Survey of people with rheumatic conditions about ... - LUPUS UK


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Survey of people with rheumatic conditions about the fourth COVID 19 vaccination dose

Alida_Horne profile image
5 Replies

Please take a few moments to complete a questionnaire from RAIRDA (Rare Autoimmune Rheumatic Disease Alliance of which LUPUS UK is a member) regarding the fourth dose of COVID-19 vaccine

This is a survey of adults living with rheumatic conditions in the UK. We want to understand whether those who are eligible have been able to access a fourth dose of the coronavirus (COVID-19) vaccine as part of their COVID-19 vaccination schedule as well as gain insights on other important issues related to COVID-19.

A link to the questionnaire can be found below:

Thank you.

Kind regards


5 Replies
Willow1414 profile image

Hi Alida

I’d like to complete this survey , but the link dies not open for me ?

I’ve had 2 doses and the doctor gave me the booster on third , I have a letter to say I’m immusupressed and rheumatology letter to doctor saying I need third dose then booster .

I’ve had ratuxamab treatment recently . My doctor just says it’s the same dose (booster) yet I still have not been called for my forth booster , my last dose was last Nov ?

I’ve tried calling the doctors reception . They just I will be contacted in due coarse ????

Do you have any suggestions for me . As I feel it’s like bashing my head against a brick wall , I know my doctor but down than he gave me booster on third vaccine on my notes , I don’t know how to go about sorting this any more ?

Seems all correspondence over the years from my rheumatologist to practice doctors never gets acted on , or even read ?


Alida_Horne profile image
Alida_HorneAdministrator in reply to Willow1414

Hi Willow1414

I'm sorry the link did not work for you - I haven't heard of anyone else having an issue, so I wonder whether it is the particular browser you are using that may be causing an issue.

I have lifted the below link directly from the RAIRDA site, so hopefully this one will work:

As regards your query in relation to the fourth vaccine/booster, you can find our latest information at the link below. You will be called for the "spring booster" six months after your previous vaccine, but confusingly, you are eligible for it from three months after your last vaccine.

The other option is that you can call 119 who should be able to help you unpick the situation, hopefully.

If I can help further, please let me know.

Kind regards


Willow1414 profile image
Willow1414 in reply to Alida_Horne

Than you so much for the reply .

Sorry still cannot open the link ???

Thank you for the information on covid vaccines .


AgedCrone profile image
AgedCrone in reply to Willow1414

If you call 119…have your nhs number to hand….They can get your vaccination booster description changed to a third primary vaccination hence you will be able to get your 4th jab….. whatever they call it! It took about a month for them to come back to me with the change all done you can then check it on your Covid page on your NHS App.

Willow1414 profile image
Willow1414 in reply to AgedCrone

Hi AgedCrone .

Thank you so much for this information .


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