Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,243 members • 4,329 posts

All posts for November 2013

London to Paris fundraiser for the Behcet's Syndrome Society

So we've booked the Adventure Company, we have the route planned, now all we need is you and your friends/family to volunteer to take part in our London to...

So we've booked the Adventure Company, we have the route planned, now all we nee...

BSSAdmin

•10 years ago

3 Replies

Is most everyone with Behcet's on some type of an immunosuppressant long-term? What is your experience? Thanks

(One doctor wants me on azathioprine for two years to settle down my system and put things into remission hopefully and my "second opinion" doctor doesn't feel...

(One doctor wants me on azathioprine for two years to settle down my system and ...

Rose138

•10 years ago

7 Replies

On for the kiddies ( click or copy and paste link and follow instruction )

http://www.portablenorthpole.com/home?emst=wak79o8cUI_614287_39568_24&utm_campaign=Launch&utm_medium=2013_L_EN_email&utm_source=marketing

http://www.portablenorthpole.com/home?emst=wak79o8cUI_614287_39568_24&utm_campai...

tamirra

•10 years ago

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Is hair loss common in this disease? Or is it my Hashimoto's acting up again? It's bad enough I feel like hell. do i have to be bald too?

freckles66

•10 years ago

2 Replies

LEG PAIN WHEN WALKING

I will try and describe this the best I can. I am having to rely alot now on using a crutch. The further I walk the more difficult I find it becomes. Its my...

I will try and describe this the best I can. I am having to rely alot now on usi...

pheobe67

•10 years ago

5 Replies

Leicester Support Group meeting Change of Date

We have had to rearrange the date for the next Leicester support group meeting due to a mix up with the room booking all other details remain the same New...

We have had to rearrange the date for the next Leicester support group meeting d...

swb1

•10 years ago

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London Support Group Reminder

Hi there, Just wanted to remind everyone that there will be a group held on Thursday 12 December from 3pm-5pm at the Centre for Pyschosynthesis 92-94 Tooley...

Hi there, Just wanted to remind everyone that there will be a group held on Thur...

Hidden

•10 years ago

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1st flare up in two & half months after stabilised on infliximab infusions !

Hi , everyone ... not been on here for a while - dont worry not forgotten you :-) Im a bit gutted as im just going through my 1st flare up in ages due to my...

Hi , everyone ... not been on here for a while - dont worry not forgotten you :-...

SignalBoxer

•10 years ago

8 Replies

Heart beating fast.

Hi new on here ,does any one else have problems with their heart beating very loudly mostly at night when trying to sleep,i can visibly see it through my top...

Hi new on here ,does any one else have problems with their heart beating very lo...

happyhacker56

•10 years ago

8 Replies

my son is worse because of drugs does it get better

lottie01harry

•10 years ago

1 Reply

Hi I have just heard from someone else who has behcets that there is a specialist who comes to the UHW in cardiff once a week on a Thursday

Just wondering if any one else knows if this is right ? X

Jackamo

•10 years ago

11 Replies

HI. I'm new here!

My name's Bliss. I'm Canadian Eh? I live in a teeny tiny town in an area of British Columbia called The Similkameen Valley. It's just as beautiful as it...

My name's Bliss. I'm Canadian Eh? I live in a teeny tiny town in an area of Bri...

blissaru

•10 years ago

3 Replies

esa stopping in april, due to contributions running out, husband works so been told i will get nothing. is there anything else i can claim

my esa i recieve is from when i worked full time. i lost my job due to behcets and had to go to a tribunal. my husband works, so i have been told in april i...

my esa i recieve is from when i worked full time. i lost my job due to behcets a...

millie11

•10 years ago

2 Replies

Dr. Yusuf Yazici

I've been referred to him by my local dr I've seen Dr Yazici once so this Tuesday will be my second time meeting with him. I'm just curious if anyone here has...

I've been referred to him by my local dr I've seen Dr Yazici once so this Tuesda...

Nicole86

•10 years ago

18 Replies

Sleep

So for a couple months now I have not gotten a good nights sleep. I've tried lunesta and melatonin but I'm still awake at night. Having bechets I do rest a...

So for a couple months now I have not gotten a good nights sleep. I've tried lu...

Nicole86

•10 years ago

10 Replies

Hello everyone! I'm new here and looking for support and info on bechets disease! I was diagnosed in February 2013 and it's awful

I've tried prednisone and colcrys and humira injections but nothing has helped. On Tuesday I'm going back to my dr in NYC for a new treatment plan. Has...

I've tried prednisone and colcrys and humira injections but nothing has helped. ...

Nicole86

•10 years ago

6 Replies

London Support Group: December

Our next meeting will be held on Thursday 12 December, 3-5 pm at the: Centre for Pyschosynthesis 92-94 Tooley Street London SE1 2TH 020 7403 7814 This will be...

Our next meeting will be held on Thursday 12 December, 3-5 pm at the: Centre for...

Hidden

•10 years ago

2 Replies

Is anyone else recieving e-mails via health unlocked from a lmfc .i thought our information was restricted to this site.......

It may be a troll...someone who has registered to gain access.its not pleasant to receive a notification saying they have been looking and now found their...

