Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,391 members•4,391 posts

All posts for March 2013

Avoid Echinacea at all costs!

It would seem that taking Echinacea makes BD a million times worse! Be warned.........

It would seem that taking Echinacea makes BD a million times worse! Be warned.....

stormie

•12 years ago

5 Replies

stabbing pains all over :(

Does anyone get stabbing pains all over their body?? I have not been diagnosed with BD, but i feel like i have so many symptoms (mouth ulcers, sore eyes, skin...

Does anyone get stabbing pains all over their body?? I have not been diagnosed w...

nicz

•12 years ago

3 Replies

Happy Easter!

Well I gave in and on Thurday afternoon went home sick from work! First time in a year and have spent 3 days feeling sick and aching and generally just...

Well I gave in and on Thurday afternoon went home sick from work! First time in...

bailey23

•12 years ago

8 Replies

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Response to Sue about severe headaches

I'm sorry you're struggling so much with terrible headaches. Some causes of severe headaches never show up on any tests or scans, even the newer brain...

I'm sorry you're struggling so much with terrible headaches. Some causes of sev...

amietamant

•12 years ago

5 Replies

Jean, London Health Care Support Worker

Hi, my name is Jean and I have recently been appointed as Health Care Support Worker with the Bechcet's Syndrome Society, and will based in the London Centre...

Hi, my name is Jean and I have recently been appointed as Health Care Support Wo...

Hidden

•12 years ago

39 Replies

My cheap skate tip for migraine and headache attacks !

I have noticed several people complaining about the headaches and migraine attacks they have been getting recently and thought it might be useful to share my...

I have noticed several people complaining about the headaches and migraine attac...

xandii

•12 years ago

10 Replies

How do you know if your ulcers are related to BD?

OK, so i haven't been diagnosed with BD or anything, although I feel like i have an awful lot of the symptoms and that is why I am on here. I get incessant...

OK, so i haven't been diagnosed with BD or anything, although I feel like i have...

nicz

•12 years ago

6 Replies

I'm always advised by my Doctors to REST!Maybe an obvious question but what does this mean.

Dundee1963

•12 years ago

13 Replies

Mobility Scooters - Luggie?

I have decided to bite the bullet and buy myself a lightweight mobility scooter. The one that I am favouring at the moment is the Luggie. Has anyone bought...

I have decided to bite the bullet and buy myself a lightweight mobility scooter....

lesleyg

•12 years ago

17 Replies

My Behcet's headaches - "Atypical migraines"

I don't know about the availability of perfusion MRI's at the Behcet's Centres of Excellence, but it might be helpful to print out the full color version of...

I don't know about the availability of perfusion MRI's at the Behcet's Centres o...

amietamant

•12 years ago

18 Replies

Perfusion brain MRI's are much better at showing proof of Behcet's neurological involvement than regular MRI's

Now that neurologists have discovered that perfusion MRI's (p-MRI's) are more sensitive to detecting Behcet's neurological involvement in the brain, fewer...

Now that neurologists have discovered that perfusion MRI's (p-MRI's) are more se...

amietamant

•12 years ago

9 Replies

How do i know if i've got Behcets?

Hey! So i know this is a vague question, but i'm really thinking I could have it. Since I was young (approx 7 or 8) i have had CONSTANT mouth ulcers...it...

Hey! So i know this is a vague question, but i'm really thinking I could have it...

nicz

•12 years ago

8 Replies

Haveing a bad behcets flare up, got 2 large swollen glands at the back of my head & are very painfull any help or ideas for pain relief ?

leopard

•12 years ago

4 Replies

Behcet's research

Simple words on this support site: okay, I get it. Differences can be aired in private emails. I'm pleased with the support and thank-you's I'm receiving...

Simple words on this support site: okay, I get it. Differences can be aired in ...

amietamant

•12 years ago

5 Replies

Happy Monday!!

Hi all i had weekend from hell .... Mr B Hasn't is in flare mood and the oh got passed again. and wrote off car last night....so he made decision for me he has...

Hi all i had weekend from hell .... Mr B Hasn't is in flare mood and the oh got ...

ruthbalbirnie

•12 years ago

8 Replies

Difference between neurobehcets and behcets with neurological symptoms?

I notice on another question it was bought up that there is a difference between neurobehcets and behcets with neurological symptoms. Pretty sure I am in the...

I notice on another question it was bought up that there is a difference between...

lesleyg

•12 years ago

16 Replies

Undiagnosed...& new here!

Just wanted to say hello. Been sick a long time with chronic fatigue, fibromyalgia, multiple chemical allergies & sensitivities, seronegative...

Just wanted to say hello. Been sick a long time with chronic fatigue, fibromyalg...

