Be Careful What you Hope for! : Anyone following my... - LUPUS UK

LUPUS UK

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Be Careful What you Hope for!

Lupiknits profile image
13 Replies

Anyone following my problems with urinary incontinence will remember that I was really pleased to find the NHS will supply the Tena Ladies I have been buying myself. Well, the first delivery arrived today. Three months’ worth. It’s going to be hard to open the door of my spare bedroom soon.

At the moment I’ve built a fort in the hall but visitors and sons may not find that as funny as I do. 😂

PS they actually are Tenas. I thought I’d get an NHS version.

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Lupiknits profile image
Lupiknits
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13 Replies
Lborolass1 profile image
Lborolass1

I have SLE....is urinary incontinence connected to Lupus? I suffer with this badly.

Lupiknits profile image
Lupiknits in reply to Lborolass1

I have no idea if it is. I didn’t see my GP for some time, out of embarrassment. She tried two medications which I had bad reactions to, and referred me to a clinic which deals with incontinence. The result, so far, is prescribing for me with all these Tenas and one more med to try.

Really, it’s been treated as a fairly common problem rather than being connected to anything else.

PMRpro profile image
PMRpro

Don't look a gift horse in the mouth!!! Garden shed????? Roof space????? ;-)

Barnclown profile image
Barnclown

💥🤸‍♀️🤸‍♀️🤸‍♀️🤸‍♀️💥🚀🌟‼️👏👏👏👏👏

YAAAAAY LK: You’re doing that NHS jive 😆

❤️🍀❤️🍀 Coco

honeybug profile image
honeybug in reply to Barnclown

xxx

eekt profile image
eekt

Well, you could always start trading to pay for the hospital car parking!..😂 xxx

Lupiknits profile image
Lupiknits in reply to eekt

Can’t be a law against possession, at least.

whisperit profile image
whisperit

A Tenas fortress? So when you are hitching your pants up in the morning, you can say, "I'm pulling up the drawbridge". x

Lupiknits profile image
Lupiknits in reply to whisperit

Well that’s one Tena used thanks to Mike’s sharp wit.

And I just know I’ll be saying that every morning x

cathie profile image
cathie

Sounds like a useful stash for Brexit

Lupiknits profile image
Lupiknits in reply to cathie

Even better stash than I thought! Just checked the delivery note and I’m three packets of the 48 x super strength short. More drawerbridges for my drawers I think.

cathie profile image
cathie

I’ve never asked nhs for them but I might. What tests did they put you through? We’ve all been through so many !

Lupiknits profile image
Lupiknits

It was very straightforward indeed. Now that you’ve mentioned everything we go through, this makes me realise how simple it was.

First I saw my GP to work out whether it was stress or urge incontinence, and I confessed I’d had the problem for about 18 months. My GP decided it was urge incontinence, then she referred me to a centre which deals with incontinence. We also tried two meds which didn’t suit me ( made my mouth even drier and my already low blood pressure lower).

At the centre I was given the usual advice about cutting out caffeine ( I don’ t drink coffee or alcohol but would if my stomach would let me) and I have to give up my measly two cups of tea a day. I had an ultrasound before and after emptying my bladder, then was shown a selection of pads to decide which size is the best for me. They are based on body size. The ones I’ve been given hold 400mls which is a lot.

My incontinence is the sort where my bladder doesn’t always signal it’s full. Or I get the signal too late to reach the loo without an accident.

This is long winded but I hope it helps.

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