Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,478 members•4,420 posts

All posts for June 2019

Mobility

Hello Does anyone else use a wheelchair or mobility aid?

Hello Does anyone else use a wheelchair or mobility aid?

•6 years ago

Changing Clinics

Has anyone changed their clinic because they were unhappy?

Has anyone changed their clinic because they were unhappy?

•6 years ago

Research on oils for the skin

Useful info for anyone looking for ways of relieving Behçet's skin problems! Especially if, like me, you react to the petroleum products and preservatives they...

Useful info for anyone looking for ways of relieving Behçet's skin problems! Esp...

•6 years ago

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Update - eyes

Hi I had my results from the ophthalmology consultant this morning. The VEP and Angiogram have all returned normal results. I have been referred to the...

Hi I had my results from the ophthalmology consultant this morning. The VEP an...

•6 years ago

How long do people’s flares last

I’ve had BD for years diagnosed early 20’s now 38, I’ve had 3-4 major flares, attacking liver, lungs, gastrointestinal tract and all the usual places, joints,...

I’ve had BD for years diagnosed early 20’s now 38, I’ve had 3-4 major flares, at...

•6 years ago

At last 1st rheumatologist Appointment & Colchicine

So after 2 cancelled appointments it finally happened. Went to local hospital to see rheumatologist for the first time. Went in with a very non positive...

So after 2 cancelled appointments it finally happened. Went to local hospital to...

•6 years ago

Hip/Pelvic Gurdle Issues

Hi All. Most recently (probably last month), in the morning, I have to lift myself up by my hands because the pain is so bad in my lower quadrant and I am...

Hi All. Most recently (probably last month), in the morning, I have to lift myse...

•6 years ago

Has anyone had any problems with their liver due to the behcets disease?

I have had deranged liver results for over 12 months which the doctors have been monitoring.i started to have bad pain in the liver area about 4 months ago and...

I have had deranged liver results for over 12 months which the doctors have been...

•6 years ago

Facial Neuropathy

Here we go again, another flare,left side this time over the forehead &eye. Very painful to heat,cold&touch. Any advice welcome pls?

Here we go again, another flare,left side this time over the forehead &eye. Very...

•6 years ago

I think I might be quite poorly

As you know I had a sudden change of vision not caused by uveitis or vaculitis. I had my evoked potential test today and during it I saw grey patches. I...

As you know I had a sudden change of vision not caused by uveitis or vaculitis. ...

•6 years ago

High Altitude

Hello all, I am going to be traveling to colorado in a few weeks and I am worried that the high altitude is going to cause problems for my behchets. Any...

Hello all, I am going to be traveling to colorado in a few weeks and I am worri...

•6 years ago

Snakes alive

Hi everyone, I’m recently going through the process of being diagnosed with Bechets after positively responding to colchicine and having my mouth and bottom...

Hi everyone, I’m recently going through the process of being diagnosed with Bech...

•6 years ago

Prednisone Titration Schedule?

I am aware this is not medical advice. I am just curious what success people have had with different titration schedules once people have arrived around 5 or...

I am aware this is not medical advice. I am just curious what success people hav...

•6 years ago

Anyone have thyroid issues

My primary care recently increased my thyroid medication. I haven’t felt as well, tired achey, headache, my neuropathy is increasing. The symptoms I had during...

My primary care recently increased my thyroid medication. I haven’t felt as well...

•6 years ago

Bad experience at London C of E?

Has anyone been unhappy with their care there? Have you had conflicting opinions from them? If so how did you deal with it? I was unhappy with my care...

Has anyone been unhappy with their care there? Have you had conflicting opinio...

•6 years ago

Mega Dose Vit D - side effects

Has anyone had the 300,000 Iu Vit D injection? I was given it a few months ago after testing at the hospital and have had excessive urination ever since. It...

Has anyone had the 300,000 Iu Vit D injection? I was given it a few months ago a...

•6 years ago

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Rheumatologists....

Have you ever felt dropped by your rheumatologist? Like they have given up on your case? Been stumped? Or basically just had enough of you? Well folks, that's...

Have you ever felt dropped by your rheumatologist? Like they have given up on yo...

•6 years ago

returning newbie

Hi, Im back after a long break from the old facebook BD group glad to see Behcets UK on here as youve been a brilliant support over the years since my dx, Im...

Hi, Im back after a long break from the old facebook BD group glad to see Behcet...

•6 years ago

Evoked potentials test

Hi Has anyone else had an evoked potential test for unexplained eye trouble? I have uveitis in my left eye but it isn’t showing in my right. Slightly...

Hi Has anyone else had an evoked potential test for unexplained eye trouble? ...

•6 years ago

Symptoms and misdiagnosis

Hi everyone, This is going to be a bit of a long one but wondered if anyone else has had similar a similar experience and if my symptoms 'fit' because I feel...

Hi everyone, This is going to be a bit of a long one but wondered if anyone else...

•6 years ago

Recommendations London Neuro

Hi Can anyone recommend a Neurologist specialising in Behcet’s and neuro ophthalmology in or around the London area. Someone with a good bedside manner😊

Hi Can anyone recommend a Neurologist specialising in Behcet’s and neuro ophthal...

•6 years ago

Mri

Has anyone ever been referred for an mri when uveitis has hit? I went to emergency eye clinic yesterday and after eye exam, dilation, scan and review by...

Has anyone ever been referred for an mri when uveitis has hit? I went to emerg...

•6 years ago

Massive GI Bleed

Hi. I’m wondering what kind of GI symptoms others have had. I just got home from a 6 day stay at the hospital for a GI bleed. Lots of tests were done. Nothing...

Hi. I’m wondering what kind of GI symptoms others have had. I just got home fro...

•6 years ago

How suddenly did Behcet's emerge for you?

I am soon forty, and I never had any ulcers or health issues more generally until a month back. Then I suddenly got tonsillitis, then serious aphthous ulcers,...

I am soon forty, and I never had any ulcers or health issues more generally unti...

•6 years ago

Uveitis update

Hello So I had uveitis in my left eye and have been taking my steroid drops (although I did miss a day). It has now started getting worse in that eye and also...

Hello So I had uveitis in my left eye and have been taking my steroid drops (al...

•6 years ago

Here’s a question

So good people. Something I have been trying to work out but cannot find the answer. Is behcets arthritis or can it lead to that? I am suffering neck,...

So good people. Something I have been trying to work out but cannot find the a...

•6 years ago