7 years ago

1 Reply

Fungal infection or BD

Hi all new poster here, currently being assessed by a Specialist at James Cook Hospital who is leaning towards BD. I currently have really bad ulceration on my...

Hi all new poster here, currently being assessed by a Specialist at James Cook H...

scottyftm

•7 years ago

7 Replies

Hepatic steatosis

Alongside my BD, I have just been diagnosed with severe hepatic steatosis. I don't suffer from any metabolic syndromes and my nutritionist told me that this...

Alongside my BD, I have just been diagnosed with severe hepatic steatosis. I don...

alfredo884

•7 years ago

4 Replies

Update about curing this horrible condition?

Hey guys, I made a post on here a while ago about how eating an all animal based diet cured my Behcets and encouraged others to try it:...

Hey guys, I made a post on here a while ago about how eating an all animal based...

najeebo

•7 years ago

27 Replies

Update on treatment

Been to rheumatologist today explain how I'm feeling she's given me mycophenolate to take with my colchine building the dose up is anyone taking this and is it...

Been to rheumatologist today explain how I'm feeling she's given me mycophenolat...

Shankly73

•7 years ago

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Go sugar free

For all you lucky buggers that can take medication, I suggest you all go see your doctors and demand that they get onto the pharmaceutical companies and get...

For all you lucky buggers that can take medication, I suggest you all go see you...

AllanF

•7 years ago

2 Replies

Numb Toes and Fingers?

Hi! I was wondering if anyone here has experienced the same symptoms? I was diagnosed about 2 years ago with Behcets after flare in which I had high fevers,...

Hi! I was wondering if anyone here has experienced the same symptoms? I was diag...

tessamahan

•7 years ago

13 Replies

Headache

Hello, Does anyone have an experience with harsh headache and dizziness?

Nanakoko

•7 years ago

11 Replies

Fatigue getting worse 😢

Can anyone help at all the last 2 weeks the fatigue has got worse I'm struggling to do normal things and walking the dog yday I nearly had to get my hubby to...

Can anyone help at all the last 2 weeks the fatigue has got worse I'm struggling...

Shankly73

•7 years ago

25 Replies

Struggling

Hi guys, diagnosed 19 years ago. Still struggling with it. Doctor won't supply my mercaptopurine as it's so expensive. Coping on colchicine alone. Sorry it's a...

Hi guys, diagnosed 19 years ago. Still struggling with it. Doctor won't supply m...

seath1972

•7 years ago

14 Replies

support groups

hi does anyone know of any support groups in the north east of england

bobthomas1962

•7 years ago

3 Replies

new trial therapy

hi all I'm starting a new trial therapy at the freeman hospital on Friday ive to have lots of tests to have to see what meds they are going to try me on I know...

hi all I'm starting a new trial therapy at the freeman hospital on Friday ive to...

bobthomas1962

•7 years ago

9 Replies

HELP ......

I have been suffering from Behçets Disease since 2010, diagnosed 2012. Up until a year ago I had all the usual symptoms which were managable to an extent. As...

I have been suffering from Behçets Disease since 2010, diagnosed 2012. Up until ...

Lorrie

•7 years ago

5 Replies

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Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for September 2017

Just joined!

Waiting for diagnosis...

Suffering

Which Aloe Dent?

Severe reaction after infliximab infusion!

Medication and menstrual cycle

Fungal infection or BD

Hepatic steatosis

Update about curing this horrible condition?

Update on treatment

Go sugar free

Numb Toes and Fingers?

Headache

Fatigue getting worse 😢

Struggling

support groups

new trial therapy

HELP ......

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive