Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,391 members•4,391 posts

All posts for May 2017

CBD OIL-has anyone tried this for pain?

Wondering if anyone has tried CBD oil (Cannabidiol and THC -from the hemp plan) for their pain? If so, what do you think of it? Has it helped with joint and/or...

Wondering if anyone has tried CBD oil (Cannabidiol and THC -from the hemp plan) ...

•7 years ago

Has anyone tried Campath?

Hi, I'm trialling Campath at the moment to try to put me in remission with my Bechets. At the moment I feel so poorly and I'm worried about going in for my...

Hi, I'm trialling Campath at the moment to try to put me in remission with my Be...

•7 years ago

Bechets

Hi everyone I hope this warm weather is not effecting you as much as it is me. I'm always sweating hydrated all the time even with drinking plenty of water....

Hi everyone I hope this warm weather is not effecting you as much as it is me. I...

•7 years ago

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Very upset. Think its time to head to Liverpool,

Ive been with my current consultant for over 20 years went to see him today and it became clear I need to find someone new. I've basically been without...

Ive been with my current consultant for over 20 years went to see him today and ...

•7 years ago

Ankles and Feet + medications/alternatives

I have read a few posts where people have bad issues with ankles and feet and I am one of those people, I was wondering what people are doing to relieve this...

I have read a few posts where people have bad issues with ankles and feet and I ...

•7 years ago

Yet to be diagnosed, but symptoms could be Behcet's? PLEASE HELP (if possible)!

Hi Everyone, I would really appreciate it, if someone could maybe shed some light on my situation. As I am very desperate for help, and I am not getting the...

Hi Everyone, I would really appreciate it, if someone could maybe shed some l...

•8 years ago

Colichicine

My son has been taking colichicine from June last year when he was diagnosed but over the last few weeks he has been having really bad nose bleeds has anyone...

My son has been taking colichicine from June last year when he was diagnosed b...

•8 years ago

Feeling frustrated with my diagnosis

Hello, I'm having a hard time getting my diagnosis confirmed and I feel so frustrated. You see about a year ago I was given a diagnosis of Bechets from my...

Hello, I'm having a hard time getting my diagnosis confirmed and I feel so frust...

•8 years ago

Nervous and unsure.

Hi there! I've spent hours in the last 4 days reading up on many different syndroms, diseases and viruses. But it keeps coming back to Behcet's. This last...

Hi there! I've spent hours in the last 4 days reading up on many different syndr...

Tai_me_in_happy

•8 years ago

Hello!

Hello, Yesterday i went to the doctor and he told me that i have this syndrome. Please im new to all this and i dont know what to do or say or think. I first...

Hello, Yesterday i went to the doctor and he told me that i have this syndrome. ...

•8 years ago

My bechets

Hi .before I was diagnosed with bechets I was ill for seven years , I've been on colchine tablets for ten year . My illness is getting worse i.e. Joint pain ,...

Hi .before I was diagnosed with bechets I was ill for seven years , I've been on...

•8 years ago

Fever with flare up

Does any behcets suffered have bad fevers when their having a flare up ?bad enough to have to get up at night to change night clothes and bedding?

Does any behcets suffered have bad fevers when their having a flare up ?bad eno...

•8 years ago

Colchicine Side Affects?

Hi, I started a trial of colchicine 500mg 10 days ago and I am wondering if I am having some side affects from taking this new drug or I am just having a worse...

Hi, I started a trial of colchicine 500mg 10 days ago and I am wondering if I am...

•8 years ago

Hair loss and bruising

Hi Having been diagnosed a while ago with Bechets does anybody suffer with severe pain bruising and hair loss to there head like pic below ??

Hi Having been diagnosed a while ago with Bechets does anybody suffer with sever...

•8 years ago

Behcet’s Centre of Excellence Does Not Work for Everyone.

I was diagnosed with Behcet’s disease in 1980. I have been treated at my local hospital by a consultant who trained with a Behcet’s expert years ago, he treats...

I was diagnosed with Behcet’s disease in 1980. I have been treated at my local h...

•8 years ago

Rheumy says suspected Behçet's, but gp won't do anything!

To cut a long story short, been under a rheumatologist since last September. Symptoms are joint pain, mouth and genital ulcers and horrendous fatigue. Tests...

To cut a long story short, been under a rheumatologist since last September. Sym...

•8 years ago

curious

just a question, I was diagnosed with Behcets at birth as I had ulcers in both places and my mum has it, my daughter has it too, anyone else diagnosed so...

just a question, I was diagnosed with Behcets at birth as I had ulcers in both p...

•8 years ago

Travelling for work.

Hi. Work keep making me go to staff overnighters. These these are 4 hour round trips, and the meetings go on into the evening. Every time I go I come back...

Hi. Work keep making me go to staff overnighters. These these are 4 hour round t...

•8 years ago

Colchicine and Simvastatin

Does anyone take Colchicine and Atorvastatin? I take Colcicine 500 micrograms twice daily. I have just been prescribed Atorvastatin for high Cholesterol but...

Does anyone take Colchicine and Atorvastatin? I take Colcicine 500 micrograms t...

•8 years ago

More disappointment

I had my rheumatology appointment yesterday and I was quite disappointed with it! Although I was diagnosed privately I finally had an NHS appointment after...

I had my rheumatology appointment yesterday and I was quite disappointed with it...

•8 years ago