Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,245 members • 4,330 posts

All posts for August 2013

Still no further forward and wondered if anyone thought I should ask for a referral to Barts?

Hi , Thank you to everyone that replied last week x Been I bit hectic to reply , three out of my four had impetigo ! Just what you need , luckily The usually...

Hi , Thank you to everyone that replied last week x Been I bit hectic to reply ...

Motherof4

•11 years ago

4 Replies

Prednisone and immunosuppressants side effects

Hi All New development in my case - no lesion on my spine MRI which is making the multiple sclerosis diagnosis less probable. Next week I am having a lumbar...

Hi All New development in my case - no lesion on my spine MRI which is making th...

Lara1

•11 years ago

7 Replies

New to all this but was loking on internet and found this site im about to start campath did anyone get any side effectsand has it worked?

earl1990

•11 years ago

1 Reply

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Hitting the treatment glass ceiling....

Hello there everyone, Apart from having a tough couple of weeks I have also been pondering over what to do next following my recent out-patient appointment....

Hello there everyone, Apart from having a tough couple of weeks I have also bee...

Herbiv4

•11 years ago

12 Replies

Has anyone experienced issues with losing their voice?

it's been happening on and off for months. This past week however you would swear I have a bad case of laryngitis. I have seen an ENT specialist, twice who was...

it's been happening on and off for months. This past week however you would swea...

nurse_ratchet

•11 years ago

16 Replies

Behcet's disease

Behcet's disease, idiopathic, and nothing to do with nutrition, causing viruses, bacteria, tissue antigens, HLA B51 and HLA-B5, and why they are being referred...

Behcet's disease, idiopathic, and nothing to do with nutrition, causing viruses,...

Sunset

•11 years ago

2 Replies

Behcets Heart -Rate Recovery impaired study reveals.

Hi all I have been looking into something recently after I had a remission and recomenced excercising again, It concerns the ability for the heart to recover...

Hi all I have been looking into something recently after I had a remission and r...

fleagle

•11 years ago

9 Replies

Any one else on colchicine and it stopped working

I was given colchicine in feb and it was great for two months no ulcers but then they can back in my mouth and once again I was only about 3 days clear of them...

I was given colchicine in feb and it was great for two months no ulcers but then...

samhawks

•11 years ago

7 Replies

Hi, can anyone help is this normal has anyone suffered with chronic constipation out of the blue+ stabbing pains in stomach & painful veins?

My seven year old was admitted to hospital whilst away on holiday with stabbing pains in stomach that got worse and worse, she didn't move for four days , just...

My seven year old was admitted to hospital whilst away on holiday with stabbing ...

Motherof4

•11 years ago

14 Replies

Interesting read

Lenalidomide (REVLIMID®) CC-5013 (Celgene, NJ, USA) is approved, in both the USA and Europe, in combination with dexamethasone for the treatment of multiple...

Lenalidomide (REVLIMID®) CC-5013 (Celgene, NJ, USA) is approved, in both the ...

tamirra

•11 years ago

Be the first to reply

anybody have deep vain thrombosis

saleempalam

•11 years ago

3 Replies

Still here but not able to type much

Hi Everyone I'm still decidedly unwell. Some of my fingers have healed and new ones have started. At one stage I had a bandage on every fingertip (and one...

Hi Everyone I'm still decidedly unwell. Some of my fingers have healed and new...

lesleyg

•11 years ago

17 Replies

Do others experience nausea and vomiting as a symptom of BD??

I suspect that I've had BD since childhood. Mouth ulcers, GI issues, migraines,skin ulcers, etc. First bad flare right now since almost 10 years ago. Was...

I suspect that I've had BD since childhood. Mouth ulcers, GI issues, migraines,s...

nurse_ratchet

•11 years ago

10 Replies

how to unblock blood veins

mushtaqengr

•11 years ago

1 Reply

my 6 yr old son has behcets and is on 1,500mg of colchicine a day and is still getting flares.

whilst hes having the flares i have to give him 7ml of prednisone a day including 3 x500mg colchicine, hes still getting mouth and genital ulcers and skin...

whilst hes having the flares i have to give him 7ml of prednisone a day includin...

frazel12

•11 years ago

16 Replies

A Message from The Behcets Society

This forum is for patients and their supporters to share information and their experiences. All views are those of the patients / carers only and are not...

