Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,252 members • 4,332 posts

All posts for October 2018

Nerve damage - fire ants in legs.

My latest in my list of complaints: I went to the Specialist to get injected in my hips for severe joint pain. A week after that I started with the feeling of...

My latest in my list of complaints: I went to the Specialist to get injected in ...

•6 years ago

need more research on controlling diet for behcets

I was on steroids for some time and was scared to go further on immune suppresents, which will cause more harm in another way s. so I tried controlling diet...

I was on steroids for some time and was scared to go further on immune supprese...

•6 years ago

It’s difficult to explain

It’s difficult to explain to people. After all this is an invisible illness to most people pretty much all of the time. Unless you live with me day in day out...

It’s difficult to explain to people. After all this is an invisible illness to ...

•6 years ago

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controlling diet might help

I had uveitis , joint pain, and severe mouth ulcers. My sympyoms improved a lot after I tried gluten free, and salicylate free diet. By any chance i eat any...

I had uveitis , joint pain, and severe mouth ulcers. My sympyoms improved a lo...

•6 years ago

Blood test negative, help

I have just found out that hlb51 (think got that blood test name wrong- think u know one I mean) is negative but have many Behçet symptoms. Does this mean I...

I have just found out that hlb51 (think got that blood test name wrong- think u ...

•6 years ago

I need some advice

Hi everyone ! Is any one done erbium ablative laser on a face? If yes, any problems with it? Thanks

Hi everyone ! Is any one done erbium ablative laser on a face? If yes, any prob...

•6 years ago

Be the first to reply

Thickening of intestinal wall

Hi, I’m so thankful you all are here. Have been ill for years. Finally got diagnosed with BD this year. Everyone sharing all of their challenges has been...

Hi, I’m so thankful you all are here. Have been ill for years. Finally got diag...

•6 years ago

Made mistake in earlier post

Meant to ask-are genital ulcers white

Meant to ask-are genital ulcers white

•6 years ago

Pain and genital ulcers

Hi all, am new here and may have Behçet’s as other illnesses ie lupus etc negative. I have bit of a strange question, actually two!! I am a female. 1. Are...

Hi all, am new here and may have Behçet’s as other illnesses ie lupus etc negati...

•6 years ago

Sleep walking during flare ups

Hey all! I am still wondering if anyone else experiences sleep walking episodes while they are having a flare up. Or, “odd” behavior during flare ups, like...

Hey all! I am still wondering if anyone else experiences sleep walking episodes...

•6 years ago

Great Doctor, diagnoses possibly!?

Hi everyone!! What started out as a terrible day from pain with mouth ulcers and genital ulcers ended up fantastic. I was able to get the afternoon off of...

Hi everyone!! What started out as a terrible day from pain with mouth ulcers an...

•6 years ago

Update and advice please

Hi The colour around the lesion has changed and is now an orange colour. Does this look right to you and should I be concerned? Thanks C

Hi The colour around the lesion has changed and is now an orange colour. Does ...

•6 years ago

On the road to acceptance

Second session with my counsellor this morning. Went well, have me some great prompts and helped me to find some practical things I can do. Hardest part for...

Second session with my counsellor this morning. Went well, have me some great pr...

•6 years ago

Confused...?

Hey guys, so after the past week or so I’ve been having a very rough journey. It all began with SEVERE abdominal pain/swelling of the bowel, diarrhea with some...

Hey guys, so after the past week or so I’ve been having a very rough journey. It...

•6 years ago

UK AGM

Hello everyone in the 🇬🇧 I’m going to the AGM in Bristol on Saturday. I was just wondering if anyone else was going too?

Hello everyone in the 🇬🇧 I’m going to the AGM in Bristol on Saturday. I was ...

•6 years ago

Gastroparesis

Anyone been diagnosed with this? How have you managed it?

Anyone been diagnosed with this? How have you managed it?

•6 years ago

Lesions and fatigue.

I'm fairly new here. Who has had trouble and then success with genital lesions and bleeding along with discomfort? What worked? Also, how common is fatigue,...

I'm fairly new here. Who has had trouble and then success with genital lesions ...

•6 years ago

Newbie

I'm very new to this. I have been healthy my whole life and didn't even realize that I had a disease or that the symptoms I had, being so mild, were symptoms...

I'm very new to this. I have been healthy my whole life and didn't even realize ...

•6 years ago

Remicade

Has anyone tried Remicade? Does it help better than other treatments? Are there side-effects? I’ve been on Humira and Methotrexate for psoriatic arthritis...

Has anyone tried Remicade? Does it help better than other treatments? Are ther...

•6 years ago

How The Lord of the Rings gave me some clarity to the way Behcets disease makes me feel.

I am just sitting here , enjoying a little bit of geek time , watching the first Lord of the Rings film. If you haven't seen it or do not know the story , I...

I am just sitting here , enjoying a little bit of geek time , watching the first...

•6 years ago

Good News

Had a good report from the neurologist. He said it was the best he had seen my fingers and thinks the Rituximab is working (slowly). I’m to see him in a...

Had a good report from the neurologist. He said it was the best he had seen my ...

•6 years ago

Who has had the flu jab and side effects?

Gosh this years flu jab has caused issues. I’ve experienced multiple joint pains including in my toes! I am a little flary so this may be coincidence. The...

Gosh this years flu jab has caused issues. I’ve experienced multiple joint pains...

•6 years ago

treatments

i get the vaginal ulcars but new symptom is these spots that pop uo all over my body they did a biopsy awaiting results but i also find my vision blurry at...

i get the vaginal ulcars but new symptom is these spots that pop uo all over my ...

•6 years ago

polypectomy: Doctor, clip it right away, please!

Hello! I had my colonoscopy yesterday. I have been dreading it for such a long time, but a friend who survived colon cancer urged me to have it. It was...

Hello! I had my colonoscopy yesterday. I have been dreading it for such a lo...

•6 years ago

Bad day

Both my Bechet's and Lupus are flaring. Mouth and genital ulcers, nerves in face going crazy, swollen everywhere so tired and my head is hurting but it's not...

Both my Bechet's and Lupus are flaring. Mouth and genital ulcers, nerves in fac...

•6 years ago

BD and other conditions

Hi, Does anyone else with Behcets have Trigeminal Neuralgia? Wondering if I am the only one.... C

Hi, Does anyone else with Behcets have Trigeminal Neuralgia? Wondering if I a...

•6 years ago

Brave

Today I to9 the brave step of speaking to a counsellor to try and come to terms with my Behçets and how it’s effecting my life, along with the trigemin,...

Today I to9 the brave step of speaking to a counsellor to try and come to terms ...

•6 years ago

Types of Behçet’s?

Hi all. Someone mentioned there are 6 types of Behçet’s. Can someone please list those types & give a reference if possible. Thanks

Hi all. Someone mentioned there are 6 types of Behçet’s. Can someone please list...

•6 years ago

Thoughts please

Would you agree that working full time causes relapses? Any advice and or thoughts gratefully received. Thanks.

Would you agree that working full time causes relapses? Any advice and or thou...

•6 years ago

Drug holiday

I've been feeling so poorly lately that I'm beginning to wonder how much of it is side effects from the medication for Behcet's and my heart. I'm thinking of...

I've been feeling so poorly lately that I'm beginning to wonder how much of it i...

•6 years ago

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