Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,234 members • 4,325 posts

All posts for November 2016

For those who have an interest - Vasculitis Patient Symposium - Keynote Speaker is Prof Robert Moot Centre of Excellence Liverpool

Patient Symposium Timetable 9.00am Registration opens 9.45 Welcome and Introductions - John Mills - Chairman of Vasculitis UK 10.00 Dr Peter Lanyon (British...

Patient Symposium Timetable 9.00am Registration opens 9.45 Welcome and Introdu...

•7 years ago

Behcet's Support and information UK and USA

Hi and thank you to everyone who posts and responds to posts on this group. There is no doubt that peer support and info is so very important - keep up the...

Hi and thank you to everyone who posts and responds to posts on this group. The...

Partner•7 years ago

New To Here

Hi I have recently been diagnosed with Behcets and was wondering if there are any groups that meet up once in a while in the West Sussex area ? or do we mainly...

Hi I have recently been diagnosed with Behcets and was wondering if there are an...

•7 years ago

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Possible Bechet's

Hi all my name is Zak I'm 32 years old and currently having a severe flare of pan uveitis which has practically not responded to treatment and bucket loads of...

Hi all my name is Zak I'm 32 years old and currently having a severe flare of pa...

•7 years ago

Remicade treatments for Behcets?

I was just recently diagnosed 4 months ago after a horrible attack put me in the hospital, since then I've been on prednisone and cholchicine which don't seem...

I was just recently diagnosed 4 months ago after a horrible attack put me in the...

•7 years ago

Sleep

Sleeping to much

Sleeping to much

•7 years ago

Best place to go for Bichet's

Good day and Happy Thanksgiving My name is Stuart Greenwald and I believe I probably have Bichet's syndrome Any suggestions of where to go Asheville NC has...

Good day and Happy Thanksgiving My name is Stuart Greenwald and I believe I pro...

•7 years ago

Frustrated

I was just diagnosed with Bechets in August...does this coincide with Hashimotos,Reynauds,Fibromyalgia,Rosacea,endometriosis,and neuropathy. Also does Agent...

I was just diagnosed with Bechets in August...does this coincide with Hashimotos...

•7 years ago

PCOS

Hi everyone just a bit worried and in need of advice. I had a gynocologyist appointment today regarding an on going pelvic pain from a suspected pelvic...

Hi everyone just a bit worried and in need of advice. I had a gynocologyist appo...

•7 years ago

I've been diagnosed with Bechets for 12 months.

Hi new to this, I'm fast approaching my one year anniversary of being diagnosed with BS. Ups and downs and you have to be patient! if anybody wants to ask...

Hi new to this, I'm fast approaching my one year anniversary of being diagnosed ...

mattrattenberry

•7 years ago

Recently diagnosed

Hi just been diagnosed with bechets on Friday, are there any support groups in Bristol area ???

Hi just been diagnosed with bechets on Friday, are there any support groups in B...

•7 years ago

portland OR

Hi, Going through a possible behcet's diagnosis and hoping to find a vasculitis support group in the Portland area. Let me know if anyone has any leads or...

Hi, Going through a possible behcet's diagnosis and hoping to find a vasculitis ...

•7 years ago

behcets syndrome and treatments

hi i have been diagnosed with Behcets syndrome for around 3 years , recently i have had to give up work after 28 years it has just become so difficult to live...

hi i have been diagnosed with Behcets syndrome for around 3 years , recently i h...

•7 years ago

Migraines!

I have had a migraine since about 8am this morning (GMT) I have took paracetamol & ibuprofen but it's not working! I can't get any work done as the pain is...

I have had a migraine since about 8am this morning (GMT) I have took paracetamol...

•7 years ago

New medication and tests

I had a follow up appointment a few days ago things haven't improved much since taking predisolone. The predisolone has been reduced slightly and I've now been...

I had a follow up appointment a few days ago things haven't improved much since ...

•7 years ago

Painful vein / blood vessels on lip

Has anyone else experienced painful blood vessel or vein on the lips? Seeing the rheumatologist tomorrow as follow up to my September appointment wondering...

Has anyone else experienced painful blood vessel or vein on the lips? Seeing the...

•7 years ago

Steroids r not right for everyone

If u r feeling bad side effects from steroids discuss it with you docs befor it geys worse . Also there are other side affect u cant see. I say this because of...

If u r feeling bad side effects from steroids discuss it with you docs befor it ...

•7 years ago

help...

For about a month I've noticed that I get a pressure sensation on the left side of my neck. I am not sure why, this sensation also follows up with a feeling of...

For about a month I've noticed that I get a pressure sensation on the left side ...

•7 years ago

Sickness from methertrexate and infliximab

Has any one else used canabis to combat the what i call medication morning sickness. It helps wi the sickness which alows me to eat which in turn helps wi the...

Has any one else used canabis to combat the what i call medication morning sickn...

•7 years ago

Be the first to reply

Bechets and Enbrel

Sorry I haven't posted in a while. So I switched to a different Rhuemtologist. The women I was seeing was very insensitive and rude. We could not agree on a...

Sorry I haven't posted in a while. So I switched to a different Rhuemtologist. T...

•7 years ago

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