Humera/Cosentyx = infections
candykane5 days ago
Looking for individuals who take Humera or Cosentyx and have had a hard time fighting off infections. Started of as a sinus infection and ha...
1 Reply1 Like
Video guide to the Behçet’s Centre of Excellence
Legomum7 days ago
We made this video to help children and their families attending the Behçet’s Centre of Excellence in London. Professor Fortune and her team...
3 Replies4 Likes
Benne097 days ago
Hi all, just a quick question does anyone receive benefits (ESA , PIP) and if so which ones? I am so live with my partner so just wondering....
Papapickle8 days ago
Does anyone else suffer this?
It’s incredibly painful. Consultant believes it’s a cross over of symptoms- is that true/possible?
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Ciannajustine10 days ago
Hi Okay, my names Cianna I currently started developing ulcers about a couple days ago i went to the doctors and they told me i have a UTI a...
Is chest pain related to Bechets?
MamaMouse11 days ago
My teenage daughter was recently diagnosed with Bechets and is now complaining of mid- chest pain. We have appointment with rheumatologist ...
Behcet's and Parathyroid?
UKADMIN12 days ago
We’re posting on behalf of a member who wanted to know if anyone has ever had parathyroid problems with their Behçet's?
This member has been...
Cryoglobulinemia- Has anybody been tested for this as part of their Behcets diagnosis or as an alternative diagnosis for your symptoms?
Blearyeyed13 days ago
I had my second appointment at the Behcets clinic on Tuesday.
There were bits of good news ( ulcers right sort, ulcers scars in certain place...
13 Replies1 Like
Lost my mojo
juliebover14 days ago
How can I get my mojo back? I'm in pain everyday and feel so tired I just want to sleep. I want to be able to enjoy life again.
Embarrassing doesn’t describe it
Papapickle15 days ago
Just wondered if anyone else has suffered or is suffering from bowel incontinence?
5 Replies1 Like
PIP SURVEILLANCE DONE
Ann1-7415 days ago
Hi, I was in receipt of DLA/PIP for numerous years for Behcets, Fibromyalgia, Bursitis in both hips, Tremors, Arthritis etc. I was put under...
Benne0916 days ago
Hello beautiful bechets friends 🙂 I received a definite diagnosis last Wednesday of behcets. It is bittersweet tbh, have been wanting to kn...
18 Replies2 Likes
Advice on the coil (IUD)
VickiOliver16 days ago
I was wondering if anyone had any experience with the coil and Behcets? Is there anything to look out for or is it straight forward?
Appointment with the Centre of Excellence in London
Lara116 days ago
Hello to All,
For about 4 months I've trying to get an appointment with the COE in London. I live on the continent so I had to get my file tr...
2 headache free days
Bachetsrabbithole21 days ago
2 headache free days! still awake at 8pm this has been great! Not going to push it to much further but when it’s good it’s hard not to. Hope...
swanseakev21 days agoPOPULAR
Been to see Gastro specialist today and they're going to start me on Infliximab infusions
Was just wondering if anyone is also on ...
Papapickle22 days ago
Quick one here.
I look 9 months pregnant which as a guy isn’t great - does anyone else get bloating? If so how do you deal with it?
7 Replies1 Like
Constant lower gut pain.
Brichel22 days ago
I ignored the pain for over a month but can't any longer. My lower gut is hurting. I had a flare of mouth ulcers and around the same time ...
Ulcers ulcers ulcers
Papapickle23 days ago
Bloody ulcers. Back of my nose, back of my mouth and in my throat.
So sore, so painful.
Tried difflam already and now some throat lozenges.
SI Joint Pain/Buttocks Pain
Stm25224 days ago
Hi all. I had an SI steroid injection about 2.5 months ago and it helped a GREAT deal. It's already worn off though!!! Does anyone else expe...
Vaginal and rectal issues?
Hope everyone understands and appreciates that I am not trying to be too graphic or crude but have nowhere else to turn. I have a history of...
Bachetsrabbitholea month ago
Headaches coming up strong every few days!!! Nothing is bringing them down to a manageable pain level. Not wanting to go in to the MD for th...
SSDI hearing coming up. Really scared
RayRay121a month ago
After two years of waiting my hearing is coming up. I am really scared im gonna get denied even though everyone including my lawyer says I ...
15 Replies1 Like
Papapicklea month ago
Have had a really good run this last couple of weeks feeling stronger and becoming more resilient.
TN appears under control, my...
Camp1997a month ago
I’m 21, and exhausted I work 8 hour days (somehow) and even while doing tasks I find I close my eyes for too long sometimes..... when I get ...
azhdahaka month ago
Curious to learn about some positive stories of long periods of remission, disease being under control and allowing productive lives.
6 Replies4 Likes
Benne09a month agoPOPULAR
Anyone else up at night with joint pain?? Soooo fed up with being in pain and keeping me up at night😡. My knees, elbows, shoulder, toes and...
28 Replies2 Likes
Anyone tried baking soda mouth rinse to relieve pain from BD mouth ulcer flares?
Dub123a month ago
I've heard of rinsing with baking soda before but never used it. I get particularly sore ulcers on the very tip of the tongue, which impacts...
I click - literally
Woken up this morning with swollen joints and clicking whenever I move.
Has anyone else had this? My joint sometimes swell but I...
So we all live a cheeky Nando’s right??
Went last night with Mrs papa pickle and had a great time before watching bohemian rhapsody.
1 Reply4 Likes
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