Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,430 members•4,405 posts

Sort posts by:

Help please! I need to be on a complete lactose free diet to manage Colchicine side effects (based in UK, England)

Hi Everyone, I'm on colchicine for my Behcet's (along with mycophenolate +/- prednisolone). Rheumatology clinic had recently recommended increasing the dose,...

Hi Everyone, I'm on colchicine for my Behcet's (along with mycophenolate +/- pre...

CuteCats

•9 hours ago

1 Reply

Adalimumab for Behcets

Hi all,I went to my Liverpool CoE appointment yesterday and they are starting me Adalimumab. Just waiting for it to be delivered, then I can get started on it....

Hi all,I went to my Liverpool CoE appointment yesterday and they are starting me...

TigerLily42

•2 days ago

1 Reply

Behçet hastalığı

The symptoms of Behçet's disease were aphthous ulcers in the mouth, ulcers in the genital area, mostly lower extremity erythema nodosum lesions, and acneiform...

The symptoms of Behçet's disease were aphthous ulcers in the mouth, ulcers in th...

Sunset

•25 days ago

5 Replies

Want to take advantage of all our features? Just log in!

Sudden Vomiting

Hi, I have recently stared vomiting violently everything I take my medication. I have been on the same meds (prediselone, azathioprine, coltrocine,...

Hi, I have recently stared vomiting violently everything I take my medication. ...

Robbojenney

•27 days ago

5 Replies

Emergency admission total shambles.

Hello. Since I last posted its now been confirmed macular degeneration has started the right eye has a lot of scar tissue, also CNS involvement Been put on...

Hello. Since I last posted its now been confirmed macular degeneration has star...

Oathy

•27 days ago

Be the first to reply

Joint symptoms

Hi All, I have a question about joint involvement. I have recently switched medications from Azathioprine to Mycophenolate Mofetil, which I take along side...

Hi All, I have a question about joint involvement. I have recently switched med...

CuteCats

•29 days ago

8 Replies

Behcet's Symptoms after Covid-19

Hi All, I've had a few Covid-19 infections, and subsequently have long covid/post covid syndrome. And it's made it quite difficult for me to decipher what...

Hi All, I've had a few Covid-19 infections, and subsequently have long covid/pos...

CuteCats

•29 days ago

2 Replies

Are you a young person with Behçet’s? Your help is needed! Register by 16 January 2025

We would like children and young people with Behçet’s to join us at two workshops to create resources to share with other children, young people and their...

We would like children and young people with Behçet’s to join us at two workshop...

UKADMIN

Partner•29 days ago

Be the first to reply

joint Pain

Hi, I have just received an almost certain diagnosis from a dermatologist whilst I wait for my referral to London for my diagnosis. I suffer with joint pain...

Hi, I have just received an almost certain diagnosis from a dermatologist whilst...

Ambsholb

•1 month ago

8 Replies

new nearly-diagnosis UK

hi all, I’ve just recently been tentatively diagnosed by my GP, after (at least) 3 years of health issues, exhaustion and those ulcers (so so horrid). I am...

hi all, I’ve just recently been tentatively diagnosed by my GP, after (at least)...

Poetryqueen

•1 month ago

7 Replies

Neuro Bechets

Evening everyone,I'm interested to hear from anyone who has been diagnosed with neuro bechets. How it was diagnosed and what symptoms you had/have? My son who...

Evening everyone,I'm interested to hear from anyone who has been diagnosed with ...

Alfaroo

•2 months ago

18 Replies

Vaccines

Iv e said I’m not having any more vaccines whenever I had a covid vaccine or booster I have had severe flare ups body just seemed to go into overdrive ulcers...

Iv e said I’m not having any more vaccines whenever I had a covid vaccine or boo...

Paellasangria

•2 months ago

4 Replies

Diet Advice?

Dear all,I'm happy to have found this support page for Behcet. I'm female, 39 years from Germany, suffering from ulcers since 2019, right now on an episode...

Dear all,I'm happy to have found this support page for Behcet. I'm female, 39 ye...

Essentials

•2 months ago

7 Replies

blood tests

I usually bruise and come out In positive pathergy after blood tests. But today this one hurt a lot! And it looks like blood pooled under the skin, it’s quite...

I usually bruise and come out In positive pathergy after blood tests. But today ...

Welsh92

•2 months ago

2 Replies

Why do I have tender areas in abdomen and thigh?

I am a Behcet's on Azothioprine 50 mg twice a day, Cochicine 0.5 mg twice a day and taking Medrol 2mg/4 mg per day, since one year.Earlier I used to have...

I am a Behcet's on Azothioprine 50 mg twice a day, Cochicine 0.5 mg twice a day ...

BoonG

•2 months ago

2 Replies

Behcet's USA

My doctor has me on Colchicine and Otezla. My symptoms have eased, but I still get the ulcers. I just assume the medicine is helping somewhat. When I got my...

My doctor has me on Colchicine and Otezla. My symptoms have eased, but I still g...

SushiGal333

•2 months ago

4 Replies

Behçet's UK 2024 Conference & AGM: Catch-up and watch again

The 2024 conference took place on Saturday 19 October 2024 and was a hybrid event – those who wished to attend in person could do so at the Holiday Inn...

