I'm having a few months on hydroxychloroquine and nothing else to see where I'm at. I'm at a stage where I'm used to my legs hurting when I walk and all my other joints and muscles aching most of the time. I've just come off of methotrexate as it wasn't doing anything. At least I don't seem to be getting worse. Makes me laugh when my 83 year old mother tells me to 'take it easy' !
I was keen to ask anyone about me stopping the hydroxychloroquine too. Before I started it 5 years ago I was walking around like a 90 year old so I know I'm better than that now but I wonder if I would have been better by myself? Has anyone tried to stop all of the drugs? I was going to discuss this with the rheumatologist but she was running late and I felt a bit rushed and ended up forgetting most of the things I had planned to ask.
She did say she'll see me when my new blood tests, x-ray and scan results are through but I'm not holding my breath as she said see you in 4 months last time and I didn't see her for 13 months.
Anyway if anyone has any ideas about trying drug free? Or if anyone thinks that's not a good idea? I'd like to hear
Thanks x