It may be a troll...someone who has registered to gain access.its not pleasant t...

Oceanna

•10 years ago

4 Replies

Suspected Behcet's... Any advice?

Hi all, I was diagnosed with CFS/ME back in 2000, but never thought it was the whole story due to the flares I have every few weeks (ulcers, painful red eyes,...

Hi all, I was diagnosed with CFS/ME back in 2000, but never thought it was the w...

Jaxxi

•10 years ago

2 Replies

Back Surgery?

has anyone had any sort of back surgery? I am looking at lower back surgery to correct the depletion of cartilage and osteoporosis so its mostly bone on bone,...

has anyone had any sort of back surgery? I am looking at lower back surgery to c...

Dmartin138

•10 years ago

5 Replies

Positive comments!!!

Hope everyone is doing alright. Mild flare up at the moment. Just wanted to post a positive comment on here because sometimes I think even I forget to try and...

Hope everyone is doing alright. Mild flare up at the moment. Just wanted to post...

Dmartin138

•10 years ago

8 Replies

Cambridge Vasculitis Support meeting on 7 December

The Behcet's East of England support group is linking with the Vasculitis group on 7 December in Cambridge for some interesting talks on diet/nutrition and...

The Behcet's East of England support group is linking with the Vasculitis group ...

Zebra

•10 years ago

3 Replies

Am atm suffering from what feels a never ending headache... :-(

am on day 6 of constant pounding n throbbing head, eyes burning,blury and sensitive to light. have had no releif from pain killings and sleep really dont help....

am on day 6 of constant pounding n throbbing head, eyes burning,blury and sensit...

nickyclem

•10 years ago

8 Replies

Hi all went to c my rheumatologist today an she know says I have fibromyalgia as well as the bechets an everything else just wondering if

Anyone else has this if so how do u manage it thanks all xx

Jackamo

•10 years ago

8 Replies

how do I claim any money/benefits as ive left my job due to my illness

17months have passed and to be honest im no further forward, still having ulcers in mouth and down below but not often down below, my bones ache, I suffer from...

17months have passed and to be honest im no further forward, still having ulcers...

evo74

•10 years ago

4 Replies

i have this weird burny, throbby dizzy feeling in my spine and head. almost always. does anyone else deal with this?

freckles66

•10 years ago

3 Replies

I feel badly that I'm earning "frequent flyer miles" so to speak with all my many recent questions, but if I may ask one more for now: Does

it seem rather extreme that my rheumatologist would pull me off Imuran and tell me I need to be off of 40mg. of prednisone in two weeks time as I've caught a...

it seem rather extreme that my rheumatologist would pull me off Imuran and tell ...

Rose138

•10 years ago

4 Replies

Just wanted say hello formally and anyone else in USA. If not where are you from?

Title describes it. My name is Dean. I'm from San Diego, CA. seems medicines in Canada, UK, and other European countries therapy and treatment is a little...

Title describes it. My name is Dean. I'm from San Diego, CA. seems medicines in ...

Dmartin138

•10 years ago

7 Replies

ACNE

when you guys break out with any sort of acne does anyone else feel after they have popped them that it turns into a lesion. Mine never seem to feel and if I...

when you guys break out with any sort of acne does anyone else feel after they h...

Dmartin138

•10 years ago

8 Replies

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Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for November 2013

London to Paris fundraiser for the Behcet's Syndrome Society

Is most everyone with Behcet's on some type of an immunosuppressant long-term? What is your experience? Thanks

On for the kiddies ( click or copy and paste link and follow instruction )

Is hair loss common in this disease? Or is it my Hashimoto's acting up again? It's bad enough I feel like hell. do i have to be bald too?

LEG PAIN WHEN WALKING

Leicester Support Group meeting Change of Date

London Support Group Reminder

1st flare up in two & half months after stabilised on infliximab infusions !

Heart beating fast.

my son is worse because of drugs does it get better

Hi I have just heard from someone else who has behcets that there is a specialist who comes to the UHW in cardiff once a week on a Thursday

HI. I'm new here!

esa stopping in april, due to contributions running out, husband works so been told i will get nothing. is there anything else i can claim

Dr. Yusuf Yazici

Sleep

Hello everyone! I'm new here and looking for support and info on bechets disease! I was diagnosed in February 2013 and it's awful

London Support Group: December

Is anyone else recieving e-mails via health unlocked from a lmfc .i thought our information was restricted to this site.......

Suspected Behcet's... Any advice?

Back Surgery?

Positive comments!!!

Cambridge Vasculitis Support meeting on 7 December

Am atm suffering from what feels a never ending headache... :-(

Hi all went to c my rheumatologist today an she know says I have fibromyalgia as well as the bechets an everything else just wondering if

how do I claim any money/benefits as ive left my job due to my illness

i have this weird burny, throbby dizzy feeling in my spine and head. almost always. does anyone else deal with this?

I feel badly that I'm earning "frequent flyer miles" so to speak with all my many recent questions, but if I may ask one more for now: Does

Just wanted say hello formally and anyone else in USA. If not where are you from?

ACNE

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive