Posts - Behçet's UK | HealthUnlocked

Behçet's UK

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Diet Advice?

Dear all,I'm happy to have found this support page for Behcet. I'm female, 39 years from Germany, suffering from ulcers since 2019, right now on an episode...

Dear all,I'm happy to have found this support page for Behcet. I'm female, 39 ye...

Essentials

•2 days ago

3 Replies

blood tests

I usually bruise and come out In positive pathergy after blood tests. But today this one hurt a lot! And it looks like blood pooled under the skin, it’s quite...

I usually bruise and come out In positive pathergy after blood tests. But today ...

Welsh92

•7 days ago

1 Reply

Why do I have tender areas in abdomen and thigh?

I am a Behcet's on Azothioprine 50 mg twice a day, Cochicine 0.5 mg twice a day and taking Medrol 2mg/4 mg per day, since one year.Earlier I used to have...

I am a Behcet's on Azothioprine 50 mg twice a day, Cochicine 0.5 mg twice a day ...

BoonG

•12 days ago

2 Replies

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Behcet's USA

My doctor has me on Colchicine and Otezla. My symptoms have eased, but I still get the ulcers. I just assume the medicine is helping somewhat. When I got my...

My doctor has me on Colchicine and Otezla. My symptoms have eased, but I still g...

SushiGal333

•14 days ago

3 Replies

Behçet's UK 2024 Conference & AGM: Catch-up and watch again

The 2024 conference took place on Saturday 19 October 2024 and was a hybrid event – those who wished to attend in person could do so at the Holiday Inn...

The 2024 conference took place on Saturday 19 October 2024 and was a hybrid even...

UKADMIN

Partner•20 days ago

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cerebral atherosclerosis

Hello everyone, I am wondering if you have something to discuss about cerebral atherosclerosis and Behcet’s. Thank you very much!

Hello everyone, I am wondering if you have something to discuss about cerebral ...

Kalu_kalu

•21 days ago

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DSA (Disabled Student Allowance) for Behçet?

Hi everyone, I was wondering if anyone ever got DSA because of Behçet and how did that help? Also how hard was to get it? Wanting to do a MFA in movement...

Hi everyone, I was wondering if anyone ever got DSA because of Behçet and how ...

Calo

•21 days ago

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Mycophenolate and what to expect

I’ve just been put on Mycophenolate 500mg once daily - increasing to 1000mg twice a day over a 4 week period. Bloods booked for every two weeks for the next 6...

I’ve just been put on Mycophenolate 500mg once daily - increasing to 1000mg twi...

Welsh92

•27 days ago

7 Replies

Request for Volunteers for Behçet’s Dissertation Research

Lucinda Elliott, a Masters student at the University of Wolverhampton, is conducting research into online support groups and how they impact those with...

Lucinda Elliott, a Masters student at the University of Wolverhampton, is conduc...

UKADMIN

Partner•28 days ago

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Azathioprine and Behcets

Hi all. I went to my Liverpool appointment last week and they have now officially diagnosed with Behcets (it was incomplete/likely Behcets last time I went)...

Hi all. I went to my Liverpool appointment last week and they have now officiall...

TigerLily42

•28 days ago

10 Replies

help!! Acute Urticaria related to Behçet?

Hi everyone! I’ve been diagnosed with Behçet in 2020. From that point on it’s been a rollercoaster of doubts and misunderstandings between doctors and I can’t...

Hi everyone! I’ve been diagnosed with Behçet in 2020. From that point on it’s b...

Calo

•1 month ago

8 Replies

DMARDs

I’ve been suffering so badly, recent visit to the GP and they wrote to my team. My nurse rang and my appointment has been expedited to the end of October and I...

I’ve been suffering so badly, recent visit to the GP and they wrote to my team. ...

Welsh92

•1 month ago

4 Replies

back pain - steroid injection

I’ve always suffered with joint pain and back pain. I had a steroid injection on 16th September and over the weekend my lower back pain has come back with...

I’ve always suffered with joint pain and back pain. I had a steroid injection on...

Welsh92

•1 month ago

8 Replies

colchicine hair loss

I've just taken my first tablet of colchicine after being diagnosed on Monday. Obviously I took to Google to find out other side effects, hair loss has been...

I've just taken my first tablet of colchicine after being diagnosed on Monday. O...

Charlieblue13

•2 months ago

6 Replies

Supplements

I'm currently on loads of different supplements to try and help boost my immune system, reduce inflammation and for joint health. Recently when I'm having a...

I'm currently on loads of different supplements to try and help boost my immune ...

Charlieblue13

•2 months ago

3 Replies

I'm scared.

I was diagnosed yesterday finally after 5 years of suffering. I've had genital ulcers for the past 9 weeks, the worst it's ever been, they start to heal, then...

I was diagnosed yesterday finally after 5 years of suffering. I've had genital u...

Charlieblue13

•2 months ago

11 Replies

Behcet’s and chemo

Hello, Has anyone here with Behcet’s also been diagnosed with cancer? Unfortunately I am in this situation. My Behcet’s was in remission before the cancer...

Hello, Has anyone here with Behcet’s also been diagnosed with cancer? Unfortun...

Lara1

•2 months ago

2 Replies

Recurrent scalp lesion and maybe heart problem

Hi. I'm still not diagnosed but one specialist think i may have vasculitis. I check and behcet fit all my symptom except i don't have genital ulcer. I have a...

Hi. I'm still not diagnosed but one specialist think i may have vasculitis. I c...

Shadow35

•2 months ago

3 Replies

is this Classic

hi , new to the group . I’m yet to have a diagnosis. I’ve been experiencing flu like symptoms for months , headache , joint pain, sore throat and mouth ulcers...

hi , new to the group . I’m yet to have a diagnosis. I’ve been experiencing flu ...

Dollyandherb22

•2 months ago

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ENT problems

Sorry guys!! What ENT problems do you suffer with? - Hearing, ringing in ears, pulsating in ears, right side pain - inflammation Ears nose and throat -...

Sorry guys!! What ENT problems do you suffer with? - Hearing, ringing in ears,...

Welsh92

•2 months ago

5 Replies

centre of excellence

out of interest if I am referred to a centre of excellence what are people’s experiences within the 3 centres? As I believe I’d have to make a choice of which...

out of interest if I am referred to a centre of excellence what are people’s exp...

Welsh92

•2 months ago

3 Replies

frustrated

Update from my appointment; So my consultant says he may be being over cautious regarding a diagnosis and won’t diagnose me yet as he wants to wait for...

Update from my appointment; So my consultant says he may be being over cautiou...

Welsh92

•2 months ago

52 Replies

Fatigue

I have fatigue since I was diagnosed with Behcet's, now within the past months it has intensified, I can barely do simple household tasks or work with the...

I have fatigue since I was diagnosed with Behcet's, now within the past months i...

maratxel

•2 months ago

5 Replies

The BAD and BSR living guideline for managing people with Behçets

The British Association of Dermatologists and British Society for Rheumatology living guideline for managing people with Behçets 2024 has been co-published...

The British Association of Dermatologists and British Society for Rheumatology l...

UKADMIN

Partner•2 months ago

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Behçet's UK Conference & AGM - 19 Oct 24 - Liverpool & Online

Our 2024 Conference and AGM will again be hybrid, and will take place on Saturday 19 October 2024 at the Holiday Inn City Centre Liverpool and online....

Our 2024 Conference and AGM will again be hybrid, and will take place on Saturda...

UKADMIN

Partner•3 months ago

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Incomplete Behcets?!

So, my question is, has anyone on here been diagnosed with incomplete Behcets?! At my 2nd CoE appointment at Liverpool in July, I was! They are saying that as...

So, my question is, has anyone on here been diagnosed with incomplete Behcets?! ...

TigerLily42

•3 months ago

11 Replies

Why I am getting frequent bruises?

I am on Azothioprine 50mg BD, Methylpredinisolone cyrrently 2mg daily( ranging from 16-8-4-2 mg over time) and Cochicine .5mg BD and few supplements since one...

I am on Azothioprine 50mg BD, Methylpredinisolone cyrrently 2mg daily( ranging f...

BoonG

•3 months ago

2 Replies

colchicine with DMARDS?

Hi everyone, I have been sent a prescription by my Rheumatologist for six weeks Steroids and to start Azathioprine. I have no instructions just to get a set...

Hi everyone, I have been sent a prescription by my Rheumatologist for six weeks...

CecilyParsley

•3 months ago

6 Replies

help please

hi I have been diagnosed with Behçet’s disease which I had never heard of before. Waiting now to see a further consultant. Any help or advice on this would be...

hi I have been diagnosed with Behçet’s disease which I had never heard of before...

bubble1975

•3 months ago

4 Replies

how long is the first appointment

Hi, I am due to attend my first appointment in the London hospital in a few weeks, We will be getting the coach there and back but we were wondering how long...

Hi, I am due to attend my first appointment in the London hospital in a few we...

Romania2023

•3 months ago

2 Replies

Write a post or ask a question

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

Diet Advice?

blood tests

Why do I have tender areas in abdomen and thigh?

Behcet's USA

Behçet's UK 2024 Conference & AGM: Catch-up and watch again

cerebral atherosclerosis

DSA (Disabled Student Allowance) for Behçet?

Mycophenolate and what to expect

Request for Volunteers for Behçet’s Dissertation Research

Azathioprine and Behcets

help!! Acute Urticaria related to Behçet?

DMARDs

back pain - steroid injection

colchicine hair loss

Supplements

I'm scared.

Behcet’s and chemo

Recurrent scalp lesion and maybe heart problem

is this Classic

ENT problems

centre of excellence

frustrated

Fatigue

The BAD and BSR living guideline for managing people with Behçets

Behçet's UK Conference & AGM - 19 Oct 24 - Liverpool & Online

Incomplete Behcets?!

Why I am getting frequent bruises?

colchicine with DMARDS?

help please

how long is the first appointment

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