Hi my name is Janine and I am writing to introduce myself as Support Worker for Birmingham Centre of Excellence. I started working for Behcets Patients Centres Ltd on the 17th September and have so far spent time understanding Behcets, the society and reading this forum to get an insight into patients experiences. My first clinic will be at City hospital, Birmingham on Friday the 5th October 2012.
My role as support worker will be to provide an independent advocacy service to patients and families with regard to benefits advice and assistance with claim forms where necessary, to make referral’s and signpost to other healthcare professionals for any further assistance required (i.e.: Occupational therapists, social workers and psychological support), to provide lifestyle support and information about the disease to newly diagnosed patients and to offer practical support group work.
I am currently trying to make links with organisations to raise awareness of the disease and to access support groups that maybe available for patients living with long term conditions.
Thank you for taking the time to read this and I look forward to hearing from you soon.