Posts - Behçet's UK | HealthUnlocked

Behçet's UK

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Behcet's and Sweet's syndrome

Hi, I don't have Behcet's, but run the online patient group, Sweet's Syndrome UK. Sweet's syndrome (acute febrile neutrophilic dermatosis) is a rare...

Hi, I don't have Behcet's, but run the online patient group, Sweet's Syndrome UK...

Shell567

•2 days ago

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Genital sore confusion

I'm currently under diagnosis for bechets. I have been good in keeping a symptoms diary ... in a nutshell I experience: IBD Alopecia aereta Mouth ulcers...

I'm currently under diagnosis for bechets. I have been good in keeping a sympto...

Fedupfemale87

•4 days ago

3 Replies

Genital sores

I'm at a loss with how to ease the pain. I feel so down they are ruining my life. They come out of nowhere too. The only thing j did differently was gi horse...

I'm at a loss with how to ease the pain. I feel so down they are ruining my life...

Fedupfemale87

•4 days ago

10 Replies

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overwhelmed and exhausted

I don’t really know the reason to this post but I needed to post somewhere. I feel like I’m losing the plot, my memory is so bad and I’m so exhausted I’m only...

I don’t really know the reason to this post but I needed to post somewhere. I f...

Welsh92

•9 days ago

6 Replies

Has anybody got Holmes Adie (Tonic pupils) in both eyes?

When I first got eyeinflammations 25 years ago, I ended up with a blocked tear ducts, no feeling on the outside of my eyeballs and two dilated pupils that...

When I first got eyeinflammations 25 years ago, I ended up with a blocked tear d...

HoundLover64

•17 days ago

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Neurological issues?

Hi. Does anyone with Behcets have subconjunctival hemorrhages, heart palpitations and internal tremors? I was referred to a rheumatologist for PsA, but he...

Hi. Does anyone with Behcets have subconjunctival hemorrhages, heart palpitation...

lil-blu

•19 days ago

10 Replies

Natural ways to support Bechets symptoms?

I wondered if anyone had found any natural methods that supported Bechets and reduced flares? I am trying to see if there is anything else I can do to help my...

I wondered if anyone had found any natural methods that supported Bechets and re...

Rainbow-cloud

•24 days ago

6 Replies

Centre of Excellence

Hello, We have a referral letter for my husband’s Bechets and I was wondering if any of the three were better to go to? We can travel to any of them. Just...

Hello, We have a referral letter for my husband’s Bechets and I was wondering i...

Rainbow-cloud

•24 days ago

1 Reply

My first post

I was recently at an appointment at Moorfields in London for inflammation in my eye that has not got better or gone away since October of last year; I also...

I was recently at an appointment at Moorfields in London for inflammation in my ...

Lifesadance

•28 days ago

3 Replies

Dmards Advice

Hi everyone I hope that you are all as well as you can be. Currently I am despairing so hope that you can give me some advice and / or guidance please. After...

Hi everyone I hope that you are all as well as you can be. Currently I am despa...

CecilyParsley

•2 months ago

13 Replies

Help please! I need to be on a complete lactose free diet to manage Colchicine side effects (based in UK, England)

Hi Everyone, I'm on colchicine for my Behcet's (along with mycophenolate +/- prednisolone). Rheumatology clinic had recently recommended increasing the dose,...

Hi Everyone, I'm on colchicine for my Behcet's (along with mycophenolate +/- pre...

CuteCats

•2 months ago

5 Replies

Adalimumab for Behcets

Hi all,I went to my Liverpool CoE appointment yesterday and they are starting me Adalimumab. Just waiting for it to be delivered, then I can get started on it....

Hi all,I went to my Liverpool CoE appointment yesterday and they are starting me...

TigerLily42

•2 months ago

9 Replies

Behçet hastalığı

The symptoms of Behçet's disease were aphthous ulcers in the mouth, ulcers in the genital area, mostly lower extremity erythema nodosum lesions, and acneiform...

The symptoms of Behçet's disease were aphthous ulcers in the mouth, ulcers in th...

Sunset

•3 months ago

5 Replies

Sudden Vomiting

Hi, I have recently stared vomiting violently everything I take my medication. I have been on the same meds (prediselone, azathioprine, coltrocine,...

Hi, I have recently stared vomiting violently everything I take my medication. ...

Robbojenney

•3 months ago

7 Replies

Emergency admission total shambles.

Hello. Since I last posted its now been confirmed macular degeneration has started the right eye has a lot of scar tissue, also CNS involvement Been put on...

Hello. Since I last posted its now been confirmed macular degeneration has star...

Oathy

•3 months ago

4 Replies

Joint symptoms

Hi All, I have a question about joint involvement. I have recently switched medications from Azathioprine to Mycophenolate Mofetil, which I take along side...

Hi All, I have a question about joint involvement. I have recently switched med...

CuteCats

•3 months ago

8 Replies

Behcet's Symptoms after Covid-19

Hi All, I've had a few Covid-19 infections, and subsequently have long covid/post covid syndrome. And it's made it quite difficult for me to decipher what...

Hi All, I've had a few Covid-19 infections, and subsequently have long covid/pos...

