Recent uctd

[Penbles64]

Hi I’ve just been diagnosed with uctd with no information . Is there anything I can take to stay well , or doesn’t it work like that thank you

[LottieLou96]

Heya Penbles64,

Being newly diagnosed can be tough indeed and I hope your keeping well ☺️

UCTD as I'm sure you're aware is undifferentiated connective tissue disease, as your collection of symptoms and/or biochem markers of disease aren't high enough to place you into a defined AI category. For around 70 percent of those with UTCD will not have progress symptoms but for 30 percent they progress and are often checked yearly to see if they have fallen into a defined AI category.

Either way the management would really be based on your collection of symptoms. Often people also find vitamin d to be beneficial for bone health and muscle fatigue as many find they are deficient. For things like raynaud's, usually the GP can offer nifedipine initially which could help improve those symptoms. Others find a connection to new medication that have potentiated AI affects which can improve if stopped, with guidance and approval from a HCP of course.

It is honestly so unique to the individual, trial and error to see what works for you. But it's not a one size fits all approach I'm afraid. Treat the symptoms and get routine follow ups to ensure it isn't progressing or changing.

All the best,

Lottie

[Penbles64 in reply to LottieLou96]

Thank you lottie , that’s very interesting and helpful , i hope you are well at the moment I feel well apart from heart burn which I’m not sure is linked take care penbles64

[LottieLou96 in reply to Penbles64]

Hopefully a bit of gaviscon and a PPI from your GP might help with that. Or from the chemists.

Any other worries, then we're friendly enough bunch to air your concerns.

Stay safe

X lottie

[misty14]

Hi pebbles, welcome to the UCTD club. There are quite a few of us on here who are in it so ask anything you want. Usually people are put on HCQ to start with as it helps with fatigue and joint pain. It's a good way to see how you react and how the illness responds to it too. Did you get put on any treatment?.

I do hope the clinician who diagnosed you will see you again to see how your getting on.

Keep safe and well as possible. Xx

[Penbles64 in reply to misty14]

Hi Misty , I am not on any treatment as it’s so mild , but I have to get in touch with the rheumatologist if anything changes . Thank you for your reply and I hope your well xx

[misty14 in reply to Penbles64]

Hopefully it will stay that way for you Penbles. Glad your Rheumy will see you if it does change. Take care and keep safe.Xx

[Penbles64]

Thank you , hope all is well with you xx