Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,436 members•4,407 posts

All posts for January 2018

90% improvement with STOPPING HORMONAL BIRTH CONTROL

Hi all, I'm an American who's been lurking here since my BD flared up again over a year ago after a nice long time in remission. I'd been diagnosed as a kid so...

Hi all, I'm an American who's been lurking here since my BD flared up again over...

•7 years ago

Explaining to your GP what Behcet's is ???, Please Help.

Hello Everyone, I have been a member for over 5 years but quietly in the background. I would just like for someone to help me by giving me advice on the best...

Hello Everyone, I have been a member for over 5 years but quietly in the backgro...

•7 years ago

Interferon alpha frequency

I have been on interferon for about 6 months. Now down to two a week. Finding fatigue day after injection becoming much much worse. I know some people at...

I have been on interferon for about 6 months. Now down to two a week. Finding fa...

•7 years ago

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My daughter was diagnosed at 10 years old she is now 14, need advice please

Hello everyone I am looking for some advice. My daughter was diagnosed with bechets disease at 10 years old she has a variety of symptoms that we've tried to...

Hello everyone I am looking for some advice. My daughter was diagnosed with bech...

•7 years ago

Pituitary / Hypothalamus Failure

Just wondering if anyone has had damage to their pituitary and/or hypothalamus because of Behçet’s. Mine were destroyed because of inflammation and lack of...

Just wondering if anyone has had damage to their pituitary and/or hypothalamus b...

•7 years ago

Anyone taking methotrexate for Behcet's

Anyone taking methotrexate for Behcet's? My scalp is so bad I am starting it Friday. Desperate this time, so rheumatologist thinks we needed to step up to this...

Anyone taking methotrexate for Behcet's? My scalp is so bad I am starting it Fri...

•7 years ago

Time of Day Affects Severity of Autoimmune Disease

I thought our marvellous Behçet’s community would appreciate sight of the following research, all helping to add to the 'body of knowledge'. Some of the full...

I thought our marvellous Behçet’s community would appreciate sight of the follow...

Partner•7 years ago

57 Years old Female with a lifetime worth of Behçet's Symptoms

I just wanted to say hello & say I feel blessed now to have found this group. I have been alone with this Behçet's since childhood, no support network,...

I just wanted to say hello & say I feel blessed now to have found this group. I...

•7 years ago

Possible lupus

I’m waiting on my next dermatology appointment about the rashes I’ve been getting which they are trying to figure out whether it’s behcets or lupus. I came...

I’m waiting on my next dermatology appointment about the rashes I’ve been gettin...

•7 years ago

Colorado doctors??

I've experienced mouth ulcers for years and now vulvar ulcers. Also have arthritis symptoms, headaches, tinnitus, stiff neck...though my GP and other docs...

I've experienced mouth ulcers for years and now vulvar ulcers. Also have arthrit...

thinkingtoomuch

•7 years ago

Colorado doctors??

I've experienced mouth ulcers for years and now vulvar ulcers. Also have arthritis symptoms, headaches, tinnitus, stiff neck...though my GP and other docs...

I've experienced mouth ulcers for years and now vulvar ulcers. Also have arthrit...

thinkingtoomuch

•7 years ago

My niece was diagnosed with neuro Behçet’s, she is only 5 years old, does anyone have experience with children? She had seizures and fever

Hello, I’m new here and doing an extensive research on Behçet’s. When my niece was 3 years old she was diagnosed with uveitis (idiopathic at the time), that...

Hello, I’m new here and doing an extensive research on Behçet’s. When my niece w...

•7 years ago

Medication, and taking it abroad!

When going on holiday, I have to take a large amount of medication, and this includes refrigerated injections...does anyone know anything about this, do I need...

When going on holiday, I have to take a large amount of medication, and this inc...

•7 years ago

Going on holiday

I have finally been told that I can now go on a long haul holiday, since I got bi lateral blood clots in my lungs in 2014. My sister moved to Canada 5 years...

I have finally been told that I can now go on a long haul holiday, since I got b...

•7 years ago

Night sweats

I have been diagnosed for over 2 years and have suffered night sweats since. But these last few weeks they are a lot worse. I am soaking the bed, and my...

I have been diagnosed for over 2 years and have suffered night sweats since. But...

•7 years ago

pulsatile tinnitus?

I have ended up with the complications of severe left sided pulsatile tinnitus due to Neuro-Behcets, it really is ghastly to say the least. It started to get...

I have ended up with the complications of severe left sided pulsatile tinnitus d...

•7 years ago

Ulcer Biopsy

Hi Friends, this morning I had a mouth ulcer biopsied to be sent off and tested for Vasculitis. It wasn’t fun. Has anyone had this done? If so, what were the...

Hi Friends, this morning I had a mouth ulcer biopsied to be sent off and tested ...

•7 years ago

HA20, an autoinflammatory disease similar to BD

Hi there, I just got a post from another BD group about a newly-identified autoinflammatory disease called HA20. It has a LOT of symptoms that are just like...

Hi there, I just got a post from another BD group about a newly-identified autoi...

•7 years ago

High blood pressure

Hi! Does anyone have high blood pressure that they think or have been told that it is related to Behcet’s! I am in the ER for the first time ever with high...

Hi! Does anyone have high blood pressure that they think or have been told tha...

•7 years ago

Bechets, ME/CFS, Endocrine & Eye Disease

Does anyone here have all of the conditions: Bechets, CFS, Endocrine dysfunction and Vision problems that you were born with - low vision or night blindness ?

Does anyone here have all of the conditions: Bechets, CFS, Endocrine dysfunction...

•7 years ago

Be the first to reply

mary

hi I have a stabbing pain like a knife in my right hip now its changed to my left hip takes my breath away .has any one experienced this .

hi I have a stabbing pain like a knife in my right hip now its changed to my lef...

•7 years ago

Rheumatologist in New York

Hi! Can anyone in New York recommend a rheumatologist who is good with Behcets? The only doctor at the NYU Center who is still accepting patients is Dr....

Hi! Can anyone in New York recommend a rheumatologist who is good with Behcets?...

•7 years ago

Living with Behcet's Syndrome for 22yrs

Hello every one, I live in the U.S.A. I have a great doctor. I was diagnosed @ 18 yrs old in November 1995. Nobody knew what I had or what to do until I found...

Hello every one, I live in the U.S.A. I have a great doctor. I was diagnosed @ 1...

•7 years ago