Sleep deprived

[Here-we-go]

Good morning dear lupies. Here I am again early hours of the morning after managing a full 2hrs of sleep again. I’m going crazy. Had my pain meds changed from co-codamol to tramadol and feeling that I have showers every 5 mins so the quilt is off on off on off on etc etc. My husband now has his own quilt. The final straw though is the creeping feeling that I get in my legs. I’m pacing the downstairs of the house trying to get rid of the sensations. Please please has anyone any ideas of how to make this stop.

[pmrkitty]

I'm sorry you're going through this, wish I knew how to help. Hopefully someone will be along soon with a remedy. Hugs to you.

[Lisalou19]

Can totally relate to sleep deprivation. I’ve been up since 1.15am and I’ve no idea why! I miss my sleep so much. The only thing I can see what is causes it is normally my sleep becomes less just before the onset of a full flare up.

Nightnurse is a saving grace for me if I get too deprived I will take it which enables me to sleep through the night

[whisperit]

Horrible isn't it? Is your sleeplessness mainly due to these symptoms of sweating and pain? Or are you sleepless anyway?

I've had no decent sleep for over 3 years now; at first it was related to waking up frequently sweating and nauseous. The only thing that seemed to help was having a cold pack ready to hand through the night to cool off with. Now those symptoms have eased, it's officially diagnosed as "ordinary" chronic insomnia. My GP prescribed zopiclone, but I found no benefit from that. He later suggested a SSRI, but my neurologist said that was unlikely to help, so I didn't take that up. I've recently had a sleep study, and in the review, the consultant said that the only approach that has significant evidence of effectiveness is "Insomnia CBT". You can look this up on the internet quite easily; as you would expect, it's a combination of mindfulness, relaxation and standard "sleep hygiene" measures. But he was prepared to prescribe melotonin "just in case". I've just started that and have had 2 improved nights out of 4 so far. Sleep disorders seem to be really, really hard to resolve. Hopefully yours will get better as your auto-immune condition dies down, or your body adjusts to your meds. x

[Lupymo]

Any chance you could be experiencing codeine withdrawals? How long were you on co-codamol? I totally relate to what you’re going through and battled for months with opiate withdrawal after I stopped co-dydramol which I had been on for years. Hydroxychloroquine sorted out a lot of my pain issues I’m happy to say after years of my GP dishing out pain meds without understanding why I had chronic pain.