Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,246 members • 4,330 posts

All posts for April 2017

Diagnosed last month

Hi all im a 35 year old irish woman with 2 gorgeous girls who are 8 and 5 and an amazing husband who is trying his best to understand this horrible disease....

Hi all im a 35 year old irish woman with 2 gorgeous girls who are 8 and 5 and a...

•7 years ago

Maureen

Hello im new here my daughter has Behtets it took quite some time to diagnose as its a foreign disease and my son is going through tests just today back to...

Hello im new here my daughter has Behtets it took quite some time to diagnose a...

•7 years ago

Newby - Desparately Seeking Advice or any Level of Hope please....

Hi I am one of the patients who nobody wants to help, I'm in between departments all saying its the other person's remit! In fairness to gastroenterology they...

Hi I am one of the patients who nobody wants to help, I'm in between department...

•7 years ago

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Liverpool CofE

Hı I thought I'd document my visit to the Liverpool centre of excellence here it is xxx...

Hı I thought I'd document my visit to the Liverpool centre of excellence here it...

Mylifewithbehcets

•7 years ago

Exercise

Anyone got any tips for re-introducing exercise? I am awake for the normal 16 hours a day now, and I am more active - housework, walk to the shops etc. I want...

Anyone got any tips for re-introducing exercise? I am awake for the normal 16 ho...

•7 years ago

Pagets in Behcets sufferers?

I have many illnesses as well as BD, which can be a real nightmare when it comes to getting a group of symptoms diagnosed as a new condition to a to the list!...

I have many illnesses as well as BD, which can be a real nightmare when it comes...

funkyraspberryripple

•7 years ago

Men help me out here.

Has anyone had any issues with getting a vasectomy? I'm on Cellcept which slow healing, I'm have ZERO Behect's issues. I'm very nervous to get this done, but...

Has anyone had any issues with getting a vasectomy? I'm on Cellcept which slow h...

•7 years ago

My life with Behçets

Hı if anyone wants to follow my life with Behçets on Facebook here's my link... Would Love to hear from you x https://www.facebook.com/groups/1717061818616063/

Hı if anyone wants to follow my life with Behçets on Facebook here's my link... ...

Mylifewithbehcets

•7 years ago

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Liverpool CofE

Hiya everyone I've just joined here but had Behçets a loooooooong time. Diagnosed 6 yr ago. Have Pots disease and Recently also diagnosed with fibromyalgia at...

Hiya everyone I've just joined here but had Behçets a loooooooong time. Diagnose...

Mylifewithbehcets

•7 years ago

new meds not working

been on methotrexate a month now also been put back on coloccine was on that for 3 years with no effect my ulcers have again returned after a week this is now...

been on methotrexate a month now also been put back on coloccine was on that for...

•7 years ago

Medication change awful! Help!!!

I have Behcets, Fibromyalgia and Chronic Fatigue. I have just weaned myself off of Nortriptyline and started taking Cymbalta 30mg in the morning with breakfast...

I have Behcets, Fibromyalgia and Chronic Fatigue. I have just weaned myself off ...

•7 years ago

I'm new to this site have originally been on the Thyroid Community-but not a Thyroid Illness- my Consultant is now considering Behcet's

Hello Everyone I would appreciate any feedback and thoughts on my situation. I have not been well for a while with Joint pain hip knees ankles and in hands...

Hello Everyone I would appreciate any feedback and thoughts on my situation. I h...

•7 years ago

Behcet's and blood clots.

Hello, My boyfriend (well not sure if he still is, he's been up and down lately) developed DVT in his left leg, it then traveled to his pelvis and now the...

Hello, My boyfriend (well not sure if he still is, he's been up and down lately)...

•7 years ago

out of hospital new treatment plan

hi all out of hospital now iwas in for 10 days now been put on metotrixate and been put back on coloccine as well I was on colocinne for 3years with no effects...

hi all out of hospital now iwas in for 10 days now been put on metotrixate and b...

•7 years ago

Hi my name is MICHAELLA and I'm new to the group

I'm sick and tired of feeling like this. 3 years ago I received a 'probable bechets diagnosis'. At the moment I'm on cholchine, stomach protection medication...

I'm sick and tired of feeling like this. 3 years ago I received a 'probable bec...

•7 years ago

Does Behcet affect your life or holiday cover?

Hello All I'm new to here. I was verbally given a 'probably Behcet Syndrome' diagnosis some 30 years ago. The doctor at the time said little was known about...

Hello All I'm new to here. I was verbally given a 'probably Behcet Syndrome' di...

•7 years ago

Liverpool Behcet's meeting / get together

Behcet's meeting end of April, it would be great to see you all there! Behcets Support Group MEETING Wednesday 26th April 2017 from 6:30 pm – 8:30pm Mercure...

Behcet's meeting end of April, it would be great to see you all there! Behcets ...

Partner•7 years ago

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Unseen symtoms

I was finally diagnosed with Behcets a year ago. Treatment working, no more migraines, eyesight stable. I have recently just had a flare after doing so...

I was finally diagnosed with Behcets a year ago. Treatment working, no more migr...

•7 years ago

Bowel symptoms & Genital Ulcers (please share info)

Hi, I'm Kathy from USA (Maryland) I have Behcet's full force all the time and many symptoms. My joints have gotten really bad (ankles). Bowels causing me to...

Hi, I'm Kathy from USA (Maryland) I have Behcet's full force all the time and ma...

•7 years ago

Omega 3 and gammolinoleic acid for Behcets?

Hi there Community. My son who is 25 has been diagnosed just last summer as having Behcets .Having read about a successful non medical small trial (of 3...

Hi there Community. My son who is 25 has been diagnosed just last summer as ha...

•7 years ago

Sometimes just sometimes I resent this condition

Hi, I was diagnosed nearly three years ago now. I have been in and out of hospitals as you all have too and I have been confined to a wheelchair but managed...

Hi, I was diagnosed nearly three years ago now. I have been in and out of hosp...

•7 years ago

Eye ulcers

Hello everyone I posted a picture yesterday of my ulcer in eye lid. The pain is around the eye now and the eye itself is extremely sore. My hips and neck is in...

Hello everyone I posted a picture yesterday of my ulcer in eye lid. The pain is ...

•7 years ago

Ulcers on eye and face

Hi everyone ain't been on here for a while been ill and also having a battle with fibromyalgia which on top of BD is a killer on my body. Anyway I woke up...

Hi everyone ain't been on here for a while been ill and also having a battle wit...

•7 years ago

Extra vaccinations and Behcet's Disease?

Apart from the flu jab each winter do people who have BD need to have any additional supportive injections or vaccinations to prevent other contracted...

Apart from the flu jab each winter do people who have BD need to have any additi...

•7 years ago

Aarrchoo Hayfever?

I have found that Sterimar nasal spray works well morning and night to keep nasal hygiene good and clear relieves the itchy nose and throat. I also was...

I have found that Sterimar nasal spray works well morning and night to keep nasa...

•7 years ago

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Bowel symptoms

I'm off to see dietician tomorrow to see if my intermittent diarrhoea, bloating and abdo pain can be managed by what I eat. I have ulceration of the terminal...

I'm off to see dietician tomorrow to see if my intermittent diarrhoea, bloating ...

•7 years ago

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