The 2024 conference took place on Saturday 19 October 2024 and was a hybrid even...

UKADMIN

Partner•3 months ago

Be the first to reply

cerebral atherosclerosis

Hello everyone, I am wondering if you have something to discuss about cerebral atherosclerosis and Behcet’s. Thank you very much!

Hello everyone, I am wondering if you have something to discuss about cerebral ...

Kalu_kalu

•3 months ago

Be the first to reply

DSA (Disabled Student Allowance) for Behçet?

Hi everyone, I was wondering if anyone ever got DSA because of Behçet and how did that help? Also how hard was to get it? Wanting to do a MFA in movement...

Hi everyone, I was wondering if anyone ever got DSA because of Behçet and how ...

Calo

•3 months ago

Be the first to reply

Mycophenolate and what to expect

I’ve just been put on Mycophenolate 500mg once daily - increasing to 1000mg twice a day over a 4 week period. Bloods booked for every two weeks for the next 6...

I’ve just been put on Mycophenolate 500mg once daily - increasing to 1000mg twi...

Welsh92

•3 months ago

7 Replies

Request for Volunteers for Behçet’s Dissertation Research

Lucinda Elliott, a Masters student at the University of Wolverhampton, is conducting research into online support groups and how they impact those with...

Lucinda Elliott, a Masters student at the University of Wolverhampton, is conduc...

UKADMIN

Partner•3 months ago

Be the first to reply

Azathioprine and Behcets

Hi all. I went to my Liverpool appointment last week and they have now officially diagnosed with Behcets (it was incomplete/likely Behcets last time I went)...

Hi all. I went to my Liverpool appointment last week and they have now officiall...

TigerLily42

•3 months ago

14 Replies

help!! Acute Urticaria related to Behçet?

Hi everyone! I’ve been diagnosed with Behçet in 2020. From that point on it’s been a rollercoaster of doubts and misunderstandings between doctors and I can’t...

Hi everyone! I’ve been diagnosed with Behçet in 2020. From that point on it’s b...

Calo

•3 months ago

8 Replies

DMARDs

I’ve been suffering so badly, recent visit to the GP and they wrote to my team. My nurse rang and my appointment has been expedited to the end of October and I...

I’ve been suffering so badly, recent visit to the GP and they wrote to my team. ...

Welsh92

•3 months ago

4 Replies

back pain - steroid injection

I’ve always suffered with joint pain and back pain. I had a steroid injection on 16th September and over the weekend my lower back pain has come back with...

I’ve always suffered with joint pain and back pain. I had a steroid injection on...

Welsh92

•3 months ago

9 Replies

colchicine hair loss

I've just taken my first tablet of colchicine after being diagnosed on Monday. Obviously I took to Google to find out other side effects, hair loss has been...

I've just taken my first tablet of colchicine after being diagnosed on Monday. O...

Charlieblue13

•4 months ago

6 Replies

Supplements

I'm currently on loads of different supplements to try and help boost my immune system, reduce inflammation and for joint health. Recently when I'm having a...

I'm currently on loads of different supplements to try and help boost my immune ...

Charlieblue13

•4 months ago

3 Replies

I'm scared.

I was diagnosed yesterday finally after 5 years of suffering. I've had genital ulcers for the past 9 weeks, the worst it's ever been, they start to heal, then...

I was diagnosed yesterday finally after 5 years of suffering. I've had genital u...

Charlieblue13

•4 months ago

12 Replies

Behcet’s and chemo

Hello, Has anyone here with Behcet’s also been diagnosed with cancer? Unfortunately I am in this situation. My Behcet’s was in remission before the cancer...

Hello, Has anyone here with Behcet’s also been diagnosed with cancer? Unfortun...

Lara1

•4 months ago

2 Replies

Recurrent scalp lesion and maybe heart problem

Hi. I'm still not diagnosed but one specialist think i may have vasculitis. I check and behcet fit all my symptom except i don't have genital ulcer. I have a...

Hi. I'm still not diagnosed but one specialist think i may have vasculitis. I c...

Shadow35

•4 months ago

3 Replies

Write a post or ask a question

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

Help please! I need to be on a complete lactose free diet to manage Colchicine side effects (based in UK, England)

Adalimumab for Behcets

Behçet hastalığı

Sudden Vomiting

Emergency admission total shambles.

Joint symptoms

Behcet's Symptoms after Covid-19

Are you a young person with Behçet’s? Your help is needed! Register by 16 January 2025

joint Pain

new nearly-diagnosis UK

Neuro Bechets

Vaccines

Diet Advice?

blood tests

Why do I have tender areas in abdomen and thigh?

Behcet's USA

Behçet's UK 2024 Conference & AGM: Catch-up and watch again

cerebral atherosclerosis

DSA (Disabled Student Allowance) for Behçet?

Mycophenolate and what to expect

Request for Volunteers for Behçet’s Dissertation Research

Azathioprine and Behcets

help!! Acute Urticaria related to Behçet?

DMARDs

back pain - steroid injection

colchicine hair loss

Supplements

I'm scared.

Behcet’s and chemo

Recurrent scalp lesion and maybe heart problem

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive