Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,391 members•4,391 posts

All posts for September 2012

Having a bad day!

Hi all Just wanted to have a good rant as feeling pretty rough today. Am aching like a pensioner and joints are sore and have developed a worse than usual...

Hi all Just wanted to have a good rant as feeling pretty rough today. Am achin...

bailey23

•12 years ago

4 Replies

Hi every1, i have recently been diagnosed with mild Behcet's (doesn't feel very mild), the doc has said that it wont get any worse

Hi every1, i have recently been diagnosed with mild Behcets (it dosent feel very mild), the doctors has said that my symptoms shouldn't get any worse, at the...

Hi every1, i have recently been diagnosed with mild Behcets (it dosent feel very...

lealea32

•12 years ago

11 Replies

Extremely sore mouth and throat with ulcers - remedies?

Hi, my throat and mouth are getting sorer by the minute (think I will contact the specialist). Is there any simple remedy I can take while working out whether...

Hi, my throat and mouth are getting sorer by the minute (think I will contact th...

lesleyg

•12 years ago

20 Replies

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Birmingham Centre of Excellence Support Worker

Hi my name is Janine and I am writing to introduce myself as Support Worker for Birmingham Centre of Excellence. I started working for Behcets Patients Centres...

Hi my name is Janine and I am writing to introduce myself as Support Worker for ...

swb1

•12 years ago

13 Replies

Birmingham Centre of Excellence Support Worker

Hi my name is Janine and I am writing to introduce myself as Support Worker for Birmingham Centre of Excellence. I started working for Behcets Patients...

Hi my name is Janine and I am writing to introduce myself as Support Worker for ...

swb1

•12 years ago

6 Replies

Anyone been told they have volvodynia?

Hi I am currently in between seeing different consultants getting diagnosed with behcets, 4 different consultants from different areas said they are sure...

Hi I am currently in between seeing different consultants getting diagnosed w...

Nikki2025

•12 years ago

3 Replies

What sort of auto-immune disease?

I was at the hospital last week and a new registrar was sitting in on the consultation. He asked what sort of auto-immune disease I had. We all looked...

I was at the hospital last week and a new registrar was sitting in on the consul...

lesleyg

•12 years ago

29 Replies

Advice- newbie

General advice in june literally a month before my 27 birthday i became ill. i went from being a party fun loving mum of three, to being in a wheelchair....

General advice in june literally a month before my 27 birthday i became ill. ...

lizzykarma

•12 years ago

10 Replies

Anxiety attacks

My daughter is suffering anxiety attacks, could this be due to the meds she is on ( Cellcept ) or just another symptom that comes with BD, does anyone know?...

My daughter is suffering anxiety attacks, could this be due to the meds she is o...

tamirra

•12 years ago

6 Replies

OFF TOPIC - droolworthy canes

But. of course, I can post a picture here!

devonshiredumpling

•12 years ago

7 Replies

You know you have Behçet’s Disease when ...

This is the other 'joke' off the American BDA - again apologies if I've broken copyright (I'm not saying this my work) Lesley 1. You have your doctor’s...

This is the other 'joke' off the American BDA - again apologies if I've broken c...

lesleyg

•12 years ago

5 Replies

ALPHABET FOR Behçet's Patients

This isn't a question but I find it easier to look back on threads through questions. Lesley When I was at the doctors on Monday he gave me his mobile...

This isn't a question but I find it easier to look back on threads through quest...

lesleyg

•12 years ago

19 Replies

A Thank You

A great thanks for all the support from you when I asked my question about often feeling with this disease medical professionals sometimes dont believe your...

A great thanks for all the support from you when I asked my question about often...

Jazzy21

•12 years ago

10 Replies

Where were you diagnosed and how long did it take for you to get a diagnosis?

Hi, I'm a member of the British Association of Sexual Health and HIV (BASHH). Recurrent vulval ulceration is something myself and my colleagues nationally...

Hi, I'm a member of the British Association of Sexual Health and HIV (BASHH)....

BASHH1

•12 years ago

9 Replies

Pain like Shingles

Hi fellow Behcet sufferers I am quite new to this forum but wanted to ask if any other Behcet sufferers have a neuralgic pain around the face and side of...

Hi fellow Behcet sufferers I am quite new to this forum but wanted to ask if...

bailey23

•12 years ago

9 Replies

starting methotrexate injections after being on methotrexate tablets

Hi there Just about to start methotrexate injections having been on methotrxate tablets for 6 months and wondered if anyone else has been in the same...

Hi there Just about to start methotrexate injections having been on methotrxa...

andreafm

•12 years ago

1 Reply

I am of Irish/German heritage and the Rheumatologist thinks that is enough for him to say this isn't Behcet's.

My primary care MD disagrees and says there are many who only know what they learned many years ago in med school or are just misinformed. Am about to do a...

My primary care MD disagrees and says there are many who only know what they lea...

newbeginning

•12 years ago

12 Replies

Confirmational Bias

This is not really a question but wanted to put it up here for anyone who thinks they might have Behcet's Disease but aren't sure. I was extolling the...

This is not really a question but wanted to put it up here for anyone who thinks...

lesleyg

•12 years ago

5 Replies

Problems with the Liver?

I have a very high GGT blood result.My Consultant thinks this maybe an autoimmunie problem with my Liver,has anyone had experience in this area?

I have a very high GGT blood result.My Consultant thinks this maybe an autoimmun...

Dundee1963

•12 years ago

3 Replies

Feelings

I have just been to see my rheumatologist today. After all the trouble I had at the Southern General when I lost my peripheral vision. I thought she should...

I have just been to see my rheumatologist today. After all the trouble I had at...

Jazzy21

•12 years ago

10 Replies

Re What's happening in Europe

Read about the latest information on Rare Diseases in the European Arena at www.eurordis.org

Read about the latest information on Rare Diseases in the European Arena at www....

UKADMIN

Partner•12 years ago

2 Replies

LIFESTYLE/LIFE IN GENERAL - A COMMENT, NOT A QUESTION. Student finance.

I would just like to say; student finance forms, grrrrrrrrrrrrrrrrrr, aaaaaaarrrrrrrrgh & bleurgh. There, that's better.

I would just like to say; student finance forms, grrrrrrrrrrrrrrrrrr, aaaaaaarr...

Hidden

•12 years ago

5 Replies

Is this behcets

I was admitted to hospital Thursday as I have really aggressive genital ulcers and was given antibiotics through a drip until Saturday then I had to take them...

I was admitted to hospital Thursday as I have really aggressive genital ulcers a...

evo74

•12 years ago

3 Replies

Board Organisation - for input by both Admin and Members

I know from some private messages and some public comments that there are a few organisational suggestions for how the board is laid out. In the first...

I know from some private messages and some public comments that there are a few ...

devonshiredumpling

•12 years ago

11 Replies

i sorry,but i would like to know how many men are on this bs society

bobpink

•12 years ago

3 Replies

Steroid and hunger question - where did it go?

I'm sure I read a question and about steroids, hunger and weight gain yesterday but I can't see it today.

I'm sure I read a question and about steroids, hunger and weight gain yesterday ...

Hidden

•12 years ago

13 Replies

Peripheral vision loss and feeling down

Thank so very much for all the help I received I truly owe my life and well being to you all on this forum. Thank God for it.

Thank so very much for all the help I received I truly owe my life and well bein...

Jazzy21

•12 years ago

2 Replies

What is the views on behcets being hereditary??

I know that BD comes from the 'silk road' but as far as im aware I have no family from that part of the world...I have noticed that my 5 year old son (6...

I know that BD comes from the 'silk road' but as far as im aware I have no famil...

dawnie2750

•12 years ago

5 Replies

Depressed After Losing Peripheral Vision Loss

I am feeling so low after 10 days and no ideas as to why i have lost my peripheral vision and my normal vision is reduced. All MRIs, CT scans and angiograms...

I am feeling so low after 10 days and no ideas as to why i have lost my peripher...

Jazzy21

•12 years ago

9 Replies

I have a behchet sindrome. Doctors said because of this my eyes have no tears and they cant get wet, they dry. Artificial tears dont help.

I have a behchet sindrome. Doctors said because of this my eyes have no tears and they cant get wet, they dry. I have a constant pain in my eyes on their...

I have a behchet sindrome. Doctors said because of this my eyes have no tears an...

zlato34

•12 years ago

6 Replies

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for September 2012

Having a bad day!

Hi every1, i have recently been diagnosed with mild Behcet's (doesn't feel very mild), the doc has said that it wont get any worse

Extremely sore mouth and throat with ulcers - remedies?

Birmingham Centre of Excellence Support Worker

Birmingham Centre of Excellence Support Worker

Anyone been told they have volvodynia?

What sort of auto-immune disease?

Advice- newbie

Anxiety attacks

OFF TOPIC - droolworthy canes

You know you have Behçet’s Disease when ...

ALPHABET FOR Behçet's Patients

A Thank You

Where were you diagnosed and how long did it take for you to get a diagnosis?

Pain like Shingles

starting methotrexate injections after being on methotrexate tablets

I am of Irish/German heritage and the Rheumatologist thinks that is enough for him to say this isn't Behcet's.

Confirmational Bias

Problems with the Liver?

Feelings

Re What's happening in Europe

LIFESTYLE/LIFE IN GENERAL - A COMMENT, NOT A QUESTION. Student finance.

Is this behcets

Board Organisation - for input by both Admin and Members

i sorry,but i would like to know how many men are on this bs society

Steroid and hunger question - where did it go?

Peripheral vision loss and feeling down

What is the views on behcets being hereditary??

Depressed After Losing Peripheral Vision Loss

I have a behchet sindrome. Doctors said because of this my eyes have no tears and they cant get wet, they dry. Artificial tears dont help.

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