Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,478 members•4,420 posts

All posts for April 2014

An inspiring story

Living with a serious and debilitating medical condition long term is pretty damn hard. You can forgive anyone for getting down and depressed at times. But...

Living with a serious and debilitating medical condition long term is pretty dam...

•11 years ago

Can't take no more of these headaches ;(

My headaches are getting worse every time they come , this one has been three weeks in , the pain is bad behind eyes and forehead , when I close eyes the room...

My headaches are getting worse every time they come , this one has been three we...

•11 years ago

NW Support Group?

Hi, I am looking for a support group near Seattle for Behcet's or even just autoimmune disease. I have tried looking, but I am having trouble finding anything

Hi, I am looking for a support group near Seattle for Behcet's or even just aut...

•11 years ago

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Undergoing investigation after 10 years... Just wanting to know if anyone has similar symptoms to mine.

Hi all, it's great reading this forum listening to other people's experiences- finally people who understand! It all started 10 years ago when I had a circular...

Hi all, it's great reading this forum listening to other people's experiences- f...

•11 years ago

I have a weird sensation of my feet being wet even when they're dry. Anyone else or just me?

•11 years ago

Hair falling out

Hi all iv been on azathioprine two wks tomorrow ...im worrying my hair is falling out ..my mom said I looze dead hair everyday everybody does ..I dont know...

Hi all iv been on azathioprine two wks tomorrow ...im worrying my hair is fallin...

•11 years ago

Behcets and swollen lymph nodes?

Hello everyone. I am a 30 year old female and was diagnosed with Behcets 3 years ago. It's been an extremely long three years! I have had recurrent flares, on...

Hello everyone. I am a 30 year old female and was diagnosed with Behcets 3 years...

•11 years ago

Numbness taking over...

Hi folks, it's midnight here in Texas, and I have been tentatively diagnosed with Behcet's, although there is some area for reconsideration, lupus or MS is a...

Hi folks, it's midnight here in Texas, and I have been tentatively diagnosed wit...

•11 years ago

New to BD

Hey guys, was recently diagnosed with BD after 8 months of trouble. I am 27 and kind of nervous about the whole thing. I was kind of wondering what my like...

Hey guys, was recently diagnosed with BD after 8 months of trouble. I am 27 and ...

•11 years ago

Anyone experiencing breathing issues with slight wheezing? I use Advair; proair; etc with no relief but PFT was normal.

•11 years ago

just a quick update

im 18 years old .have sufferd with mouth /genital ulcers for some years now ...im under the birmingham behcets clinic at city hospital ..the other wk i posted...

im 18 years old .have sufferd with mouth /genital ulcers for some years now ...i...

•11 years ago

Support Worker contact

Just a quick note to say the Support Workers at London and Birmingham who have been working very hard over the last year are away on holiday for the next week...

Just a quick note to say the Support Workers at London and Birmingham who have b...

Partner•11 years ago

London Support Group

The next London Support group is scheduled for 15 May at 3pm. at the Centre for Pyschosynthesis (just down the road from London Bridge Station) 92-94 Tooley...

The next London Support group is scheduled for 15 May at 3pm. at the Centre for ...

•11 years ago

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Chinese Medicine

Just wondering if anybody has been down the Chinese medicine road, and if there were any promising results? Cheers

Just wondering if anybody has been down the Chinese medicine road, and if there ...

•11 years ago

Centre of Ecellence

Had my second appointment at the London centre, it feels great speaking not only to doctors but patients who know what you are talking about. Also met Jean...

Had my second appointment at the London centre, it feels great speaking not only...

•11 years ago

Having new pains and wondering if anyone else has experienced them and can help me in figuring out what's causing them!

I have Behcet's Disease, I am showing new symptoms and I don't know if they're related to the Behcet's but I thought I would ask if anyone else has experienced...

I have Behcet's Disease, I am showing new symptoms and I don't know if they're r...

•11 years ago

Genetic Alliance UK, My Condition, My DNA

Genetic Alliance UK are looking for patients and their families who would be willing to take part in a new study, My Condition, My DNA and we’re hoping that...

Genetic Alliance UK are looking for patients and their families who would be wil...

Partner•11 years ago

Any recommendations for Headaches during a flare?

Hi All, I have recently been diagnosed with Behcets after 5 years of investigations and thinking I had Crohns Disease. I am now on Colchicine twice a day and...

Hi All, I have recently been diagnosed with Behcets after 5 years of investigat...

•11 years ago

London Support Group

The next London Support Group is being held on Tuesday 15th May, 2014 at 3pm at our usual venue: The Centre for Phschosynthesis (just down the road from London...

The next London Support Group is being held on Tuesday 15th May, 2014 at 3pm at ...

•11 years ago

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any help for diet with behcets syndome ...

hi im 18 and i am under the behcets clinic at birmingham city hospital.....i have to of the symtons for behcets but because i havent got a 3rd they wont...

hi im 18 and i am under the behcets clinic at birmingham city hospital.....i hav...

•11 years ago

BEHCETS SUPPORT GROUP HEREFORD and WORCESTER

Hi All We have had some interest recently in a new support group for Hereford / Worcester with a possible venue being in the Malvern area. We are looking at...

Hi All We have had some interest recently in a new support group for Hereford ...

•11 years ago