Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,232 members • 4,325 posts

All posts for June 2013

Feeling pretty downhearted now.

Hi everyone! Just a quick question really (am looking for some reassurance) I've just come back off holiday to find some mail. The Birmingham CoE have...

Hi everyone! Just a quick question really (am looking for some reassurance) I...

MusicFreak2396

•11 years ago

13 Replies

Anyone suffering from bad headaches/migraines??

Iv recently started suffering with bad headaches/migraines. Major throbbing on one side. Iv never suffered with this, and have had behcets for ten years. Is...

Iv recently started suffering with bad headaches/migraines. Major throbbing on o...

Dezie

•11 years ago

9 Replies

Is there anyone here with Behcets from Australia?

atalay

•11 years ago

21 Replies

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Help !!!!!!!!

I can't begin to explain the past year I have has. Now only one part of my body remains "untouched". My eyes. I always say to my self if it goes to my eyes I'm...

I can't begin to explain the past year I have has. Now only one part of my body ...

Rlopeznyc

•11 years ago

12 Replies

Pulmonary issues...

Hamzaoui et al.: Pulmonary manifestations in Behçet disease: impaired natural killer cells activity. Multidisciplinary Respiratory Medicine 2013 8:29....

Hamzaoui et al.: Pulmonary manifestations in Behçet disease: impaired natural k...

AusBehcets

•11 years ago

Be the first to reply

Has anyone suffered with sudden onset of sweating?

Coll1609

•11 years ago

11 Replies

How to get referred to another consultant?

I am newly diagnosed after having severe neurological involvement with behcets and have other symptoms including mouth and genital ulcers as well as joint pain...

I am newly diagnosed after having severe neurological involvement with behcets a...

lauren92

•11 years ago

9 Replies

Help my 17 year old daughter has numerous vaginal ulcers - an recommendations re best pain management?

Is there anyone in Australia with teenager suffering from behcets? It would be nice to chat to someone in same position. Marilyn

Is there anyone in Australia with teenager suffering from behcets? It would be n...

Mazmerelda

•11 years ago

42 Replies

London Support Group Reminder

I hope you are not tired of me writing in again to remind all of you that we have our first official London Support Group happening 1 week from today! We...

I hope you are not tired of me writing in again to remind all of you that we hav...

Hidden

•11 years ago

2 Replies

what foods should you eat.

jumblesale

•11 years ago

12 Replies

Itchy Feet.......

Does anyone else suffer from really itchy feet and legs. I am being driven to frustration at the moment and so much worse at night. I am scratching till I...

Does anyone else suffer from really itchy feet and legs. I am being driven to f...

bailey23

•11 years ago

7 Replies

Tips for coping with bad flare?

Hi all. I'm newly diagnosed but have been sick for many many years. About to start Humira at the end of July if the application gets accepted by the hospital...

Hi all. I'm newly diagnosed but have been sick for many many years. About to sta...

BusyJen

•11 years ago

4 Replies

Can shortness of breath and elevated liver function be caused by Behcets?

I was recently diagnosed with Behcets after almost 10 years of mouth sores, skin blisters, and lesions misdiagnosed as herpes. I recently had blood work done...

I was recently diagnosed with Behcets after almost 10 years of mouth sores, skin...

Elanglais

•11 years ago

10 Replies

From the mouth's of babes !

I was sitting in my downstairs bedroom on my bed as usual surfing away on my computer and trying to find a suitable outfit for my latest acquisition of a...

I was sitting in my downstairs bedroom on my bed as usual surfing away on my com...

xandii

•11 years ago

17 Replies

strange sensation in my neck

This is a bit hard to describe, but I will try-- over the last while I've been noticing something really strange happening-- every once and a while, I will...

This is a bit hard to describe, but I will try-- over the last while I've been n...

behcetshurtsbeyondwords

•11 years ago

17 Replies

Does anyone else suffer from what feels like Erythema Nodosum, from which I have suffered in the past, but without the visible skin lesions?

There is no visible evidence of EN but it feels the same.

Ktmc99

•11 years ago

7 Replies

Does anyone suffer from pathergy in the form of the blackening of skin cells?

Summer last year I went to a gynae as I had noticed a series of black marks on my labia. It almost looked as in someone had taken a felt pen and scribbled on...

Summer last year I went to a gynae as I had noticed a series of black marks on m...

Caillycakes

•11 years ago

3 Replies

Arthritis attacks?

Hi again Has anyone got attacks around the cervical area of the spine between shoulder blades and the base of the skull?? They feel like a wall of bricks is...

Hi again Has anyone got attacks around the cervical area of the spine between s...

Lara1

•11 years ago

24 Replies

Buprenorphine Patches

I've been using these patches for the past couple of years and to date have had no obtuse side affects. Does anyone else use them or have used them in the past...

I've been using these patches for the past couple of years and to date have had ...

joshua98

•11 years ago

9 Replies

What does that mean?

What does this mean, I attended the centre of excellence at Dudley rd hospital, not impressed. And was told I probably have Bechets. What does this mean, there...

What does this mean, I attended the centre of excellence at Dudley rd hospital, ...

Cherryann

•11 years ago

7 Replies

Does anyone suffer with tinitus? It seems to be more prominent after my latest flare of mouth and genital ulcers xx

Glitter17

•11 years ago

10 Replies

LDN low dose naltrexone

Hello spreading my good news. After a horrible bed ridden year of major fatigue and pain. I took the decision to stop methotrexate as I'd got worse not...

Hello spreading my good news. After a horrible bed ridden year of major fatigue...

frisky

•11 years ago

17 Replies

TO NEW MEMBERS, & THOSE WHO MAY HAVE FORGOTTEN

If you do not wish your posts to be VISIBLE TO EVERYONE, you can select the option 'visible only to members of this community' before you post. This is worth...

If you do not wish your posts to be VISIBLE TO EVERYONE, you can select the opti...

Hidden

•11 years ago

1 Reply

Seven year old had glandular fever a year ago got better now been ill for 11 months, with mouth ulcers, joint pain, could it be.....

Hi we are seeing GOSH at moment as local hospital believe some form of vasculitius, we are not getting anywhere with them, bloods not really showing much on...

Hi we are seeing GOSH at moment as local hospital believe some form of vasculiti...

Motherof4

•11 years ago

16 Replies

A LETTER TO PATIENTS WITH CHRONIC DISEASE, THOUGHTS OF A PRIMARY CARE PHYSICIAN

I found this very interesting and thought I would share:- .“A Letter to Patients With Chronic Disease by Rob on July 14, 2010 • Dear Patients: You...

I found this very interesting and thought I would share:- .“A Letter to Pat...

Hidden

•11 years ago

11 Replies

how do you get your GP to think of Behcet's Syndrome?

I have Fibromyalgia, M.E. and a number of other autoimmune illnesses and suffer from a number of the symptoms which are similar to Bechet's Syndrome. The...

I have Fibromyalgia, M.E. and a number of other autoimmune illnesses and suffer ...

khidax

•11 years ago

4 Replies

Behcet's progression after vaccination?

Hi All, I am very glad I found this site.. It seems to be filled with very good information. I'd like to share my story and ask for your opinion.. It would be...

Hi All, I am very glad I found this site.. It seems to be filled with very good...

Lara1

•11 years ago

12 Replies

Lactose Intolerance

does anyone know if it is something that is linked with bechets? I've bee looking on internet and have aksed doctors and am not getting any where at all :-(...

does anyone know if it is something that is linked with bechets? I've bee looki...

nickyclem

•11 years ago

7 Replies

London Support Group

Hello again Everyone, We've had such a good response so far for our forthcoming Behcet's London Support Group. I just wanted to re post a reminder and also...

Hello again Everyone, We've had such a good response so far for our forthcomi...

Hidden

•11 years ago

9 Replies

24 HRS IN A&E!!

Well that was the most embarrassing thing to watch! Trust me I suffer badly with my pain but that guy just made us all look like we're faking it!!! Sorry if...

Well that was the most embarrassing thing to watch! Trust me I suffer badly with...

Roxybaby

•11 years ago

17 Replies

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Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for June 2013

Feeling pretty downhearted now.

Anyone suffering from bad headaches/migraines??

Is there anyone here with Behcets from Australia?

Help !!!!!!!!

Pulmonary issues...

Has anyone suffered with sudden onset of sweating?

How to get referred to another consultant?

Help my 17 year old daughter has numerous vaginal ulcers - an recommendations re best pain management?

London Support Group Reminder

what foods should you eat.

Itchy Feet.......

Tips for coping with bad flare?

Can shortness of breath and elevated liver function be caused by Behcets?

From the mouth's of babes !

strange sensation in my neck

Does anyone else suffer from what feels like Erythema Nodosum, from which I have suffered in the past, but without the visible skin lesions?

Does anyone suffer from pathergy in the form of the blackening of skin cells?

Arthritis attacks?

Buprenorphine Patches

What does that mean?

Does anyone suffer with tinitus? It seems to be more prominent after my latest flare of mouth and genital ulcers xx

LDN low dose naltrexone

TO NEW MEMBERS, & THOSE WHO MAY HAVE FORGOTTEN

Seven year old had glandular fever a year ago got better now been ill for 11 months, with mouth ulcers, joint pain, could it be.....

A LETTER TO PATIENTS WITH CHRONIC DISEASE, THOUGHTS OF A PRIMARY CARE PHYSICIAN

how do you get your GP to think of Behcet's Syndrome?

Behcet's progression after vaccination?

Lactose Intolerance

London Support Group

24 HRS IN A&E!!

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive