Camp199716 hours ago
Hey guys, so after the past week or so I’ve been having a very rough journey. It all began with SEVERE abdominal pain/swelling of the bowel,...
VickiOliver3 days ago
Hello everyone in the 🇬🇧
I’m going to the AGM in Bristol on Saturday. I was just wondering if anyone else was going too?
Stm2523 days ago
Anyone been diagnosed with this? How have you managed it?
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Lesions and fatigue.
Number44 days ago
I'm fairly new here. Who has had trouble and then success with genital lesions and bleeding along with discomfort? What worked?
Also, how c...
Galaxiegirl894 days ago
I'm very new to this. I have been healthy my whole life and didn't even realize that I had a disease or that the symptoms I had, being so mi...
4 Replies2 Likes
Anyone else have ....
ldramjet5 days ago
I’ve had a few things happen to me that I can’t explain that I wanted to see if anyone else may have experienced:
I’ve noticed from time to t...
10 Replies1 Like
OpsDave707 days ago
Has anyone tried Remicade? Does it help better than other treatments? Are there side-effects? I’ve been on Humira and Methotrexate for ps...
How The Lord of the Rings gave me some clarity to the way Behcets disease makes me feel.
Blearyeyed8 days ago
I am just sitting here , enjoying a little bit of geek time , watching the first Lord of the Rings film.
If you haven't seen it or do not kno...
6 Replies8 Likes
lesleyg10 days ago
Had a good report from the neurologist. He said it was the best he had seen my fingers and thinks the Rituximab is working (slowly). I’m t...
11 Replies2 Likes
Who has had the flu jab and side effects?
VickiOliver10 days ago
Gosh this years flu jab has caused issues. I’ve experienced multiple joint pains including in my toes! I am a little flary so this may be co...
Frank2222210 days ago
i get the vaginal ulcars but new symptom is these spots that pop uo all over my body they did a biopsy awaiting results but i also find my v...
polypectomy: Doctor, clip it right away, please!
magician11 days ago
I had my colonoscopy yesterday. I have been dreading it for such a long time, but a friend who survived colon cancer urged me to ha...
Brichel12 days ago
Both my Bechet's and Lupus are flaring. Mouth and genital ulcers, nerves in face going crazy, swollen everywhere so tired and my head is hu...
12 Replies1 Like
BD and other conditions
Papapickle12 days ago
Does anyone else with Behcets have Trigeminal Neuralgia?
Wondering if I am the only one....
Today I to9 the brave step of speaking to a counsellor to try and come to terms with my Behçets and how it’s effecting my life, along with t...
5 Replies1 Like
Types of Behçet’s?
AusBehcets12 days ago
Hi all. Someone mentioned there are 6 types of Behçet’s. Can someone please list those types & give a reference if possible. Thanks
Papapickle13 days ago
Would you agree that working full time causes relapses?
Any advice and or thoughts gratefully received.
juliebover14 days ago
I've been feeling so poorly lately that I'm beginning to wonder how much of it is side effects from the medication for Behcet's and my heart...
Dinkyjojo714 days ago
Hi can anyone help please?! I start my first inflixamab treatment tomorrow and have the day off from work because they have said 5 to 6 hour...
Brichel16 days ago
Has anyone used med pot for pain?
Well, you don’t look ill.
KDL196417 days ago
I don’t know about you but over the years I’ve hear that hundreds of times.
I was diagnosed in 1989 at the age of 24 after repeated Uveiti...
13 Replies6 Likes
New to Behçet’s
ldramjet18 days ago
Hi all! I am new to this forum and new to Behçet’s - just diagnosed two weeks ago. I’ve done a lot of digging online and don’t find much b...
13 Replies1 Like
Lovingdragonflies18 days ago
Hi. My eye sight has been coming and going but settled on worse than my normal. My opthmalogist ran me through all of the normal tests for B...
Stm25218 days ago
Does anyone have mast cell activation syndrome?
Bruising around the knuckles
VickiOliver19 days ago
Hi my joints in my hands keep swelling and are very stiff. In the mornings I can hardly move them. If I grip for a while I get my fingers lo...
Emily-12319 days ago
Just been told I need a mouth ulcer biopsy? I’m absolutely petrified as I’m terrified of things near my mouth (I’m 16) what dis it consist o...
Eye Floaters - Worry?
NerdyChristina22 days ago
I’ve had uveitis a few times now, without any permanent damage as far as I know. (The last round I never had a follow up for due to other sy...
9 Replies1 Like
Stm25224 days ago
Has anyone experienced this? Any tips or pointers? It's pretty terrible and I am struggling to get it under control. They feel it's obviousl...
Bechets and nuva ring
JayBlue25 days ago
Anyone have experience with bechets and using the nuva ring?
Dinkyjojo7a month ago
Hi I was just wondering if anyone receives the enhanced mobility on the pip scheme ? X
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