I have been diagnosed with Systemic Lupus, Auto Immune Hepatitis and Osteoporosis since July 2000. I was given indefinite full motability and low care package. This summer I had two TIA’s that involved double vision only for about a minute with no other symptoms. The stroke consultant diagnosed that it was a low probability being TIA and more like a reaction from the Lupus. I contacted DLA under the impression that my medical condition had deteriorated, and they arranged for a PIP assessment. Big mistake!!!! In their opinion, I am now so well, I can care for myself and walk everywhere and use public transport, even though my hospital appointments can involve a 114 mile round trip to arrive at 9am. The whole situation has been a nightmare, which is not helping, as you can imagine. I am appealing, and I can keep you all up to date with my progress if you wish. I am asking Lupus UK to help me, and possible represent me at the appeal meeting. I am so scared. I live on my own, in the country, miles away from nearest bus transport. My life, and my health would be destroyed. Any help or advice anyone can give me, I would be very grateful.
So sorry for the long post. Can anyone help me? Thank you.