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Behçet's UK
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Hip/Pelvic Gurdle Issues

Hi All. Most recently (probably last month), in the morning, I have to lift myse...

Has anyone had any problems with their liver due to the behcets disease?

I have had deranged liver results for over 12 months which the doctors have been...

Facial Neuropathy

Here we go again, another flare,left side this time over the forehead &eye. Very...

I think I might be quite poorly

As you know I had a sudden change of vision not caused by uveitis or vaculitis. ...

High Altitude

Hello all, I am going to be traveling to colorado in a few weeks and I am worri...

Snakes alive

Hi everyone, I’m recently going through the process of being diagnosed with Bech...

Prednisone Titration Schedule?

I am aware this is not medical advice. I am just curious what success people hav...

Anyone have thyroid issues

My primary care recently increased my thyroid medication. I haven’t felt as well...

Bad experience at London C of E?

Has anyone been unhappy with their care there? Have you had conflicting opinio...

Mega Dose Vit D - side effects

Has anyone had the 300,000 Iu Vit D injection? I was given it a few months ago a...

Rheumatologists....

Have you ever felt dropped by your rheumatologist? Like they have given up on yo...

returning newbie

Hi, Im back after a long break from the old facebook BD group glad to see Behcet...

Evoked potentials test

Hi Has anyone else had an evoked potential test for unexplained eye trouble? ...

Symptoms and misdiagnosis

Hi everyone, This is going to be a bit of a long one but wondered if anyone else...

Recommendations London Neuro

Hi Can anyone recommend a Neurologist specialising in Behcet’s and neuro ophthal...

Mri

Has anyone ever been referred for an mri when uveitis has hit? I went to emerg...

Massive GI Bleed

Hi. I’m wondering what kind of GI symptoms others have had. I just got home fro...

How suddenly did Behcet's emerge for you?

I am soon forty, and I never had any ulcers or health issues more generally unti...

Uveitis update

Hello So I had uveitis in my left eye and have been taking my steroid drops (al...

Here’s a question

So good people. Something I have been trying to work out but cannot find the a...

Dec 2018 article on Behcet's in Ireland

Not too much gets written about BD in Ireland, so I thought I'd post a link to t...

Hydroxychloroquine side effects???

I’m starting my 3rd month of the Hydroxychloroquine and I’ve been having Terribl...

Cerebral vasculitis

My brother in law has been diagnosed with cerebral vasculitis in arp’19.Last yea...

Otezla

Has anyone tried otezla ? I am going to start it soon and would love to know wha...

Adrenal Insufficiency

Hello all. Anyone experience this? How were you diagnosed? What medications are ...

Uveitis

Uveitis. Eyedrops. Eugh.

Pipp1 - Continuous stomach pain

Hi My daughter is suffering with a lot of symptons relating to Behcets, mouth an...

Fibromyalgia

Pretty much every day I wake up feeling extremely stiff and achey all over and m...

Questions about being pre diagnosed with Behçet Disease

I'm a 60 year old white female and I have been suffering for over a year with th...

Neurobechets

Hi guys, a few months ago I was admitted to hospital with neurobechets (where th...
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