Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,492 members•4,422 posts

All posts for January 2017

Worst flare ups in 10. Years...

Genitle ulçers 2 the size of fifty pence peices and they are on the side so all movement will make it bleed. Arrrrghh.. my eyes feel like they are bruised at...

Genitle ulçers 2 the size of fifty pence peices and they are on the side so all ...

Pbearman

•8 years ago

3 Replies

Behçet's while pregnant

Does anyone know what it is like to have this disease and being/getting pregnant?? Risks?

Does anyone know what it is like to have this disease and being/getting pregnant...

Arcmacjac

•8 years ago

15 Replies

No luck but bad luck

Did I really get diagnosed with breast cancer, while already dealing with having bechets. I did. I'm in shock. Just complete shock!

Did I really get diagnosed with breast cancer, while already dealing with having...

Jennifer4284

•8 years ago

11 Replies

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Chronic Fatigue

Hi I'm Gerry .im a 59 yr old male. I have chronic fatigue for 15 years. I'm mostly housebound. In bed from 12 at night till 6/7 next evening and sometimes for...

Hi I'm Gerry .im a 59 yr old male. I have chronic fatigue for 15 years. I'm mos...

gerry59

•8 years ago

4 Replies

Natural supplements!

I recently decided to stop taking colchicine because I was experiencing hair loss.. Which I am not okay with.. And was wondering if anyone has some suggestions...

I recently decided to stop taking colchicine because I was experiencing hair los...

Rhiannon-lee

•8 years ago

8 Replies

Surgery? The effects on Behcets? Anyone?

Have any of you here experienced adverse reactions or complications of major surgery whilst dealing with Behcets? I am due for kidney removal (cancer) in a few...

Have any of you here experienced adverse reactions or complications of major sur...

ambersorganics

•8 years ago

13 Replies

Newly diagnosed!

Hi! I am 23 and have been diagnosed with Behçet's for maybe a year now. It took my doctors two very painful flair ups before they figured out what was wrong...

Hi! I am 23 and have been diagnosed with Behçet's for maybe a year now. It took ...

Rhiannon-lee

•8 years ago

6 Replies

Behcets and strokes

Evening I would love to hear from anyone about behcets and strokes. As o had a stroke back last year and also I have crohns in my small bowel. Would like to no...

Evening I would love to hear from anyone about behcets and strokes. As o had a s...

Marie2169

•8 years ago

7 Replies

Nuro behcets

Hi new to this. I have behcets. I had a stroke in may last year. If it was coursed by the syndrome. What treatment is there, also am I like to have another. I...

Hi new to this. I have behcets. I had a stroke in may last year. If it was cours...

Marie2169

•8 years ago

1 Reply

What causes a flare up?

Hi I'm new... just diagnosed with BD after a YEAR of seeing 14 different doctors and countless diagnoses. Until finally an oral surgeon said BD. If this is...

Hi I'm new... just diagnosed with BD after a YEAR of seeing 14 different doctors...

Arcmacjac

•8 years ago

14 Replies

mouth ulcers

hello, I am dealing with ulcers in my mouth. about 2 or 3 from what i can see. They are in really crappy spots one on the side of my tongue so its constantly...

hello, I am dealing with ulcers in my mouth. about 2 or 3 from what i can see. T...

Jenniferlynn43

•8 years ago

8 Replies

In a flare

Hi All, it's been a little while since I posted, I'm in a terrible flare my joints are hurting, eyes are blurry, neck, shoulder, and back are killing me....

Hi All, it's been a little while since I posted, I'm in a terrible flare my join...

Netsbets2016

•8 years ago

4 Replies

EE diagnosis.

Hi my 10yr old daughter has a probable bd diagnosis and had a biopsy a few months ago. They discovered EE, another rare condition that apparently isn't linked....

Hi my 10yr old daughter has a probable bd diagnosis and had a biopsy a few month...

Hannah86

•8 years ago

3 Replies

What to ask to be tested for

Hi guys, I haven't yet been diagnosed but have suffered all the same bad symptoms for many years but at 36 I am at my worst point. I am male very fit and...

Hi guys, I haven't yet been diagnosed but have suffered all the same bad symptom...

Hampo81

•8 years ago

5 Replies

Mental man 007

Mental. Fucking hate it... Why. Been diagnosed since 2006. Got blood clots and had a stroke. Now it's the nuro side of things. I am 38 and sumtimes feel 80....

Mental. Fucking hate it... Why. Been diagnosed since 2006. Got blood clots and h...

Pbearman

•8 years ago

3 Replies

Inner quakes

Hi all, Not sure where to turn so hope someone can help? Even my GP is scratching his head with this... I have diagnosed Behcets, Addisons, Dercums and IBS...

Hi all, Not sure where to turn so hope someone can help? Even my GP is scratchi...

smitten500

•8 years ago

6 Replies

Anal fistulas

Anyone get fistulas with their behcets? Doctors say it's unrelated but they only open when I have a behcets flare and close when the flare ends. I now have...

Anyone get fistulas with their behcets? Doctors say it's unrelated but they only...

clevelandnative64

•8 years ago

2 Replies

Fatigue!

I'm feeling so tired at the moment and I can't seem to shift it! I'm knackered after work and wanting to go to bed as soon as I'm home but I try not to and...

I'm feeling so tired at the moment and I can't seem to shift it! I'm knackered a...

Soph19

•8 years ago

2 Replies

Flare/ tiredness

Hi everyone, thought I would have a little moan on here, as I know other people with Behcets will understand me. Was diagnosed with behcets about 15 years...

Hi everyone, thought I would have a little moan on here, as I know other people ...

mariarich41

•8 years ago

8 Replies

Gastro without ulcers

Do any of you have gastrointestinal symptoms with no changes actually in your intestines? Doctor says I have IBS on top of behcets but IBS is not a real...

Do any of you have gastrointestinal symptoms with no changes actually in your in...

clevelandnative64

•8 years ago

8 Replies

Question for women

Does anyone experience flare ups before and during their period? I know some symptoms I have are due to being on my period but my lower back pain, skin...

Does anyone experience flare ups before and during their period? I know some sym...

Soph19

•8 years ago

13 Replies

How do you describe your pain?

I have been struggling without a concrete diagnoses for a little over four years now, but my doctor is hedging his bets on Behcet's. I don't have any eye or...

I have been struggling without a concrete diagnoses for a little over four years...

splush133

•8 years ago

4 Replies

AIP advice

Hi guys, I am just one week into the AIP diet, it's the first time I have did any sort of diet in my 36 year life, I have been on doxycycline for well over a...

Hi guys, I am just one week into the AIP diet, it's the first time I have did an...

Hampo81

•8 years ago

4 Replies

Diagnosed with bechets 3 years ago still suffering symptoms even though I'm on treatment.is anyone else the same?

Hi I was diagnosed with bechets 3 years ago .I had suffered with Ill health on and off for years .my main symptoms were skin sores bad sores and ulcers in...

Hi I was diagnosed with bechets 3 years ago .I had suffered with Ill health on a...

Jaynep

•8 years ago

38 Replies

So tired

Does anyone else suffer extreme tiredness? Bit of a vicious circle really, I need to get my fitness levels up, but then it triggers a flare and I end up in...

Does anyone else suffer extreme tiredness? Bit of a vicious circle really, I nee...

sam0511

•8 years ago

23 Replies

Unsure

Hi. My daughter is 8 and has had lots of different 'problems' since the age of 3. She was first diagnosed with uvitus when she was 5 and was on a stronger...

Hi. My daughter is 8 and has had lots of different 'problems' since the age of 3...

Dawnf

•8 years ago

11 Replies

Im new here and unsure of Bechet's diagnosis

Hello, my 13 year old son was recently very ill in hospital with pneumonia, and then he developed ulcers/blisters in his mouth and throat - his lips were all...

Hello, my 13 year old son was recently very ill in hospital with pneumonia, and ...

SanJoy1

•8 years ago

8 Replies

Bechets syndrome

Happy new year everyone. I ain't been on here much because I have been struggling . I have now been put on azathioprine 100mg a day and prensilone (sorry for...

Happy new year everyone. I ain't been on here much because I have been strugglin...

pete11

•8 years ago

3 Replies

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for January 2017

Worst flare ups in 10. Years...

Behçet's while pregnant

No luck but bad luck

Chronic Fatigue

Natural supplements!

Surgery? The effects on Behcets? Anyone?

Newly diagnosed!

Behcets and strokes

Nuro behcets

What causes a flare up?

mouth ulcers

In a flare

EE diagnosis.

What to ask to be tested for

Mental man 007

Inner quakes

Anal fistulas

Fatigue!

Flare/ tiredness

Gastro without ulcers

Question for women

How do you describe your pain?

AIP advice

Diagnosed with bechets 3 years ago still suffering symptoms even though I'm on treatment.is anyone else the same?

So tired

Unsure

Im new here and unsure of Bechet's diagnosis

Bechets syndrome

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