Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,435 members•4,407 posts

All posts for January 2014

Ashford Meet up

Anyone interesetd in joining us on Friday 28 March from 3-5 at a Wetherspoons pub in the Country Hotel, Ashford. 10 The High Street Ashford Kent TN24 8TD...

Anyone interesetd in joining us on Friday 28 March from 3-5 at a Wetherspoons pu...

Hidden

•11 years ago

2 Replies

Is rapid bruising a Behçet's thing?

Yesterday I was working on the floor, leaned on my hand to get up, felt a pop and almost instantly had a blue bruise on the pad where the fingers meet the...

Yesterday I was working on the floor, leaned on my hand to get up, felt a pop an...

Jaxxi

•11 years ago

10 Replies

Has anyone used L-Lysine for oral ulcers? Did it help?

spirojo

•11 years ago

2 Replies

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PIP

Hi everyone as anyone been successful in receiving PIP (personal independents payment)?

Hi everyone as anyone been successful in receiving PIP (personal independents ...

sully14

•11 years ago

9 Replies

HI I HAVE WAS DIAGNOSED WITH BECHETS IN NOVEMBER AND WAS HOPING TO RETURN TO WORK SOON AND WAS WONDERING HOW OTHER PEOPLE HAVE COPED?

Hidden

•11 years ago

13 Replies

Does anyone in Jersey go to the London Clinic for treatment?

smitten500

•11 years ago

8 Replies

Diagnosed today: feeling peculiar

I have just returned from the Birmingham CoE having got my diagnosis. I have been unwell on and off since childhood with Behcets-type symptoms, but it has...

I have just returned from the Birmingham CoE having got my diagnosis. I have bee...

Jaxxi

•11 years ago

8 Replies

Hi does anyone know if u can request occupational health to come out to u or does it have to be done through g.p etc x

Jackamo

•11 years ago

3 Replies

Support groups in Bristol area

Hi can anyone tell me if there is any groups in the Bristol area ?? If not how could I go about setting one up ?

Hi can anyone tell me if there is any groups in the Bristol area ?? If not how c...

samhawks

•11 years ago

8 Replies

hi .........can some please tell me how do you know or how do you find out if you have neuron behcet:s ..........thank you for your help

ladyrevelle

•11 years ago

5 Replies

Ulcers on the back of throat and tonsils.

Suffered from these ulcers on back of throat and/or tonsils for years now, but I've finally got people I can ask for advice! So apart from eating ice cream for...

Suffered from these ulcers on back of throat and/or tonsils for years now, but I...

Millington

•11 years ago

10 Replies

Anyone had Bladder surgery?

Hi all Just wondering if anyone on here has had problems with peeing. I am having a dilation of my urethra next week because I have problems urinating. I...

Hi all Just wondering if anyone on here has had problems with peeing. I am havi...

bailey23

•11 years ago

16 Replies

Just been diagnosed (yesterday)

Even though I had a feeling I have behcets to actually be told yes you have behcets syndrome still shocked me and im trying to get my head round it. I have a...

Even though I had a feeling I have behcets to actually be told yes you have behc...

evo74

•11 years ago

5 Replies

Misdiagnosis

A while ago I saw a link (not on this site) that was about how many rare diseases are originally diagnosed as depression. It explained how doctors are trained...

A while ago I saw a link (not on this site) that was about how many rare disease...

juliet5427

•11 years ago

Be the first to reply

Has anyone used iv remicade, I just had my fourth infusion for my behcets. I'm experiencing major mood swings, depression and joint pain

runninggirl08

•11 years ago

17 Replies

feel like I won the lottery

After asking my doctor to refer me to a centre of excellence and getting know where ,I even saw her on Friday and was told I was depressed and couldn't cope...

After asking my doctor to refer me to a centre of excellence and getting know wh...

samhawks

•11 years ago

6 Replies

Brighton meet up

The first meeting of Behcet's patients in and near Brighton will take place on Wednesday 22nd January round 12 noon. If you are interested in this meet up or...

The first meeting of Behcet's patients in and near Brighton will take place on W...

