Guna100317 hours ago
My nails are turning green from my cuticles and sides of the fingers. Only 2 nails are green one on each hand both ring fingers. It's a pea ...
1 Reply1 Like
MariaDBiddulpha day ago
Hi all Just need some advice. So I was told to keep away from chickenpox and shingles as it can be quite serious for people who has behçet's...
Misty-cat2 days ago
I have recently been diagnosed with Behcet's. I have had RA since I was 18, with many other symptoms which could never be comple...
Could this be Behcet's`?
lifewave2 days ago
I am really very confused if I have Behcet's or not. Around 2 years ago I started getting very painful, recurrent mouth ulcer...
MariaDBiddulph2 days ago
Hi all, does anyone suffer from nose bleeds? My daughter has them all the time. At least 3-4 times a week. Really bad ones.
Hello I'm new
VickiOliver5 days ago
Hi all I'm Vicki
I attended the clinic in London for the first time last month and was diagnosed with Behcet's disease and joint hyper-mobili...
4 Replies1 Like
OpsDave7012 days ago
Has anyone tried hyperbaric chamber treatments for Behçet’s? Does insurance cover it? I have a friend with severe Rheumatoid Arthritis who...
MariaDBiddulph17 days ago
Hi all, hope you'reall as well as can be. My daughter is being investigated for a inflammatory disease for the past 5 years now. I have just...
Westmeister18 days ago
I’m in the UK .. I have BD and it’s been suggested I have a flu jab - I’m on methotrexate, blood thinners, blood pressure, predniso...
10 Replies2 Likes
Controlling genital ulcers once they start...
Bocksey18 days ago
Hi there. I have been free from genital ulcers for about one month but I can feel a couple of bumps there today so here we go again... 😢 Is...
sneakyblonde18 days ago
I want to thank all of you that have liked my posts.
So many of you are following me. I hope I can continue to provide good ans...
Be the first to reply2 Likes
Anyone get Eyelid sores?
sadfgdagsadfsdfasdf20 days ago
Last two flare up I got sores on my eyelids (no uveitis or eye problems). Red lesions, puffed slightly, itchy, annoying feeling. After about...
6 Replies1 Like
Rare disease survey launched by Eurordis
UKADMIN20 days ago
Ahead of Rare Disease Day, Eurordis have recently launched a new Rare Barometer Voices short survey (available in 23 languages) on the 2018 ...
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Does anyone have lip lesions/ulcers?
oiseau22221 days ago
I definitely have systemic vasculitis, although my rheumatologists debate each other about whether it is BD, because I've never been biopsie...
MariaDBiddulph24 days ago
Hi all, just a quick question, I have just been put on azathioprine but I was told not to start it till my TMPT was back withing normal rang...
7 Replies1 Like
Request For Coping Strategies
UKToronto24 days ago
You all seem so far away. I live in Canada and finding a local support group/community has proven to be difficult.
I have been ...
Recently been diagnosed with behçet's
MariaDBiddulph25 days ago
Hi everyone, I just wanted to say it's been a long journey to finnaly get diagnosed, as I'm sure many of you guys have too. Just wanted to s...
Be the first to reply3 Likes
pete1125 days ago
Hi everyone I hope all is well as can be. I have this horrible very sore eye ulcer which is a pain when I blink or even open my eye.
Who inspires you? Nominate a rare disease star!
UKADMINa month ago
Nominations for the EURORDIS Black Pearl Awards
2018 are officially open!
Nominate the individ...
Bone marrow transplant for Behcet's
julietooa month ago
I'd have to be much further along than I am to consider this, but this is amazing: "Complete resolution... complete remission."
Northern Ireland Behcet's Group meeting dates
Next meeting dates for the group in Northern Ireland are as follows:
11am 11th November 2017
11am 10th February 2018
Everyone welcome to join t...
Omega 3 oils having good results !
lizcooka month ago
Hi there , My son has Behcets and was prescribed colchicine . He was diagnosed finally about 14 months ago at age 25 having had symptoms all...
11 Replies6 Likes
possible Behcet's Disease?
sarahgrace28a month ago
As my title might entail, I haven't been officially diagnosed with behcet's syndrome. I came here for some serious advice, because peo...
sineadxa month ago
I was officially diagnosed with Behcets just over a month ago after 4 years of various problems. I'm currently on a 5 week course of...
Rare Revolution Magazine article on Behcet's!
Have a look at page 38 here: edition.pagesuite-professio...
1 Reply2 Likes
Other Options When Usual Options Fail?
NerdyChristinaa month ago
So I’ve likely had GI issues and some neurological issues going back to childhood, but I was an anxious clumsy child, and they seemed to imp...
No diagnosis - possible Behcets?
Leeds229a month ago
My symptoms starting developing around this time last year. In February I had a lymph node removed which was confirmed for "Castleman...
bobthomas1962a month ago
I was invited to part in a clinical trial I had my first infusion 2 weeks ago next one tomorrow early signs look promising my ulcers have be...
REPORT ON FIRST INFUSION OF REMICADE (100mg INFUSION). HERE IS WHAT IT WAS LIKE.
sneakyblondea month ago
WOW! I HAVE A LOT OF PEOPLE THAT LIKED MY POST AND ARE NOW FOLLOWING ME! I GUESS YOU ALL WANT TO KNOW WHAT TO EXPECT IF YOU GET REMICADE OR...
7 Replies2 Likes
Neuro - Behcet's Basilar Artery blockage?
ambersorganicsa month ago
I have some severe CNS and NB symptoms, I also have had a stroke and several partial strokes over the years. I had a brain scan that found a...
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