Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,391 members•4,391 posts

All posts for April 2018

Skin lesions/ulcers?

Hello there, I'm writing this post because for the past year and a half I've been experiencing some wicked skin ulcers. Interestingly, they began a couple...

Hello there, I'm writing this post because for the past year and a half I've be...

•7 years ago

BD vs. IBD

I am still in the process of being diagnosed. My rheumatologist is struggling to come to a definitive diagnosis because he feels that because I am a white...

I am still in the process of being diagnosed. My rheumatologist is struggling to...

•7 years ago

Are you, or do you have, a teen with Behcet's?

Hello, I'm a Canadian living in QC. Our soon to be 17 yr old was diagnosed last year, but only now seems to be realizing what that means. It's like he had a...

Hello, I'm a Canadian living in QC. Our soon to be 17 yr old was diagnosed last...

•7 years ago

Want to take advantage of all our features? Just log in!

or

Looking for tools to help my teen cope

Hi, I'm new here. I'm looking for resources that could help my son cope with BD. He'll be 17 soon. He was diagnosed last year has been on & off of prednisone...

Hi, I'm new here. I'm looking for resources that could help my son cope with BD...

•7 years ago

Stress, stomach issues, brain fog

Hi everyone, Since I was a child, I have always been more sensitive than most people around my age when I face with stressful or difficult situations. These...

Hi everyone, Since I was a child, I have always been more sensitive than most pe...

•7 years ago

Behcet's resources for new members

It looks like we've got a lot of new members since the last time I posted this list! Welcome to everybody, and I hope this list is helpful. BEHCET'S...

It looks like we've got a lot of new members since the last time I posted this l...

•7 years ago

Any tips for Uveitis with Behcet’s?

Hello all, This is my first post here and I am wondering what one can do to reduce inflammation in the eye in general besides medicine. What did you find and...

Hello all, This is my first post here and I am wondering what one can do to red...

kingofthesalmon

•7 years ago

EULAR Releases Recommendations for Managing Behcet Syndrome

https://www.rheumatologyadvisor.com/diagnostics/behcet-syndrome-recommendations-released-by-eular/article/759212/

https://www.rheumatologyadvisor.com/diagnostics/behcet-syndrome-recommendations...

•7 years ago

Looking for Parents of Children with Childhood onset Bechets Disease

Hello everyone, I looking to find Parents of children with Bechets Disease, my beautiful daughter SarahRuth was diagnosed at 14 months old she’s now 10 and...

Hello everyone, I looking to find Parents of children with Bechets Disease, my b...

SarahRuthNMommy

•7 years ago

What worked for me. Behcets syndrom

Been meening to post for a while and finally getting around to it. I have been suffering from Behcets since 2012. Took 2 years to truly diagnose and I have...

Been meening to post for a while and finally getting around to it. I have been ...

•7 years ago

Be the first to reply

Is this Behcets, please help!

Hi, I am desperate for advice . I have been having a growing list of symptoms and illnesses over the last 11 years . I began with massive hormone swings and...

Hi, I am desperate for advice . I have been having a growing list of symptoms a...

•7 years ago

Rayos Anyone?

Has anyone out there tried Rayos? Wondering your experience with this extended release Prednisone. Thanks!

Has anyone out there tried Rayos? Wondering your experience with this extended r...

•7 years ago

Be the first to reply

Did anyone get thrush prior to Behçet’s diagnosis?

I’m in the Behçet’s pre official diagnosis stage and I had a stubborn case of thrush on my tongue for six months last year which also was made worse from...

I’m in the Behçet’s pre official diagnosis stage and I had a stubborn case of th...

•7 years ago

Going on holiday

Hi, I’m going away to Canada for a month, to surprise my sister for her 50th. I was wondering which company people used for medical insurance? I take quite a...

Hi, I’m going away to Canada for a month, to surprise my sister for her 50th. I...

•7 years ago

Behcet's Eh?

Hi everyone, This Canadian sends all of you wishes for mental and physical peace and good health, regardless of whether you are pre or post diagnosis,...

Hi everyone, This Canadian sends all of you wishes for mental and physical peace...

•7 years ago

Blepharitis

Me again. Blepharitis is a common symptom of Behcet? By the way, I don’t have sjogren.

Me again. Blepharitis is a common symptom of Behcet? By the way, I don’t have sj...

•7 years ago

Be the first to reply

Early menopause related to Behçet’s?

Did anybody go into early menopause because of their Behçet’s? I’m waiting for my rheumatologist appointment to confirm my Behçet’s diagnosis but wanted to...

Did anybody go into early menopause because of their Behçet’s? I’m waiting for ...

•7 years ago

Behçet and positive ANA. Anyone?

Isn’t common, but some people have ANA positive. I would like to know who has and the standard. thanks

Isn’t common, but some people have ANA positive. I would like to know who has a...

•7 years ago

Behçet sores?

Please, help me. Is this an ulcer such as that of Behçet? I'm with this one and a few, the smaller ones are only red and deep. It can be? I’m waiting for...

Please, help me. Is this an ulcer such as that of Behçet? I'm with this one and ...

•7 years ago

Suffering in silence

Hello all, My name is Emily, I’m 19 years old and I’m from the UK. I have just signed up to health unlocked and joined this society. Long story short, 3 years...

Hello all, My name is Emily, I’m 19 years old and I’m from the UK. I have just ...

•7 years ago

Job lost

Hi I just lost me job. After 11 years on the council. On ground of capability. I going to appeal on the decision. This is second time I lost me job to the...

Hi I just lost me job. After 11 years on the council. On ground of capability. I...

•7 years ago

Restless legs, Behcets and diet

I posted on here a while ago about restless legs. Just sharing this as I think I may have discovered the reason. I attach a link relating to salicylates in...

I posted on here a while ago about restless legs. Just sharing this as I think I...

•7 years ago