Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,236 members • 4,325 posts

All posts for May 2019

Dec 2018 article on Behcet's in Ireland

Not too much gets written about BD in Ireland, so I thought I'd post a link to this one: UPDATED LINK: the earlier one didn't work:...

Not too much gets written about BD in Ireland, so I thought I'd post a link to t...

jzeis

•5 years ago

8 Replies

Hydroxychloroquine side effects???

I’m starting my 3rd month of the Hydroxychloroquine and I’ve been having Terrible acid reflux..it can be all day long and came on during my 2nd month of this...

I’m starting my 3rd month of the Hydroxychloroquine and I’ve been having Terribl...

Frustrated2

•5 years ago

2 Replies

Cerebral vasculitis

My brother in law has been diagnosed with cerebral vasculitis in arp’19.Last year he was diagnosed with vasculitis in eyes and he was on steroids for last one...

My brother in law has been diagnosed with cerebral vasculitis in arp’19.Last yea...

Ashvini

•5 years ago

1 Reply

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Otezla

Has anyone tried otezla ? I am going to start it soon and would love to know what symptoms it helped with.

Has anyone tried otezla ? I am going to start it soon and would love to know wha...

Chelsann21

•5 years ago

5 Replies

Adrenal Insufficiency

Hello all. Anyone experience this? How were you diagnosed? What medications are you on now? How did you know/think you had it before the formal diagnosis? They...

Hello all. Anyone experience this? How were you diagnosed? What medications are ...

Stm252

•5 years ago

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Uveitis

Uveitis. Eyedrops. Eugh.

Papapickle

•5 years ago

3 Replies

Pipp1 - Continuous stomach pain

Hi My daughter is suffering with a lot of symptons relating to Behcets, mouth and genital ulcers, joint pain, floaters in her eye, headaches and stomach pain,...

Hi My daughter is suffering with a lot of symptons relating to Behcets, mouth an...

pipp1

•5 years ago

18 Replies

Fibromyalgia

Pretty much every day I wake up feeling extremely stiff and achey all over and my feet are swollen. It's a lot worse if I've done any kind of exercise the...

Pretty much every day I wake up feeling extremely stiff and achey all over and m...

ch1982

•5 years ago

6 Replies

Questions about being pre diagnosed with Behçet Disease

I'm a 60 year old white female and I have been suffering for over a year with this mysterious ailment yet to be diagnosed and rapid weight loss of over 70...

I'm a 60 year old white female and I have been suffering for over a year with th...

Dt4frogs

•5 years ago

3 Replies

Neurobechets

Hi guys, a few months ago I was admitted to hospital with neurobechets (where the bechets affects your brain and brain stem) that was sorted and I’ve been fine...

Hi guys, a few months ago I was admitted to hospital with neurobechets (where th...

Katebbb

•5 years ago

17 Replies

Flare

It’s my birthday today. Having a really nice day. Totally flaring though. Considering going gp to request a second opinion on my diagnosis or to Atleast get...

It’s my birthday today. Having a really nice day. Totally flaring though. Consi...

Papapickle

•5 years ago

4 Replies

All spoons used and shaking

Hey, I went swimming today, just 4 lengths but proud of myself. When I left I was exhausted but ok, stopping off for a small amount of shopping I got to the...

Hey, I went swimming today, just 4 lengths but proud of myself. When I left I...

Papapickle

•5 years ago

Be the first to reply

BD a Family Affair

My husband was diagnosed about 10 years ago with Behcet’s. Our teenage daughter was diagnosed 6 months ago and was recently found to have the gene linked to...

My husband was diagnosed about 10 years ago with Behcet’s. Our teenage daughter...

MamaMouse

•5 years ago

2 Replies

Mycophenolate

Anyone on Mycophenolate? Do you still get ulcers? My main issue is joint pain and fatigue with oral/genital ulcers approximately every 3 months. I’ve been...

Anyone on Mycophenolate? Do you still get ulcers? My main issue is joint pain...

GlastoGal

•5 years ago

6 Replies

Positive pathergy test

Who here has had positive pathergy tests?

Bachetsrabbithole

•5 years ago

4 Replies

Unsure of bechets or some other autoimmune

Hi guys , am so confused . I started getting alot of mouth ulcers and one inside my nose , non on the genitals , no joint pain . These blisters start with an...

