Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,478 members•4,420 posts

All posts for March 2025

London C of E

Ok so I went to the London C of E last week and something is going on. I was told that these types of swellings aren’t Behçet’s, nor are the sores on my face...

Ok so I went to the London C of E last week and something is going on. I was tol...

•1 day ago

RLH Behçet Clinic

Hi everyone! Hope you are all doing ok. I just had my first appointment at the Royal London Hospital Behçet’s Clinic with Professor Jiwad. After a huge...

Hi everyone! Hope you are all doing ok. I just had my first appointment at th...

•1 day ago

Behcet's and Sweet's syndrome

Hi, I don't have Behcet's, but run the online patient group, Sweet's Syndrome UK. Sweet's syndrome (acute febrile neutrophilic dermatosis) is a rare...

Hi, I don't have Behcet's, but run the online patient group, Sweet's Syndrome UK...

•4 days ago

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Genital sore confusion

I'm currently under diagnosis for bechets. I have been good in keeping a symptoms diary ... in a nutshell I experience: IBD Alopecia aereta Mouth ulcers...

I'm currently under diagnosis for bechets. I have been good in keeping a sympto...

•6 days ago

Genital sores

I'm at a loss with how to ease the pain. I feel so down they are ruining my life. They come out of nowhere too. The only thing j did differently was gi horse...

I'm at a loss with how to ease the pain. I feel so down they are ruining my life...

•6 days ago

overwhelmed and exhausted

I don’t really know the reason to this post but I needed to post somewhere. I feel like I’m losing the plot, my memory is so bad and I’m so exhausted I’m only...

I don’t really know the reason to this post but I needed to post somewhere. I f...

•11 days ago

Has anybody got Holmes Adie (Tonic pupils) in both eyes?

When I first got eyeinflammations 25 years ago, I ended up with a blocked tear ducts, no feeling on the outside of my eyeballs and two dilated pupils that...

When I first got eyeinflammations 25 years ago, I ended up with a blocked tear d...

•20 days ago

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Neurological issues?

Hi. Does anyone with Behcets have subconjunctival hemorrhages, heart palpitations and internal tremors? I was referred to a rheumatologist for PsA, but he...

Hi. Does anyone with Behcets have subconjunctival hemorrhages, heart palpitation...

•22 days ago

Natural ways to support Bechets symptoms?

I wondered if anyone had found any natural methods that supported Bechets and reduced flares? I am trying to see if there is anything else I can do to help my...

I wondered if anyone had found any natural methods that supported Bechets and re...

•27 days ago

Centre of Excellence

Hello, We have a referral letter for my husband’s Bechets and I was wondering if any of the three were better to go to? We can travel to any of them. Just...

Hello, We have a referral letter for my husband’s Bechets and I was wondering i...

•27 days ago