Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,554 posts

All posts for September 2022

Quick update

Hi all, quick updates in this post, I know it’s been a while since I’ve last made a post. Saw eye specialist and he thinks my eyes are more dry due to...

Hi all, quick updates in this post, I know it’s been a while since I’ve last mad...

JennaShi

•2 years ago

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Reaction to 4th covid vaccine (Moderna)

Just to say I had a 4th covid vaccination on Saturday (17 Sept) along with the flu jab, and today have woken up to a lupus flare - the first I have had in a...

Just to say I had a 4th covid vaccination on Saturday (17 Sept) along with the f...

Larks0ng

•2 years ago

53 Replies

Collagen protein or supplements: Can they affect lupus blood test results

Hi, i'll be doing some standard tests to see if i have lupus. I take supplements and collagen to feel better. I was wondering if that might change results on a...

Hi, i'll be doing some standard tests to see if i have lupus. I take supplements...

blueblades

•2 years ago

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spine pain and headaches

hello everyone, I’ve been struggling with upper spine pain which goes into my neck and back of my head. It looks like my upper spine has a little bit of a...

hello everyone, I’ve been struggling with upper spine pain which goes into my n...

Leenie0811

•2 years ago

6 Replies

Finally I have a Sight long distance Reading!!

Hi everyone I, Long story short I recently had cataract surgery in April which was a bodge job that ended up slicing my corneal layer . After 5months into it...

Hi everyone I, Long story short I recently had cataract surgery in April which ...

KnitSewPurl

•2 years ago

3 Replies

Life insurance claim

Hi Unusual query. I have life insurance that I’ve had for years. It covers SLE within critical illness, but only certain types. Despite being diagnosed in...

Hi Unusual query. I have life insurance that I’ve had for years. It covers SLE ...

mainlyconfused

•2 years ago

1 Reply

fabulous news!

https://www.theguardian.com/science/2022/sep/15/scientists-hail-autoimmune-disease-therapy-breakthrough-car-t-cell-lupus?CMP=Share_iOSApp_Other

https://www.theguardian.com/science/2022/sep/15/scientists-hail-autoimmune-disea...

Lupusrelative

•2 years ago

4 Replies

Azathioprine hydroxychloroquine steroids and dental extraction

Hello lovely people. I am due to have a dental root extraction and are on the above drugs. I am finding it hard to get to see my rheumatologist so in the...

Hello lovely people. I am due to have a dental root extraction and are on the ab...

cakerbaker

•2 years ago

17 Replies

The Guardian article Lupus cure

Anyone else seen this? https://www.theguardian.com/science/2022/sep/15/scientists-hail-autoimmune-disease-therapy-breakthrough-car-t-cell-lupus. Wondering...

Anyone else seen this? https://www.theguardian.com/science/2022/sep/15/scientis...

Paulinaann

•2 years ago

20 Replies

diagnosed at last

After 20 years of fighting I have finally got an official diagnosis of non positive ana lupus. Every time I got anywhere with a consultant they left and I had...

After 20 years of fighting I have finally got an official diagnosis of non posit...

Tinkerjack1912

•2 years ago

25 Replies

Shingles again , so over this! Thinking of getting the vaccine- do the shingles vaccines work ?

I’m 59 with Sjögrens and a number of chronic conditions. I’m going through a bout of shingles after a bad ear infection (5 sets of antibiotics later). Ended...

I’m 59 with Sjögrens and a number of chronic conditions. I’m going through a bo...

25clai

•2 years ago

24 Replies

Swollen vein

The vein on my arm is a bit swollen after IV, it's been 4 weeks now, it stopped hurting a 3 weeks ago but it's still a bit hard, will it go away on its own or...

The vein on my arm is a bit swollen after IV, it's been 4 weeks now, it stopped ...

Thenewguy9

•2 years ago

1 Reply

can you have a flare and have normal bloods??

I am so poorly at the moment and had my bloods done and there fine I feel like I’m going mad!

I am so poorly at the moment and had my bloods done and there fine I feel like ...

Sammymoat1986

•2 years ago

17 Replies

question regarding medication refill

Hi, who’s responsibility is it for refills? situation: We moved and I updated new pharmacy address. I tried multiple times to switch meds to new pharmacy...

Hi, who’s responsibility is it for refills? situation: We moved and I updated...

JennaShi

•2 years ago

20 Replies

Food Standards Agency warns vulnerable consumers about ready to eat smoked fish causing Listeria

The Food Standards Agency, Food Standards Scotland and the UK Health Security Agency have issued advice to vulnerable groups of consumers such as those with...

The Food Standards Agency, Food Standards Scotland and the UK Health Security Ag...

Chanpreet_Walia

LUPUS UK•2 years ago

10 Replies

Sjorgens help...

Sjorgens help...I have a very dry mouth and struggling to eat as it hurts the roof of my mouth this the worst I've ever had and been going a couple days. Any...

Sjorgens help...I have a very dry mouth and struggling to eat as it hurts the r...

Zeberdee1

•2 years ago

17 Replies

Persistent Low Grade Fever and Worse Pain When Sitting

Hi everyone! This is my second time posting on here. I want to say thank you for the amazing answers and support I got on my last question. I am learning so...

Hi everyone! This is my second time posting on here. I want to say thank you for...

