Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,235 members • 4,325 posts

All posts for April 2016

Finding the Answer to BEHCET's

I was finally diagnosed with Behcet's after doing my own research! Scared but determined, I began searching images of genital lesions on the Internet until I...

I was finally diagnosed with Behcet's after doing my own research! Scared but d...

•8 years ago

Still pushing for help!

He Everyone, I thank you all very much for your many messages of support (one million times more than I have received anywhere!) I really do appreciate it....

He Everyone, I thank you all very much for your many messages of support (one m...

•8 years ago

I dread summer

Do any of you with BD have an allergy to the sun ie photosensitivity .

Do any of you with BD have an allergy to the sun ie photosensitivity .

•8 years ago

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Feel totally let down, ignored, and left to suffer!

Hello everyone, I have just signed up today in the Behcet's Syndrome Society as I feel so scared and lost. Since 5th February 2016 I have constant non...

Hello everyone, I have just signed up today in the Behcet's Syndrome Society as...

•8 years ago

stomach problems with bechets

hello, does any one have stomach issues with bechets. ie nausea, vomitting and pain in the stomach region. thanks

hello, does any one have stomach issues with bechets. ie nausea, vomitting and...

•8 years ago

Daughter 12

At hospital at the minute they are starting her on cyclophosphamide on Monday. She will have this treatment for 3 months.

At hospital at the minute they are starting her on cyclophosphamide on Monday. S...

•8 years ago

Daughter 12

my daughter as behect's disease been diagnosed for 18 months been on different medication don't know what's next I feel confused and don't know how to help her...

my daughter as behect's disease been diagnosed for 18 months been on different m...

•8 years ago

Introduction

Hello everyone. I am new here, just joined today. I found it frustrating to have an illness that others just don't understand. So here i am trying to connect...

Hello everyone. I am new here, just joined today. I found it frustrating to have...

•8 years ago

Pain in my Spleen after eating?

Hey everyone, I'm back. I don't post here often, but when I did you were all very helpful and kind. It was a few years ago when I first learned of my Bechets...

Hey everyone, I'm back. I don't post here often, but when I did you were all ver...

•8 years ago

MMF

hello all, I'm just wondering if anyone has had to stop taking Mycophenolate Mofeil , due to blood tests results or anything else, and if so, how fast was the...

hello all, I'm just wondering if anyone has had to stop taking Mycophenolate Mof...

•8 years ago

Confused

I am sitting here reading posts and replies please can you help me. What is AS or CFS, TNF inhibitors and spondyloarthropthy? My youngest was diagnosed last...

I am sitting here reading posts and replies please can you help me. What is AS o...

•8 years ago

how do you help a family member with bechets

hello, my sister has nero bechets and is in a lot of pain. she is on her last day of pain meds till she sees the pain management clinic in a few weeks. ...

hello, my sister has nero bechets and is in a lot of pain. she is on her last...

•8 years ago

So sore

Do other ladies get tears down below I seem to constantly getting them.

Do other ladies get tears down below I seem to constantly getting them.

•8 years ago

Thanks

Just wanted to say thank you to the people who replied to my worries about my daughter, it really helps to know there is support available I do try to support...

Just wanted to say thank you to the people who replied to my worries about my da...

•8 years ago

Be the first to reply

Possible Bechets?

Hello everyone. I have just joined. I'm trying to get to the bottom of many symptoms. I've had shingle type symptoms with no rash. Firstly on face. Then on...

Hello everyone. I have just joined. I'm trying to get to the bottom of many symp...

•8 years ago

Worried

Hi all, my daughter has a diagnosis of behcets she will be 21 in May, she is coping really well up to now in her third year of uni, she now has costochondral...

Hi all, my daughter has a diagnosis of behcets she will be 21 in May, she is cop...

•8 years ago

Question for the ladies

Hi, I was just wondering if anyone's symptoms got a lot worse just before their period, I get so ill beforey period. Fevers, ache all over, nausea, Ulcers,...

Hi, I was just wondering if anyone's symptoms got a lot worse just before their ...

•8 years ago

Blood work

Has anyone noticed abnormal blood test results (high leukocytes, neutrophiles, lymphocytes count and ESR) ONLY when under steroid or immunosuppressive...

Has anyone noticed abnormal blood test results (high leukocytes, neutrophiles, l...

•8 years ago

Ulcers (downstairs)

Hi, I was just wondering what anyone experiences when they have an ulcer flare down stairs? How does it start? So you know it's coming does it have any warning...

Hi, I was just wondering what anyone experiences when they have an ulcer flare d...

•8 years ago

Connective tissue concern.

Hi I recently went to a physical therapist. I've always stayed away from chiro etc as since my twenties my back seizes up and I had limited range. When uveitis...

Hi I recently went to a physical therapist. I've always stayed away from chiro e...

•8 years ago

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