Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,391 members•4,391 posts

All posts for April 2015

New and scared!

Hi, my 9 year old daughter is currently being diagnosed and I had was terrified when I read what this rare disease was. I found this society by chance and I...

Hi, my 9 year old daughter is currently being diagnosed and I had was terrified ...

•10 years ago

Steroid injections and gabapentin for pain

I am curious about steroid injections I have never been given the option from my rheumatologist, I am currently on oral prednisone, is that the same ? I have...

I am curious about steroid injections I have never been given the option from ...

•10 years ago

Steroid withdrawal

Hi, has anyone else experienced really nasty headaches having come off steroids (prednisone)? I tapered down to 2.5mg and then came off them completely about 2...

Hi, has anyone else experienced really nasty headaches having come off steroids ...

•10 years ago

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going on holiday

I have finally been given the go ahead to go on holiday with my children. As a Behcets sufferer and the fact that i had bi-lateral clots in my lungs last year....

I have finally been given the go ahead to go on holiday with my children. As a B...

•10 years ago

ALT results: son on methotrexate

My son, who is 7, takes 15mg/week of methotrexate is normal ALT figure is 27. It has jumped up to 60 this month which is just above normal the normal range...

My son, who is 7, takes 15mg/week of methotrexate is normal ALT figure is 27. It...

•10 years ago

Behcets specialist south of Ireland?

Hi I am 41 ye old female w behcets. Lots of random problems my gp can't help with on top of ulcers and uveitis. I would love to know if there is a specialist...

Hi I am 41 ye old female w behcets. Lots of random problems my gp can't help wit...

•10 years ago

vickie 40

Hi Im new here, just wanted to give those with bechets a heads up with regards to Personal Independence Payments. I have just been awarded both low rate care...

Hi Im new here, just wanted to give those with bechets a heads up with regards t...

•10 years ago

Retinal vasculitis

Does retinal vasculitis cause pain? Last year an optholomalogist said my retina in both eyes are swelling but he did not seem alarm. Every year they are more...

Does retinal vasculitis cause pain? Last year an optholomalogist said my retina...

•10 years ago

Pheochromocytoma

I have Behcet's but my consultant suspects I may have a rare tumour on the adrenal gland called a Pheochromocytoma. The symptoms are sporadic spikes in blood...

I have Behcet's but my consultant suspects I may have a rare tumour on the adren...

•10 years ago