Hidden

•2 years ago

10 Replies

Am I going mad? Or is this the evilness of lupus ?

I spent most of June 2022 in hospital due to massve skin flare where I had to prise myself off of my bedsheets with blood dripping out of my sores yeah tell me...

I spent most of June 2022 in hospital due to massve skin flare where I had to pr...

Pegy

•2 years ago

5 Replies

Reapplying for enhanced personal independent payment

I am currently receiving standard PIP. Unfortunately following heart surgery I am now under care of heart failure team. My mobility made worse by...

I am currently receiving standard PIP. Unfortunately following heart surgery I a...

Jamaica21

•2 years ago

6 Replies

Night thirst and dry mouth

Hello everyone. I have a diagnosis of lupus, am under the care of a rheumatologist and a gastroenterologist and have recently been prescribed methotrexate....

Hello everyone. I have a diagnosis of lupus, am under the care of a rheumatolog...

Ophelia1

•2 years ago

19 Replies

Malar rash

hi everyone,hope you are all doing ok? I have noticed when blowdrying my hair my face rash appears and i get a blinding headache!is it just me?🙈

hi everyone,hope you are all doing ok? I have noticed when blowdrying my hair m...

Socialbutterfly00

•2 years ago

6 Replies

lupus flare or long Covid?

anyone else wrestling with this one? I assumed a flare but my bloods don’t suggest that. Although to be fair this has often been the case in the past. My...

anyone else wrestling with this one? I assumed a flare but my bloods don’t sugge...

Marley

•2 years ago

14 Replies

Suspected SLE/ Rheumatoid Arthritus diagnosis and Flexi work request

Hello After years of living with tiredness and joint pain, headaches and rashes - initially put down to menopause I have now been diagnosed as having...

Hello After years of living with tiredness and joint pain, headaches and rashes ...

kirstyannette

•2 years ago

2 Replies

horizontal dents on fingernails

Hi all, Thanks for all the information on this forum, it’s very helpful. In the last couple of months I have noticed horizontal dents on my fingernails. I...

Hi all, Thanks for all the information on this forum, it’s very helpful. In th...

KADM

•2 years ago

8 Replies

Volunteers required who have SLE and APS to take part in an online focus group discussion with researchers from University College, London

WE NOW HAVE ENOUGH VOLUNTEERS - THANK YOU TO EVERYONE WHO RESPONDED. We are working with researchers at University College London who will be conducting...

WE NOW HAVE ENOUGH VOLUNTEERS - THANK YOU TO EVERYONE WHO RESPONDED. We are wor...

Alida_Bennett

Partner•2 years ago

1 Reply

metoject pens

has naybody else on here had problems getting their prescription for meto pens fulfilled please, I have been trying for 4 weeks now, pharmacies cannot get any...

has naybody else on here had problems getting their prescription for meto pens f...

Poshcards

•2 years ago

3 Replies

Does anyne know what this rash is on both feet? Recently both feet have been aching.

anybody?

amylchamberlain96

•2 years ago

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Is it Lupus?

hello all good to meet you here. I am in the process after many years of battling inflammatory issues, of finally seeing a immunologist and rheumatologist in...

hello all good to meet you here. I am in the process after many years of battlin...

GottaAsk

•2 years ago

10 Replies

Scalp SLE diagnosed April 2021, conflicting/contradictory medications - any advice?

Hi I've had a biopsy which confirmed SLE for scalp last year in France (where I live).Having suffered health issues due to serious overmedication here before,...

Hi I've had a biopsy which confirmed SLE for scalp last year in France (where I ...

carorueil

•2 years ago

20 Replies

High Positive ANA Suddenly Negative - Still Struggling With Symptoms

Hi everyone! I will try to keep this as brief as I can, but it's a long story. I am 24, but have been experiencing medical issues since I was 15. It started...

Hi everyone! I will try to keep this as brief as I can, but it's a long story. I...

Hidden

•2 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2022

Quick update

Reaction to 4th covid vaccine (Moderna)

Collagen protein or supplements: Can they affect lupus blood test results

spine pain and headaches

Finally I have a Sight long distance Reading!!

Life insurance claim

fabulous news!

Azathioprine hydroxychloroquine steroids and dental extraction

The Guardian article Lupus cure

diagnosed at last

Shingles again , so over this! Thinking of getting the vaccine- do the shingles vaccines work ?

Swollen vein

can you have a flare and have normal bloods??

question regarding medication refill

Food Standards Agency warns vulnerable consumers about ready to eat smoked fish causing Listeria

Sjorgens help...

Persistent Low Grade Fever and Worse Pain When Sitting

Am I going mad? Or is this the evilness of lupus ?

Reapplying for enhanced personal independent payment

Night thirst and dry mouth

Malar rash

lupus flare or long Covid?

Suspected SLE/ Rheumatoid Arthritus diagnosis and Flexi work request

horizontal dents on fingernails

Volunteers required who have SLE and APS to take part in an online focus group discussion with researchers from University College, London

metoject pens

Does anyne know what this rash is on both feet? Recently both feet have been aching.

Is it Lupus?

Scalp SLE diagnosed April 2021, conflicting/contradictory medications - any advice?

High Positive ANA Suddenly Negative - Still Struggling With Symptoms

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