Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,436 members•4,407 posts

All posts for December 2018

Ana results

Hi after getting diagnosed with bechets disease 4 years ago I've had a really bad time of it lately and all my blood tests have come back abnormal..my liver...

Hi after getting diagnosed with bechets disease 4 years ago I've had a really ba...

•6 years ago

FREE articles from latest supplement on BD -- Clinical & Experimental Rheumatology

FREE articles from the latest Clinical and Experimental Rheumatology “Supplement on Behcet’s and other autoinflammatory conditions” (2018 Vol.36, N°6 -...

FREE articles from the latest Clinical and Experimental Rheumatology “Supplement...

•6 years ago

HAPPY HOLIDAY'S

Be safe and Happy Holiday's to All, Avoid the food group's that bring up your flares, my personal irritants are Potato's, Walnut's and Preserved or Pickled...

Be safe and Happy Holiday's to All, Avoid the food group's that bring up your fl...

•6 years ago

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Merry Christmas

I wish you all a very merry Christmas hope everyone will enjoy this Christmas season. And a happy new year.

I wish you all a very merry Christmas hope everyone will enjoy this Christmas se...

•6 years ago

Fluids from genital ulcers?

Does your genital ulcers leak? And what is it, blood or puss or what kind of fluid??

Does your genital ulcers leak? And what is it, blood or puss or what kind of flu...

•6 years ago

Infliximab infusions

Hi everyone seasons greetings to you all, Just an update on my Infliximab infusions....started them on Friday ,first one 7 and half hours there 🙄🙄thanks for...

Hi everyone seasons greetings to you all, Just an update on my Infliximab infusi...

•6 years ago

Do you have symptoms prior to a flare?

Hey guys! Do you somehow feel that you’re about to have a flare, before you actually have a flare? How? And what are you feeling? Also, I’m currently in a lot...

Hey guys! Do you somehow feel that you’re about to have a flare, before you act...

•6 years ago

Humera/Cosentyx = infections

Looking for individuals who take Humera or Cosentyx and have had a hard time fighting off infections. Started of as a sinus infection and had to have a sinus...

Looking for individuals who take Humera or Cosentyx and have had a hard time fig...

•6 years ago

Video guide to the Behçet’s Centre of Excellence

We made this video to help children and their families attending the Behçet’s Centre of Excellence in London. Professor Fortune and her team approved it and...

We made this video to help children and their families attending the Behçet’s Ce...

•6 years ago

Benefits UK

Hi all, just a quick question does anyone receive benefits (ESA , PIP) and if so which ones? I am so live with my partner so just wondering.

Hi all, just a quick question does anyone receive benefits (ESA , PIP) and if so...

•6 years ago

Ms hug

Does anyone else suffer this? It’s incredibly painful. Consultant believes it’s a cross over of symptoms- is that true/possible? C

Does anyone else suffer this? It’s incredibly painful. Consultant believes it’...

•6 years ago

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Ulcers

Hi Okay, my names Cianna I currently started developing ulcers about a couple days ago i went to the doctors and they told me i have a UTI and that it's a...

Hi Okay, my names Cianna I currently started developing ulcers about a couple da...

•6 years ago

Is chest pain related to Bechets?

My teenage daughter was recently diagnosed with Bechets and is now complaining of mid- chest pain. We have appointment with rheumatologist this next week....

My teenage daughter was recently diagnosed with Bechets and is now complaining o...

•6 years ago

Behcet's and Parathyroid?

We’re posting on behalf of a member who wanted to know if anyone has ever had parathyroid problems with their Behçet's? This member has been having chemo for...

We’re posting on behalf of a member who wanted to know if anyone has ever had pa...

Partner•6 years ago

Cryoglobulinemia- Has anybody been tested for this as part of their Behcets diagnosis or as an alternative diagnosis for your symptoms?

I had my second appointment at the Behcets clinic on Tuesday. There were bits of good news ( ulcers right sort, ulcers scars in certain places) and bad news (...

I had my second appointment at the Behcets clinic on Tuesday. There were bits of...

•6 years ago

Lost my mojo

How can I get my mojo back? I'm in pain everyday and feel so tired I just want to sleep. I want to be able to enjoy life again.

How can I get my mojo back? I'm in pain everyday and feel so tired I just want t...

•6 years ago

Embarrassing doesn’t describe it

Hi Just wondered if anyone else has suffered or is suffering from bowel incontinence? C

Hi Just wondered if anyone else has suffered or is suffering from bowel inconti...

•6 years ago

PIP SURVEILLANCE DONE

Hi, I was in receipt of DLA/PIP for numerous years for Behcets, Fibromyalgia, Bursitis in both hips, Tremors, Arthritis etc. I was put under surveillance early...

Hi, I was in receipt of DLA/PIP for numerous years for Behcets, Fibromyalgia, Bu...

•6 years ago

Diagnosed

Hello beautiful bechets friends 🙂 I received a definite diagnosis last Wednesday of behcets. It is bittersweet tbh, have been wanting to know what is wrong...

Hello beautiful bechets friends 🙂 I received a definite diagnosis last Wednesda...

•6 years ago

Advice on the coil (IUD)

Hello I was wondering if anyone had any experience with the coil and Behcets? Is there anything to look out for or is it straight forward?

Hello I was wondering if anyone had any experience with the coil and Behcets? Is...

•6 years ago

Appointment with the Centre of Excellence in London

Hello to All, For about 4 months I've trying to get an appointment with the COE in London. I live on the continent so I had to get my file transfer approved by...

Hello to All, For about 4 months I've trying to get an appointment with the COE ...

•6 years ago