I have been diagnosed with Systemic Lupus, Auto Immune Hepatitis and Osteoporosis since July 2000. I was given indefinite full motability and low care package. This summer I had two TIA’s that involved double vision only for about a minute with no other symptoms. The stroke consultant diagnosed that it was a low probability being TIA and more like a reaction from the Lupus. I contacted DLA under the impression that my medical condition had deteriorated, and they arranged for a PIP assessment. Big mistake!!!! In their opinion, I am now so well, I can care for myself and walk everywhere and use public transport, even though my hospital appointments can involve a 114 mile round trip to arrive at 9am. The whole situation has been a nightmare, which is not helping, as you can imagine. I am appealing, and I can keep you all up to date with my progress if you wish. I am asking Lupus UK to help me, and possible represent me at the appeal meeting. I am so scared. I live on my own, in the country, miles away from nearest bus transport. My life, and my health would be destroyed. Any help or advice anyone can give me, I would be very grateful.
So sorry for the long post. Can anyone help me? Thank you.
No medical exam requested on pip assessment
PIP phone assessment
PIP assessment brought forward by a year
Sleeping is a nightmare
Filled in PIP form last week assessment next week. Record?
