Sorry, I’m too tired to look up the right words but this has been done to check out why my mouth and throat have become even drier than usual. I’m used to the dry mouth side effects of meds, but this is much worse.
I didn’t expect it to be uncomfortable, but it certainly was, particularly the pressing on and around my jaw. I have TMJ so I suppose that’s to be expected.
The technician took much longer than I had expected. When she finished she went to check with her consultant (eek...good or bad?) then came back to do my thyroid.
As we finished she was asking lots of questions about who had sent me, what was wrong with me etc. Perhaps she was just interested but I’m feeling a bit paranoid.
I’ve never felt like this about a test before. It feels strange.
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i have two swollen glands on my lower neck that appear to be below my collar bones. i found this chart online and it shows the gland area on one side they are at the lowest point on the neck and look also like they will be under the collar bone
Interesting. My ultrasound was very much under the jaw then the thyroid for luck. I’ve since been dx with Sjogrens based on the glands,general dryness, and much rather uncomfortable poking and prodding by an oral medicine consultant.
The thyroid has a “nothing to worry about” cyst. So has a kidney. I think these are just fluid filled sacs and was told lots have then but wouldn’t know unless a scan was looking for something else.
Hopefully it just feels strange because someone was being very thorough and not because there's anything untoward...I'd feel paranoid if a medic asked me questions as none ever have (except diagnosing Rheumy, going through his list to hit 4 from 11: he blew it by not knowing Michael Jackson had lupus 🤫 ) xxx
I would blow it with you too eekt as I didn’t realise Michael Jackson had Lupus either. Theses horrible diseases do not discriminate between classes or types of people, like actor Robin Williams having Lewy bodies dementia which is a horrible demementia combined with problems with the Central Nervous System (symptoms similar to Parkinson’s disease so it’s a horrible double whammy)! My poor mother just died from this a few weeks ago (not nice)
I think/hope she was doing her job really well ( after all, might as well check on the thyroid as it’s right there)? After that she was being chatty but not in the “cold today, isn’t it”? sort of way. And she gave me loads of tissues because she’d used so much gel I looked like I had a snot beard 😂
Highly unusual, in my experience anyway...but I have 'healthcare assistants' donning gloves, apron and mask to take blood 🤧 ...here's hoping for prompt results to put your mind at rest xxx
Thank you. I’m trying not to overthink it. Going to the consultant might just have been that some of the “bits” could not be seen well and the technition wanted to check she’d got them clear enough. The questions could have simply that she was interested in why I had been referred.
My older brother had surgery on his thyroid and when they checked him later they found a small cancerous cyst. I can’t remember the name of it, but it’s so slow growing that it’s usually only found at a post mortem and the person had not died as a result of it. His surgeon removed it because it was an easy task and it might as well be removed now they’d seen it.
Hi lupik wendy mentioned your post to me & I didn't get a chance to write yesterday... I been having similiar problems, but the dryness is attributed to my sjogrens for me & the feeling of a golfball in my throat will be that too. The painful face on one side the sjogrens specialist thinks it Trigeminal neuralgia, she said that this is also due to sjogrens. Worsing this last six months.. I will be discussing with her in person at an appt. very soon as I haven't seen her this year & these new developments are a concern & painful... We can compare notes... 😊 hope all goes well...also I do have SCLE .....ml
Hi Lupiknits - I can't sleep and just saw your posting. Sorry you're worried abouta all this and your symptoms.Thought it might help to say I had same ultrasound a year ago and it was very similar,lots of pressing hard and questions. Not very pleasant. They aren't given anything to go on by the referrer it seems. I have SLE but wasn't diagnosed at the time. I have sicca as part of that as the subsequent biopsy for Sjoegrens came back as abnormal/ sailadentis and Sicca - not sjoegrens (although opthalmology said it's not conclusive). I have had the golfball feeling maggielee mentioned for some years now and significant continuous thirst/difficulty eating dry food plus theeyelids stickin g to my eyeballs atnight pre wonderful prescription drops. Anyway - sounds like they were very thorough with youand maybe just wanted to ensure they were doing allthe right things - as you say, they were young and probably worried they weren't very experienced. I do hope you get your results soon(?) - and all is good. I got some great pastilles from the GP for this - and you can get them over the counter too. Look forward to letting us know the outcome if you want to share. Sleep well , all the best x
Thank you all. I can’t eat anything dry, have to sip and eat slowly to avoid food getting stuck, and used to think the golf ball feeling was stress ( when I worked). When I started with bad reflux I again thought it was stress because I’d had it when stressed at work. After nearly six months, early retirement, and a lot of weight loss I saw my GP. The subsequent endoscopy showed ulcerations throughout my oesophagus.
Please don’t do this anybody! They have healed, but don’t assume everything is stress.
Rheumy keeps saying sicca but it’s taken being part of a large research study for any ultrasound to check if anything is going on.
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