This forum is for patients and their supporters to share information and their e...

UKADMIN

Partner•11 years ago

Be the first to reply

Do you have lots of pain in the small bones of your hands and feet?

I just wondered of this type of arthritic pain in the small bones of my hands and feet is typical of Behcet? it gets worse with use of the hands/feet.

I just wondered of this type of arthritic pain in the small bones of my hands an...

goodlife

•11 years ago

12 Replies

Bechets fits my symptoms perfectly - except I suffer massively with ulcers up my nose not my mouth!!! Could it be bechets? Thank you

Undiagnosed but need answers :-( Thank you in advance. xx

barkingmad

•11 years ago

6 Replies

I can see you all at long last ! Yippeeee !!

This is a test blog for me personally just to see if I can write on here as well as read the site at long last after being blocked for so long. I thought I...

This is a test blog for me personally just to see if I can write on here as well...

xandii

•11 years ago

5 Replies

Hi, I feel a bit out of it on here as I haven't been diagnosed yet but given it can take years I figured you wouldn't mind me asking your ad

joham

•11 years ago

7 Replies

Can any one recommend pain relief for headaches, mine can last for days

I suffer with headaches that last for days, sometimes they are so bad I could cry or I get sick, I have yet to find effective pain relief can any one...

I suffer with headaches that last for days, sometimes they are so bad I could cr...

Cherryann

•11 years ago

10 Replies

Hi is anyone taking mycophenolate if so has anyone had a side effects from them my neurologist just started me on them x

Jackamo

•11 years ago

7 Replies

Azathiroprine, side effects ??

Hello fellow B.D suffers Can any of you who take or have taken Azathiroprine let me know if you became very swollen distended stomach very swollen legs (...

Hello fellow B.D suffers Can any of you who take or have taken Azathiroprine l...

Sachamw

•11 years ago

3 Replies

Being in a wheelchair

Hi Guys I am finding my problems with my knees and now spine meaning I need to be thinking about being in the wheelchair more and more. Anyone in this...

Hi Guys I am finding my problems with my knees and now spine meaning I need to b...

Jazzy21

•11 years ago

3 Replies

Hi all, do any of you get weird prickly patches of skin mainly on buttock and legs, could also be compared to patches of severe goosebumps

Or plucked chicken skin, I get it all the time and its itches and just feels awful if any of you do how do you deal with it?? Many thanks

Or plucked chicken skin, I get it all the time and its itches and just feels awf...

Sachamw

•11 years ago

3 Replies

message from xandi

hi all xandi messaged me to say she has had little success logging into the site and has been on to tech support regarding this so in case members were...

hi all xandi messaged me to say she has had little success logging into the site...

scruffy1

•11 years ago

4 Replies

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Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for August 2013

Still no further forward and wondered if anyone thought I should ask for a referral to Barts?

Prednisone and immunosuppressants side effects

New to all this but was loking on internet and found this site im about to start campath did anyone get any side effectsand has it worked?

Hitting the treatment glass ceiling....

Has anyone experienced issues with losing their voice?

Behcet's disease

Behcets Heart -Rate Recovery impaired study reveals.

Any one else on colchicine and it stopped working

Hi, can anyone help is this normal has anyone suffered with chronic constipation out of the blue+ stabbing pains in stomach & painful veins?

Interesting read

anybody have deep vain thrombosis

Still here but not able to type much

Do others experience nausea and vomiting as a symptom of BD??

how to unblock blood veins

my 6 yr old son has behcets and is on 1,500mg of colchicine a day and is still getting flares.

A Message from The Behcets Society

Do you have lots of pain in the small bones of your hands and feet?

Bechets fits my symptoms perfectly - except I suffer massively with ulcers up my nose not my mouth!!! Could it be bechets? Thank you

I can see you all at long last ! Yippeeee !!

Hi, I feel a bit out of it on here as I haven't been diagnosed yet but given it can take years I figured you wouldn't mind me asking your ad

Can any one recommend pain relief for headaches, mine can last for days

Hi is anyone taking mycophenolate if so has anyone had a side effects from them my neurologist just started me on them x

Azathiroprine, side effects ??

Being in a wheelchair

Hi all, do any of you get weird prickly patches of skin mainly on buttock and legs, could also be compared to patches of severe goosebumps

message from xandi

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive