I literally could cry, after going round and round in circles for years, to:
Dermatologist, rheumatologist, gynaecologist, hormone specialists, allergy specialist, mental health specialist, you name it I’ve been there with little help along the way. My saving grace this year is my gp finally prescribed steroids and I’ve managed a better life, not a perfect life.
I paid to see a specialist at the London Bridge lupus clinic , thinking I may still be in the wrong place searching for the answers to all these horrible symptoms that are slowly making my life at times impossible. This doctor immediately wrote to my doctors for a 2nd opinion referral, which has finally been agreed and an appointment booked.
It seems this private route is the way forward if lupus is suspected. So many years I’ve suffered, due to the lack of medical knowledge from all the specialists I’ve seen.
I’m staying positive that finally I will get the answers. Lupus awareness seems to be a grey area within the medical industry and yet so many people are suffering!!!! I hope one day when I am strong enough I can make a difference somewhere