Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,246 members • 4,330 posts

All posts for March 2017

Dieatary triggers research

http://twin.sci-hub.cc/ae6cd500f775c77bc862f02791892319/volle2016.pdf

http://twin.sci-hub.cc/ae6cd500f775c77bc862f02791892319/volle2016.pdf

•7 years ago

Allergy to Predisone

Anybody had a reaction to Predisone? My daughter has had rash & breathing issues (Asthma attack) last couple of times she's taken a 3 day course of Predisone....

Anybody had a reaction to Predisone? My daughter has had rash & breathing issues...

•7 years ago

Treatment at last

Saw my rheumatologist today I'm noe going into hospital prob tomorrow Waite for a bed then getting transferred to a hospital in Liverpool have to be closet...

Saw my rheumatologist today I'm noe going into hospital prob tomorrow Waite for ...

•7 years ago

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Accused of causing punched out lesions?

This is a totally new subject to my last post so I am keeping them separate. I commented that mentally I have improved but physically I'm still having a lot...

This is a totally new subject to my last post so I am keeping them separate. I...

•7 years ago

Symptoms

Guys can you help, I am getting more symptoms as the years go on... do any of you get a red hot face across the face and nose, I have worked outdoors for 20...

Guys can you help, I am getting more symptoms as the years go on... do any of yo...

•7 years ago

Moodswings

Hi There guys please some advise on Willdrich 9 year old Mood swings??? do you get them? and if you do please give advise

Hi There guys please some advise on Willdrich 9 year old Mood swings??? do you g...

•7 years ago

Pericarditis

Has anyone had recurring pericarditis? I've suffered for a number of years and been told conflicting views from, It has nothing to do with BD, to, Its an...

Has anyone had recurring pericarditis? I've suffered for a number of years and b...

•7 years ago

Behcet's Resources for New Members

BEHCET'S RESOURCES from Joanne Zeis I've had Behcet's for 35+ years and have been helping other BDers since 1996 through online support groups, websites,...

BEHCET'S RESOURCES from Joanne Zeis I've had Behcet's for 35+ years and have bee...

•7 years ago

New member from the continent!

Hello, I have joined this forum, because there is no large Behcet community in Denmark. I am pleased to see that you guys have such a great website, and that...

Hello, I have joined this forum, because there is no large Behcet community in D...

•7 years ago

Apparently I'm magic (relapsing polychondritis + Behçets=MAGIC syndrome)

I'm curious if anyone else also has relapsing Polychondritis. For some reason they can occur together and then u are considered to have MAGIC syndrome (mouth...

I'm curious if anyone else also has relapsing Polychondritis. For some reason th...

•7 years ago

Have you had trouble with your heart, lungs or stroke? What are they symptoms.

With all the symptoms my daughter has and medication she's on, doctors haven't explained the following symptoms for the heart, lungs and clots. I know I...

With all the symptoms my daughter has and medication she's on, doctors haven't e...

•7 years ago

Young People - Write your story and raise awareness!

Calling all parents of children with BD and young people aged 8 - 18! The magazine RareRevolution is planning 1 edition each year written by young people for...

Calling all parents of children with BD and young people aged 8 - 18! The magazi...

Partner•7 years ago

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Bechet's 9 years old son

Hi everyone we are new ..my son Willdrich is 9 and be diagnosed with Bechet's. He started his medicine last week.Monday he were so sick headache stomach pain...

Hi everyone we are new ..my son Willdrich is 9 and be diagnosed with Bechet's. H...

•7 years ago

Birth Control

Has anyone found that hormonal birth control increases the tendency of their flare ups? More specifically vaginal ones?

Has anyone found that hormonal birth control increases the tendency of their fla...

•7 years ago

Red hot lumps and bruises

Hi. For the fourth time in my life I am suffering from a bout of red hot lumps on my legs and arms which face into bruises and swelling of my face hands and...

Hi. For the fourth time in my life I am suffering from a bout of red hot lumps o...

•7 years ago

Thank you

I've spent the past 6 years feeling so alone. It's hard having a condition that is not only rare, but in my case, embarrassing to talk about. I'm on week 3+ of...

I've spent the past 6 years feeling so alone. It's hard having a condition that ...

•7 years ago

How often do people have ulcers for

Hi I get ulcers that last for 4 weeks at a time there horrible and painful they go away for about 10 day then there back regular as clock work do others suffer...

Hi I get ulcers that last for 4 weeks at a time there horrible and painful they ...

•7 years ago

Behcets Center of excellence

About a month ago I had quite a bad flare which took me to the doctors and resulted in being signed off work for 2 weeks. I see a rheumatologist privately but...

About a month ago I had quite a bad flare which took me to the doctors and resul...

•7 years ago

Society needs new Trustees and Helpline Volunteers

The Society Urgently Needs You …..Can You Help to Make a Difference? The current Trustees need to recruit more members to the Board to allow the...

The Society Urgently Needs You …..Can You Help to Make a Difference? Th...

Partner•7 years ago

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Pancreas pooped out

My biggest challenge is maintaining weight All my relatives with this and me are underweight Stool studies with fat malabsorption Digestive enzymes required....

My biggest challenge is maintaining weight All my relatives with this and me are...

•7 years ago

Burning sensation on the skin

Hi I am currently having a bit of a flare (last week sore mouth and small joints were really sore, this week genital ulcers and hip/back pain). New this time...

Hi I am currently having a bit of a flare (last week sore mouth and small joints...

•7 years ago

OzoneTherapy??

I just started with a new Naturopath and she suggested that I resesrch Ozone Therapy. I thought I'd heard of all new treatments, but never Ozone Therapy. Has...

I just started with a new Naturopath and she suggested that I resesrch Ozone The...

•7 years ago

Sudden hearing loss

I'm in the process of being diagnosed through the bechetts center in Birmingham UK. All day, I've had sever tinnitus, an a feeling of fullness in my ear. This...

I'm in the process of being diagnosed through the bechetts center in Birmingham ...

•7 years ago

let down and confused

Hi everyone just looking for some advise as feeling let down and confused. I was diagnosed with Bechets 20 years ago with the following symptoms arthritis,...

Hi everyone just looking for some advise as feeling let down and confused. I was...

•7 years ago

PLEASE HELP

HI, I live in Adelaide Australia. I have lived with debilitating symptoms for the past 15 years. I have just fount Behcet's Syndrome which I believe can now...

HI, I live in Adelaide Australia. I have lived with debilitating symptoms for th...

•7 years ago

Hip problems

Has anyone had issues with their hips? I've been dealing with left hip pain for a few years now. Found out that I need surgery. Is this a common thing with...

Has anyone had issues with their hips? I've been dealing with left hip pain fo...

•7 years ago

Tender testicles

This is probably a tender subject in itself but Does anyone else suffer from very tender and painful testickes? It's not an acute thing to be worried about...

This is probably a tender subject in itself but Does anyone else suffer from ver...

•7 years ago

Specialists in the US?

Anybody know of any specialists in the US????

Anybody know of any specialists in the US????

•7 years ago

can any one help

ive just been diagnosed with bechets I suffer fro ulcers which last 3 weeks then are gone but back 10 days later I also get them on intimate parts of the body...

ive just been diagnosed with bechets I suffer fro ulcers which last 3 weeks then...

•7 years ago

Will I get back to work?

I work as a GP and have been off 10 months now and my Specialist has said I might never be well enough to return. Even if I'm in remission with my Behcet's,...

I work as a GP and have been off 10 months now and my Specialist has said I migh...

•7 years ago

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