Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,854 members • 28,196 posts

All posts for November 2018

Sleep deprived

Good morning dear lupies. Here I am again early hours of the morning after managing a full 2hrs of sleep again. I’m going crazy. Had my pain meds changed from...

Good morning dear lupies. Here I am again early hours of the morning after manag...

Here-we-go

•6 years ago

4 Replies

Emergency room again

I had successfully just gotten over some sort of virus - the super achy, nausea, hot-cold-hot-cold kind only to wind up in the ER today at my husband’s...

I had successfully just gotten over some sort of virus - the super achy, nausea,...

katidid

•6 years ago

4 Replies

Mycophenolate issues - help!

Hi, I’ve not been on for a while. Hope everyone is finding their anchor in the storms. I’m struggling in one at the moment. Has anyone been on Mycophenolate...

Hi, I’ve not been on for a while. Hope everyone is finding their anchor in the s...

Tinksie

•6 years ago

6 Replies

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Sjogren's - Punctal plugs or Ciclosporin drops?

Does anyone have experience of both of these treatment options for very dry eyes and, if so, which would you recommend? Thanks.

Does anyone have experience of both of these treatment options for very dry eyes...

lupieibbie

•6 years ago

23 Replies

Higher the ANA more likely it’s Lupus?

I have gone from being treated for Lyme disease to being referred to a Rheumatologist because my ANA is 1:1280. When i’ve read up about Lupus it’s such a...

I have gone from being treated for Lyme disease to being referred to a Rheumatol...

Hursty77

•6 years ago

9 Replies

Alternative radical approachs to treating auto immune diseases and other illnesses.

Has anyone got any alternative health ideas on how to get well as well am researching through trial and error a different approach to getting well. I am very...

Has anyone got any alternative health ideas on how to get well as well am resear...

Hidden

•6 years ago

32 Replies

Do any of you feel increased pain in hips, legs and knees when taking a day time nap?

I find it hard to doze during the day, but sometimes I just have too. Although I’m sleeping I still feel partially awake and feel in quite a lot of pain . I...

I find it hard to doze during the day, but sometimes I just have too. Although ...

Lisalou19

•6 years ago

3 Replies

Chest Pain

Evening fellow warriors, For the last couple of days I’ve been experiencing some chest pain. It’s right in the middle of my chest, feels like it’s in a...

Evening fellow warriors, For the last couple of days I’ve been experiencing som...

tweetyburd

•6 years ago

13 Replies

Second Opinion Request

Hi, I haven’t posted for a while, think I felt so frustrated that I just needed to take some time out. I’m still not diagnosed, but got what I believe is the...

Hi, I haven’t posted for a while, think I felt so frustrated that I just needed ...

LLH76

•6 years ago

8 Replies

Prostate Cancer

Hi to all of you wonderful people. I was not sure which post to write this on as it is particularly pertinent to men and everyone has some men in their life,...

Hi to all of you wonderful people. I was not sure which post to write this on as...

Melbourne-Girl

•6 years ago

19 Replies

Propranolol for high pulse and anxiety

Hi everyone. I have been prescribed propranolol for high pulse and anxiety. 40mg 3 times a day. Is anyone else taking these and do you have any side effects?...

Hi everyone. I have been prescribed propranolol for high pulse and anxiety. 40mg...

joannebond360

•6 years ago

4 Replies

Losing my Mind with this pain and not knowing what to do...feeling isolated in this world!

The issues I have are as follows fatigue, joint and muscle pain, dry eyes, migraines, plus sensitivity to sunlight, swollen joints ( especially feet, knees,...

The issues I have are as follows fatigue, joint and muscle pain, dry eyes, migr...

Aliciasleet

•6 years ago

18 Replies

Lupus or fibromyalgia?

Hello I have been unwell for over 4 years now. Symptoms are fatigue, joint and muscle pain, optical migraines (never had them before) balance issues,...

Hello I have been unwell for over 4 years now. Symptoms are fatigue, joint and m...

bathouse

•6 years ago

24 Replies

anyone had a mental health appointment? not sure if mine is with psychiatrist or psychologist

was expecting to have a few months to prepare for this but got an appointment in 10 days [help] GP said psychiatrist but letter says psychologist, not sure of...

was expecting to have a few months to prepare for this but got an appointment in...

suzannah16

•6 years ago

20 Replies

Any advice for changing medication

I'm having a few months on hydroxychloroquine and nothing else to see where I'm at. I'm at a stage where I'm used to my legs hurting when I walk and all my...

I'm having a few months on hydroxychloroquine and nothing else to see where I'm ...

K8KENT

•6 years ago

1 Reply

Has anyone failed a visual field test after being on plaquenil?

I have been on Plaquenil a little over a year and recently failed my visual field test. I found this test to be very hard to take and my eyes were very dry. My...

I have been on Plaquenil a little over a year and recently failed my visual fiel...

sflynn84

•6 years ago

10 Replies

UPDATE: Butterfly rash and suspicious symptoms

Well my doctor ran the blood work to check for inflammatory markers in my blood, and they came back positive, so I have an appointment with a rheumatologist...