AusBehcets

•12 years ago

4 Replies

Becoming informed about Behcet's

I wanted to point out to Xandi that I spent 10 DAYS (not years) as a hospital inpatient in NIH's Behcet's Natural History Study (Washington D.C. / Bethesda)...

I wanted to point out to Xandi that I spent 10 DAYS (not years) as a hospital in...

amietamant

•12 years ago

7 Replies

Want to discuss with people who feel like me.

Interested in symptoms, medications and advice.

Livingbechets

•12 years ago

33 Replies

Sick of taking prednisone every time I have a flare, and being prescribed percocets. Any suggestions on pain medication?

Livingbechets

•12 years ago

8 Replies

no energy and no matter how long i sleep for i am still tired!!!

hi all i have another question regarding fatigue and as mentioned in the question no matter how much sleep i get i still wake up tired this is a new one on me...

hi all i have another question regarding fatigue and as mentioned in the questio...

scruffy1

•12 years ago

7 Replies

If you like mushrooms read this article

http://www.fungusamongus.com/dried-mushroom-health-benefits/

tamirra

•12 years ago

7 Replies

Thanks ....

Hi well have seen my Rhuemy and had a steroid injection in my thigh (Buritis) and then Dr tried drawing fluid from my knee as it was very swollen (that bliming...

Hi well have seen my Rhuemy and had a steroid injection in my thigh (Buritis) an...

bailey23

•12 years ago

4 Replies

Does anyone just get one or two big ulcers in mouth instead of a cluster of them during a flare up ? I seem two get one big one on tongue

And another one or two on inside of mouth .. But always quite big ?

SignalBoxer

•12 years ago

14 Replies

Neanderthal DNA, Genetics, and Behcet's Disease

This week, the full high-quality genome sequencing of Neanderthals' DNA was made available for free online. Research into cross-breeding between Homo Sapiens...

This week, the full high-quality genome sequencing of Neanderthals' DNA was made...

amietamant

•12 years ago

8 Replies

Fundraising, a last call out for sponsorship

A final reminder that my friend is doing his second run for BD this Sunday. If any of you have social media pages it would be much appreciated if you could...

A final reminder that my friend is doing his second run for BD this Sunday. If ...

Hidden

•12 years ago

5 Replies

Another day in the life of the dreaded BD

Hi all Don't know about where you guys are but here in the Wild West of Ireland it is howling a gale that would cut you in two...I am having another Duvet...

Hi all Don't know about where you guys are but here in the Wild West of Irel...

ruthbalbirnie

•12 years ago

2 Replies

umbilical stem cell treatment

Just came across this, do you think its worth asking the hospital about it here in the UK..... It is a pleasure to meet you. I have heard a lot of you and the...

Just came across this, do you think its worth asking the hospital about it here ...

tamirra

•12 years ago

5 Replies

How to talk to doctors about suspected behcet's?

How do you talk to your doctors and bring up the suspicion of behcet's? I know that many doctors do not want you to be diagnosing yourself and look at you...

How do you talk to your doctors and bring up the suspicion of behcet's? I know ...

wendya432

•12 years ago

8 Replies

Stomach pains

I think I have finally figured out my stomach pain issue! I will have to consult with my docs to see if they agree, but I finally feel like something makes...

I think I have finally figured out my stomach pain issue! I will have to consul...

wendya432

•12 years ago

9 Replies

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for March 2013

Avoid Echinacea at all costs!

stabbing pains all over :(

Happy Easter!

Response to Sue about severe headaches

Jean, London Health Care Support Worker

My cheap skate tip for migraine and headache attacks !

How do you know if your ulcers are related to BD?

I'm always advised by my Doctors to REST!Maybe an obvious question but what does this mean.

Mobility Scooters - Luggie?

My Behcet's headaches - "Atypical migraines"

Perfusion brain MRI's are much better at showing proof of Behcet's neurological involvement than regular MRI's

How do i know if i've got Behcets?

Haveing a bad behcets flare up, got 2 large swollen glands at the back of my head & are very painfull any help or ideas for pain relief ?

Behcet's research

Happy Monday!!

Difference between neurobehcets and behcets with neurological symptoms?

Undiagnosed...& new here!

Becoming informed about Behcet's

Want to discuss with people who feel like me.

Sick of taking prednisone every time I have a flare, and being prescribed percocets. Any suggestions on pain medication?

no energy and no matter how long i sleep for i am still tired!!!

If you like mushrooms read this article

Thanks ....

Does anyone just get one or two big ulcers in mouth instead of a cluster of them during a flare up ? I seem two get one big one on tongue

Neanderthal DNA, Genetics, and Behcet's Disease

Fundraising, a last call out for sponsorship

Another day in the life of the dreaded BD

umbilical stem cell treatment

How to talk to doctors about suspected behcet's?

Stomach pains

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