CuteCats

•3 months ago

2 Replies

Are you a young person with Behçet’s? Your help is needed! Register by 23 February 2025

We would like children and young people with Behçet’s to join us at a face-to-face workshop to create resources to share with other children, young people and...

We would like children and young people with Behçet’s to join us at a face-to-fa...

UKADMIN

Partner•3 months ago

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joint Pain

Hi, I have just received an almost certain diagnosis from a dermatologist whilst I wait for my referral to London for my diagnosis. I suffer with joint pain...

Hi, I have just received an almost certain diagnosis from a dermatologist whilst...

Ambsholb

•3 months ago

8 Replies

new nearly-diagnosis UK

hi all, I’ve just recently been tentatively diagnosed by my GP, after (at least) 3 years of health issues, exhaustion and those ulcers (so so horrid). I am...

hi all, I’ve just recently been tentatively diagnosed by my GP, after (at least)...

Poetryqueen

•4 months ago

8 Replies

Neuro Bechets

Evening everyone,I'm interested to hear from anyone who has been diagnosed with neuro bechets. How it was diagnosed and what symptoms you had/have? My son who...

Evening everyone,I'm interested to hear from anyone who has been diagnosed with ...

Alfaroo

•4 months ago

18 Replies

Vaccines

Iv e said I’m not having any more vaccines whenever I had a covid vaccine or booster I have had severe flare ups body just seemed to go into overdrive ulcers...

Iv e said I’m not having any more vaccines whenever I had a covid vaccine or boo...

Paellasangria

•4 months ago

4 Replies

Diet Advice?

Dear all,I'm happy to have found this support page for Behcet. I'm female, 39 years from Germany, suffering from ulcers since 2019, right now on an episode...

Dear all,I'm happy to have found this support page for Behcet. I'm female, 39 ye...

Essentials

•4 months ago

7 Replies

blood tests

I usually bruise and come out In positive pathergy after blood tests. But today this one hurt a lot! And it looks like blood pooled under the skin, it’s quite...

I usually bruise and come out In positive pathergy after blood tests. But today ...

Welsh92

•4 months ago

2 Replies

Why do I have tender areas in abdomen and thigh?

I am a Behcet's on Azothioprine 50 mg twice a day, Cochicine 0.5 mg twice a day and taking Medrol 2mg/4 mg per day, since one year.Earlier I used to have...

I am a Behcet's on Azothioprine 50 mg twice a day, Cochicine 0.5 mg twice a day ...

BoonG

•5 months ago

2 Replies

Behcet's USA

My doctor has me on Colchicine and Otezla. My symptoms have eased, but I still get the ulcers. I just assume the medicine is helping somewhat. When I got my...

My doctor has me on Colchicine and Otezla. My symptoms have eased, but I still g...

SushiGal333

•5 months ago

4 Replies

Behçet's UK 2024 Conference & AGM: Catch-up and watch again

The 2024 conference took place on Saturday 19 October 2024 and was a hybrid event – those who wished to attend in person could do so at the Holiday Inn...

The 2024 conference took place on Saturday 19 October 2024 and was a hybrid even...

UKADMIN

Partner•5 months ago

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cerebral atherosclerosis

Hello everyone, I am wondering if you have something to discuss about cerebral atherosclerosis and Behcet’s. Thank you very much!

Hello everyone, I am wondering if you have something to discuss about cerebral ...

Kalu_kalu

•5 months ago

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DSA (Disabled Student Allowance) for Behçet?

Hi everyone, I was wondering if anyone ever got DSA because of Behçet and how did that help? Also how hard was to get it? Wanting to do a MFA in movement...

Hi everyone, I was wondering if anyone ever got DSA because of Behçet and how ...

Calo

•5 months ago

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Mycophenolate and what to expect

I’ve just been put on Mycophenolate 500mg once daily - increasing to 1000mg twice a day over a 4 week period. Bloods booked for every two weeks for the next 6...

I’ve just been put on Mycophenolate 500mg once daily - increasing to 1000mg twi...

Welsh92

•5 months ago

7 Replies

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Posts - Behçet's UK | HealthUnlocked

Behçet's UK

Behcet's and Sweet's syndrome

Genital sore confusion

Genital sores

overwhelmed and exhausted

Has anybody got Holmes Adie (Tonic pupils) in both eyes?

Neurological issues?

Natural ways to support Bechets symptoms?

Centre of Excellence

My first post

Dmards Advice

Help please! I need to be on a complete lactose free diet to manage Colchicine side effects (based in UK, England)

Adalimumab for Behcets

Behçet hastalığı

Sudden Vomiting

Emergency admission total shambles.

Joint symptoms

Behcet's Symptoms after Covid-19

Are you a young person with Behçet’s? Your help is needed! Register by 23 February 2025

joint Pain

new nearly-diagnosis UK

Neuro Bechets

Vaccines

Diet Advice?

blood tests

Why do I have tender areas in abdomen and thigh?

Behcet's USA

Behçet's UK 2024 Conference & AGM: Catch-up and watch again

cerebral atherosclerosis

DSA (Disabled Student Allowance) for Behçet?

Mycophenolate and what to expect

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