Well my doctor ran the blood work to check for inflammatory markers in my blood,...

Slbs98

•6 years ago

1 Reply

Update

Just thought I would let you all know I now have an appointment with the rheumatologist but not the lady I have seen before. I got very upset as she had told...

Just thought I would let you all know I now have an appointment with the rheumat...

Wrexlu

•6 years ago

7 Replies

How Systemic Lupus Turns systemic

I was discord until I got sunburn on a boat

Christy645

•6 years ago

1 Reply

Finally an nhs appointment to Guys Lupus clinic!!!!!

I literally could cry, after going round and round in circles for years, to: Dermatologist, rheumatologist, gynaecologist, hormone specialists, allergy...

I literally could cry, after going round and round in circles for years, to: Der...

Lisalou19

•6 years ago

10 Replies

Giant Cell Arteritis - an update

Thank you to PMRpro Twitchytoes okaykay and Lizard28 for your support and guidance on this. I managed to get an urgent referral to Rheumy and he said it was...

Thank you to PMRpro Twitchytoes okaykay and Lizard28 for your support and guidan...

Horsewhisper

•6 years ago

1 Reply

Nose bleeds

Heya, can nose bleeds be part of lupus? I read it up and I’m sure it said it is, because I’ve had 4 nose bleeds today and I used to have them all the time I...

Heya, can nose bleeds be part of lupus? I read it up and I’m sure it said it is,...

Elishaannxx

•6 years ago

10 Replies

Update: Too good to be true

Hi all, I was at Derm for a cancer screen and to again seek out any new products or methods for treating my chronic Malar rash. It no longer comes and goes,...

Hi all, I was at Derm for a cancer screen and to again seek out any new product...

katidid

•6 years ago

6 Replies

Family fun day getting flu shot 🙄🙄then noticed a probelm ☹️

I have Sjögrens and my son has lupus profundus , both got our flu jabs today , fun family trip !!! Has anyone had any reactions to the under 65 jab ? Ive just...

I have Sjögrens and my son has lupus profundus , both got our flu jabs today , f...

weathervane

•6 years ago

30 Replies

Remember the Nurse Who Said I Didn't need a Blood Test?

This was the other day, and she made me feel like a blood test seeker although I clearly had an appt on the system for a test that day. As I put my coat on,...

This was the other day, and she made me feel like a blood test seeker although I...

Lupiknits

•6 years ago

13 Replies

SLE and Hoffmann's diagnosed

Hi is there any one else who has also been diagnosed with Hoffmann's ? How are they being helped with the diagnosis? Appreciate information on it.

Hi is there any one else who has also been diagnosed with Hoffmann's ? How are t...

Sk1s

•6 years ago

1 Reply

6 years with no diagnose

I have had these symptoms for 6 years. I have seen many doctors with no luck. A doctor at a University to me I have fibromyalgia and I just need to talk with a...

I have had these symptoms for 6 years. I have seen many doctors with no luck. A ...

Dalollies

•6 years ago

20 Replies

HAIR LOSS

Is hair loss due to LUPUS ETC & is there anything i can do or use to ease it or stop it no bald patches just falling out & so fragile 🤷🏻‍♀️🤦🏻‍♀️lost the...

Is hair loss due to LUPUS ETC & is there anything i can do or use to ease it or ...

Naz2005

•6 years ago

21 Replies

Update on my depression

Want to thank everyone for the kind and lovely messages and advice about my depression, I contacted my Gp and they have updated up my depression tablet,...

Want to thank everyone for the kind and lovely messages and advice about my depr...

Tash1987

•6 years ago

5 Replies

Update from first rheumy appointment

I first posted to this group a couple of months ago when my GP referred me to my local rheumatology department. I has had a sudden on set of the usual type...

I first posted to this group a couple of months ago when my GP referred me to my...

Arcus13

•6 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2018

Sleep deprived

Emergency room again

Mycophenolate issues - help!

Sjogren's - Punctal plugs or Ciclosporin drops?

Higher the ANA more likely it’s Lupus?

Alternative radical approachs to treating auto immune diseases and other illnesses.

Do any of you feel increased pain in hips, legs and knees when taking a day time nap?

Chest Pain

Second Opinion Request

Prostate Cancer

Propranolol for high pulse and anxiety

Losing my Mind with this pain and not knowing what to do...feeling isolated in this world!

Lupus or fibromyalgia?

anyone had a mental health appointment? not sure if mine is with psychiatrist or psychologist

Any advice for changing medication

Has anyone failed a visual field test after being on plaquenil?

UPDATE: Butterfly rash and suspicious symptoms

Update

How Systemic Lupus Turns systemic

Finally an nhs appointment to Guys Lupus clinic!!!!!

Giant Cell Arteritis - an update

Nose bleeds

Update: Too good to be true

Family fun day getting flu shot 🙄🙄then noticed a probelm ☹️

Remember the Nurse Who Said I Didn't need a Blood Test?

SLE and Hoffmann's diagnosed

6 years with no diagnose

HAIR LOSS

Update on my depression

Update from first rheumy appointment

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