Hi guys , am so confused . I started getting alot of mouth ulcers and one inside...

PS1234

•5 years ago

11 Replies

Symptoms pic

Ok last one pic overload!! 🤣 I still have sense of humour

Benne09

•5 years ago

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Symptoms pics

I have so many more pics and experience severe burning/pain along with it

Benne09

•5 years ago

4 Replies

Symptoms pic

Again to go with previous post

Benne09

•5 years ago

Be the first to reply

Symptoms

Hello everyone, I wanted to reach out and ask if others experience what I have with my current flare, as some symptoms were new to me this time. Was very scary...

Hello everyone, I wanted to reach out and ask if others experience what I have w...

Benne09

•5 years ago

9 Replies

Depression and anxiety

This isn’t something that I usually talk about.. When I became diagnosed I found it really difficult thing to accept, to go from a really independent person...

This isn’t something that I usually talk about.. When I became diagnosed I foun...

Papapickle

•5 years ago

16 Replies

BD Books/Reading

I’ll pose this as a three point question and leave it open to anyone who chooses to chase a semi-related rabbit trail. 1)Has anyone read a book or books...

I’ll pose this as a three point question and leave it open to anyone who chooses...

Number4

•5 years ago

8 Replies

Soft Tissue Inflammation Vs. Arthritis. Is this part of Bechet?

Hi all I have been MIA for some time now. Workload,reality of disease and then being just blown away by some symptoms. Have had X-rays done on my hands and...

Hi all I have been MIA for some time now. Workload,reality of disease and then b...

Zuzu798

•5 years ago

7 Replies

Have worst time with ulcers

I have been in an awful flare genital,intestinal, nose. throat & mouth ulcers, (now feeling like it’s going back to cranial nerves) Feeling like had a weighted...

I have been in an awful flare genital,intestinal, nose. throat & mouth ulcers, (...

Frustrated2

•5 years ago

22 Replies

Travel insurance

Hi I live in the uk and am travelling to France in July . I’m trying to get travel insurance but many of the companies I have tried are unfamiliar with behcets...

Hi I live in the uk and am travelling to France in July . I’m trying to get trav...

Dinkyjojo7

•5 years ago

2 Replies

Fatigue and excessive sleep

Does anyone else just feel like all they want to do is sleep when having a flare? I get so fatigued and go to bed early, sleep for 9 or 10 hours, then can...

Does anyone else just feel like all they want to do is sleep when having a flare...

dcrase

•5 years ago

7 Replies

Physio

Hi Long time no post. So here it is. Been suffering terrible burning in my joints recently and a crunching in my neck when rotating my head. Healthcare...

Hi Long time no post. So here it is. Been suffering terrible burning in my ...

Papapickle

•5 years ago

3 Replies

Vein burning from blood draw

I had a blood draw a month ago. Two weeks after the blood draw my veins in my arm began to feel like they were burning and there was burning at the...

I had a blood draw a month ago. Two weeks after the blood draw my veins in my ar...

Hidden

•5 years ago

2 Replies

Help

Anybody self meditating

Scandal

•5 years ago

3 Replies

Question about Behcet's acne type lesions

Can anyone tell me if the acne like lesions with Behcet's are infiltrated with hard, grainy kind of white substance vs more fluid liquid? The spots on my...

Can anyone tell me if the acne like lesions with Behcet's are infiltrated with h...

Lilyrose12

•5 years ago

2 Replies

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Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for May 2019

Dec 2018 article on Behcet's in Ireland

Hydroxychloroquine side effects???

Cerebral vasculitis

Otezla

Adrenal Insufficiency

Uveitis

Pipp1 - Continuous stomach pain

Fibromyalgia

Questions about being pre diagnosed with Behçet Disease

Neurobechets

Flare

All spoons used and shaking

BD a Family Affair

Mycophenolate

Positive pathergy test

Unsure of bechets or some other autoimmune

Symptoms pic

Symptoms pics

Symptoms pic

Symptoms

Depression and anxiety

BD Books/Reading

Soft Tissue Inflammation Vs. Arthritis. Is this part of Bechet?

Have worst time with ulcers

Travel insurance

Fatigue and excessive sleep

Physio

Vein burning from blood draw

Help

Question about Behcet's acne type lesions

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive