I'm a member of the British Association of Sexual Health and HIV (BASHH). Recurrent vulval ulceration is something myself and my colleagues nationally see a lot of and usually when we haven't diagnosed a viral infection like Herpes Simplex after a few episodes our suspicions turn to Behcets.
Unfortunately some people can get stuck in the system; if anyone wants to comment on this BASHH does have its own health unlocked forum where you can share your experiences. I look forward to hearing your views (good or bad!). - we're on the main health unlocked list under Sexual Health.
(This is a personal blog/comment and not made formally on behalf of BASHH)