Neuro Behcet's Poetry
TNTim6 hours ago
All my joints are on fire, both my legs are numb Feet feel like the bones are crushed they are totally done I can't push up off ...
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Joint ultrasound with biopsy
Stm252a day ago
Anyone had experience with this? Thoughts welcome.
Could be Behcet's. What do you guys think?
Alexr4754 days ago
Hi, since the start of last year. It has been the worst of my life. At the start of January. I was 25. Did not smoke, drink or do drugs. I a...
USA Behcets Specialist?
ambersorganics4 days ago
Does any one know of the best place to attend in the USA for Behcets?
Any ideas to help please
bobthomas19625 days ago
Hi all haven't been on for a while I've just come off a clinical trial in conjunction with Liverpool betchet center at the Freeman hospital ...
digestive track symptoms
Lara111 days ago
Hi! Does anyone's BD attack their gallbladder and pancreas? If yes, how do you manage it (medication, diet)? Thanks!
bevie201015 days agoPOPULAR
Hi my son has had recurrent mouth ulcers over the past 2 years, he had tongue tie, which has now been operated on, so thought the ulcers cou...
29 Replies1 Like
Medication I have found successful
JulienF17 days agoPOPULAR
I am writing this post as I have finally found a combination of medications which has allowed me to control my BD with some r...
31 Replies5 Likes
pete1120 days ago
Hello everyone on here hope all is well. I just wanted to let you know how I'm doing. Well first off all I'm in a evil flare up joints hurt ...
6 Replies1 Like
MoniqueKahili24 days ago
I'm writing this post because for the past year and a half I've been experiencing some wicked skin ulcers. Interestingly, they ...
14 Replies2 Likes
BD vs. IBD
Mcgs25 days agoPOPULAR
I am still in the process of being diagnosed. My rheumatologist is struggling to come to a definitive diagnosis because he feels that becaus...
Are you, or do you have, a teen with Behcet's?
QCbda month ago
I'm a Canadian living in QC. Our soon to be 17 yr old was diagnosed last year, but only now seems to be realizing what that means. It...
3 Replies2 Likes
Looking for tools to help my teen cope
QCbda month agoPOPULAR
I'm new here. I'm looking for resources that could help my son cope with BD. He'll be 17 soon. He was diagnosed last year has been on & ...
26 Replies1 Like
Stress, stomach issues, brain fog
Roses-are-bluea month ago
Since I was a child, I have always been more sensitive than most people around my age when I face with stressful or difficult si...
16 Replies4 Likes
Behcet's resources for new members
jzeisa month ago
It looks like we've got a lot of new members since the last time I posted this list! Welcome to everybody, and I hope this list is helpful.
3 Replies6 Likes
Any tips for Uveitis with Behcet’s?
kingofthesalmona month ago
This is my first post here and I am wondering what one can do to reduce inflammation in the eye in general besides medicine. What ...
EULAR Releases Recommendations for Managing Behcet Syndrome
magiciana month ago
6 Replies6 Likes
Looking for Parents of Children with Childhood onset Bechets Disease
SarahRuthNMommya month ago
Hello everyone, I looking to find Parents of children with Bechets Disease, my beautiful daughter SarahRuth was diagnosed at 14 months old s...
2 Replies1 Like
What worked for me. Behcets syndrom
JulienFa month ago
Been meening to post for a while and finally getting around to it.
I have been suffering from Behcets since 2012. Took 2 years to truly diag...
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Is this Behcets, please help!
Blearyeyeda month agoPOPULAR
I am desperate for advice . I have been having a growing list of symptoms and illnesses over the last 11 years . I began with massive ho...
46 Replies4 Likes
Stm252a month ago
Has anyone out there tried Rayos? Wondering your experience with this extended release Prednisone. Thanks!
Did anyone get thrush prior to Behçet’s diagnosis?
Colleen6082a month ago
I’m in the Behçet’s pre official diagnosis stage and I had a stubborn case of thrush on my tongue for six months last year which also was ma...
Going on holiday
Anisa4645a month ago
Hi, I’m going away to Canada for a month, to surprise my sister for her 50th.
I was wondering which company people used for medical insuranc...
4 Replies1 Like
UKTorontoa month agoPOPULAR
This Canadian sends all of you wishes for mental and physical peace and good health, regardless of whether you are pre or post d...
51 Replies7 Likes
Anne_08a month ago
Me again. Blepharitis is a common symptom of Behcet? By the way, I don’t have sjogren.
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Early menopause related to Behçet’s?
Did anybody go into early menopause because of their Behçet’s? I’m waiting for my rheumatologist appointment to confirm my Behçet’s diagnos...
Behçet and positive ANA. Anyone?
Isn’t common, but some people have ANA positive. I would like to know who has and the standard. thanks
Please, help me. Is this an ulcer such as that of Behçet? I'm with this one and a few, the smaller ones are only red and deep. It can be? I’...
Suffering in silence
pinkunicornxa month agoPOPULAR
My name is Emily, I’m 19 years old and I’m from the UK. I have just signed up to health unlocked and joined this society. Long sto...
25 Replies1 Like
Bobbypink2 months ago
Hi I just lost me job. After 11 years on the council. On ground of capability. I going to appeal on the decision. This is second time I lost...
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