Zebra

•11 years ago

2 Replies

Severe pain and restriction in my ribs difficult breathing

Also too painful to wear a bra In very bad flare at the moment 3 weeks Severe mouth ulcers unable to open my mouth to take pain killers. All help welcome...

Also too painful to wear a bra In very bad flare at the moment 3 weeks Severe mo...

Hidden

•11 years ago

5 Replies

New member, quickly deteriorating eyesight with nerve palsy & (almost) constant tinnitus (ringing in ears) among other symptoms

Hi Everyone, Firstly, I just wanted to thank the community here as a whole, specifically the Neuro/Vision focused societies. Your insight, knowledge, and...

Hi Everyone, Firstly, I just wanted to thank the community here as a whole, sp...

inasense

•11 years ago

34 Replies

Rheumy app

Just been to see my rheumy, she is off on mat leave so got a new one. Total waste of time. Also I was told I had missed my app which I hadn't they mixed up....

Just been to see my rheumy, she is off on mat leave so got a new one. Total wa...

Jazzy21

•11 years ago

4 Replies

Eye Biopsy, Anyone?!?

My daughter, 6, presented with posterior uvietis and chorioretinitis. It was discovered during a routine eye exam. She, throughout the years has also had...

My daughter, 6, presented with posterior uvietis and chorioretinitis. It was di...

mamalioness

•11 years ago

2 Replies

Sleep

I've not had a normal nights sleep for 17 years now due to pain and/or headaches. A few months back I bought a cradle for the end of my bed so that the duvet...

I've not had a normal nights sleep for 17 years now due to pain and/or headaches...

Herbiv4

•11 years ago

11 Replies

BD related? Raw/red all over entire inside of nose with discomfort/pain...

My rheumatologist isn't that familiar with Behcet's and she thinks that without a visible ulcer/ulcers, the raw, really red and somewhat painful nose situation...

My rheumatologist isn't that familiar with Behcet's and she thinks that without ...

Rose138

•11 years ago

7 Replies

I've had a headache for 12 days ,

I've had a headache for 12 days sometimes I wake up with it sometimes it just comes on through the course of the day and won't go away , I'm under a flare that...

I've had a headache for 12 days sometimes I wake up with it sometimes it just co...

samhawks

•11 years ago

7 Replies

Is Behcets related to the foods we eat?

I was diagnosed with Behcets about 3 years ago and I was prescribe a large dose of immunosuppressant's and steroids. Late last year (2013) I went for a food...

I was diagnosed with Behcets about 3 years ago and I was prescribe a large dose ...

Wicker

•11 years ago

12 Replies

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for January 2014

Ashford Meet up

Is rapid bruising a Behçet's thing?

Has anyone used L-Lysine for oral ulcers? Did it help?

PIP

HI I HAVE WAS DIAGNOSED WITH BECHETS IN NOVEMBER AND WAS HOPING TO RETURN TO WORK SOON AND WAS WONDERING HOW OTHER PEOPLE HAVE COPED?

Does anyone in Jersey go to the London Clinic for treatment?

Diagnosed today: feeling peculiar

Hi does anyone know if u can request occupational health to come out to u or does it have to be done through g.p etc x

Support groups in Bristol area

hi .........can some please tell me how do you know or how do you find out if you have neuron behcet:s ..........thank you for your help

Ulcers on the back of throat and tonsils.

Anyone had Bladder surgery?

Just been diagnosed (yesterday)

Misdiagnosis

Has anyone used iv remicade, I just had my fourth infusion for my behcets. I'm experiencing major mood swings, depression and joint pain

feel like I won the lottery

Brighton meet up

Severe pain and restriction in my ribs difficult breathing

New member, quickly deteriorating eyesight with nerve palsy & (almost) constant tinnitus (ringing in ears) among other symptoms

Rheumy app

Eye Biopsy, Anyone?!?

Sleep

BD related? Raw/red all over entire inside of nose with discomfort/pain...

I've had a headache for 12 days ,

Is Behcets related to the foods we eat?

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