Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for October 2018

Dang! I need sympathy!

Feeling rubbish today, and the slight hill required in taking the dog on a short walk make me as breathless as when I was a smoker a long time ago, but that...

Feeling rubbish today, and the slight hill required in taking the dog on a short...

Lupiknits

•6 years ago

17 Replies

Hi new here!

Hi everyone.. So does it mean i have lupus if my anti nuclear antibodies came back positive?? These were tested as a part of a group of tests for my thyroid...

Hi everyone.. So does it mean i have lupus if my anti nuclear antibodies came ba...

ThyroidObsessed

•6 years ago

4 Replies

Advice

I have recently (last week) been formally diagnosed with hughes syndrome (antiphosolipid syndrome) lupus sle and perinotious anaemia, I also have pulmonary...

I have recently (last week) been formally diagnosed with hughes syndrome (antiph...

CAUST3

•6 years ago

8 Replies

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Flare continues.

I was at the doctors yesterday as my throat had become really sore. Turns out I have a throat infection. I hadn't realised that infections can impact upon...

I was at the doctors yesterday as my throat had become really sore. Turns out I ...

Wrexlu

•6 years ago

1 Reply

Could it still be SLE???

Hi all in need of some advice from people who understand the frustration of having symptoms that are shrugged off or made not important by gp's who make you...

Hi all in need of some advice from people who understand the frustration of havi...

whiteyswifey

•6 years ago

13 Replies

Very worried for my daughter

Very worried for my daughter she has had lupus for the last 11 years and has suffered immensely as you all ensure have experienced this. Now she is having...

Very worried for my daughter she has had lupus for the last 11 years and has su...

Lucyricky

•6 years ago

7 Replies

'The NHS in Scotland is not financially sustainable and its performance has continued to decline, the public spending watchdog has warned.'

BREAKING NEWS: https://www.bbc.co.uk/news/uk-scotland-scotland-politics-45969866 🙇‍♀️ 🤦‍♀️👎 xxx

BREAKING NEWS: https://www.bbc.co.uk/news/uk-scotland-scotland-politics-45969866...

eekt

•6 years ago

7 Replies

Increase in Mychophenolate

My consultant is concerned I'm not settling with my medication after 12yrs (A different and better consultant than the previous) and has told me, he's going to...

My consultant is concerned I'm not settling with my medication after 12yrs (A di...

awareness75

•6 years ago

1 Reply

Live vaccines

Hi all. I’m Considering a holiday tour for hubbys special birthday but destinations likely require live vaccinations eg yellow fever, typhoid etc. I have lupus...

Hi all. I’m Considering a holiday tour for hubbys special birthday but destinati...

Pickzie

•6 years ago

10 Replies

Rheumatoid appointment

Further to my recents posts regarding Ana results... lupus or not!! I finally had my appointment after 9 months... has some bloods taken to see if there was...

Further to my recents posts regarding Ana results... lupus or not!! I finally ha...

Lisas_tired

•6 years ago

9 Replies

Today's Rheumy Appt: Wish You'd Been There! 👍⭐️🌈

I had a 9am rheumy appt today in the clinic overseen by one of the professors, and I have another next week in a clinic overseen by another professor. I...

I had a 9am rheumy appt today in the clinic overseen by one of the professors, a...

Lupiknits

•6 years ago

12 Replies

physical pain

How much should one bear? I have sucked up pain since a child. When is time to be honest with doc?

How much should one bear? I have sucked up pain since a child. When is time to b...

nanno

•6 years ago

2 Replies

Lines on nails.

I posted a while a go about not getting anywhere despite all my symptoms. My GP and optgamologist both referred me back to the neurologist. She was lovely but...

I posted a while a go about not getting anywhere despite all my symptoms. My GP ...

NickyNoo24

•6 years ago

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Adrenal Insufficiency update

Hello everyone Just thought I'd update you on my Rheumy appointment today and I could really do with your thoughts about it. Expect the unexpected from the...

Hello everyone Just thought I'd update you on my Rheumy appointment today and I ...

misty14

•6 years ago

35 Replies

Skin condition s

i had this last year for eight months and now it has returned, anyone have any idea, Could this be Lupu

i had this last year for eight months and now it has returned, anyone have any i...

CrafterJo

•6 years ago

4 Replies

Changing symptoms

Hi all, I've been part of this forum for a while, but this is my first time posting. I'm 28 and was diagnosed in 2011, so have lived with lupus for the best...

Hi all, I've been part of this forum for a while, but this is my first time post...

BleuJan

•6 years ago

1 Reply

Skin Lesions and itchy rash

I was just wondering.....I don't suffer with Lupus, but a very dear lady to me does, and she has these rashes of dry skin on her legs, and it reminded me of a...

I was just wondering.....I don't suffer with Lupus, but a very dear lady to me d...

3fingeredjake

•6 years ago

5 Replies

Symptoms in your children? I have a 5 year old son who I am concerned about.

For months I have noticed my son suffers with a very prominent form of livedo reticularis, very red eyes, diarrhoea. These are the only physical things I can...

For months I have noticed my son suffers with a very prominent form of livedo re...

Lisalou19

•6 years ago

6 Replies

Do you have a visible difference as a result of your lupus? Please participate in this research study.

Researchers from the Centre for Appearance Research at UWE Bristol are running an online research survey for UK-based adults (18+) who have a visible...

Researchers from the Centre for Appearance Research at UWE Bristol are running a...

Paul_Howard

Partner•6 years ago

3 Replies

At the Imaginary International Rheumatologists Conference...

"Friends, colleagues, distinguished professors and lowly registrars. Thank you for attending this conference to hear the changes we propose for the...

"Friends, colleagues, distinguished professors and lowly registrars. Thank you f...

whisperit

•6 years ago

53 Replies

ANA

Has anyone got any experience with non ANA lupus? I am very new to this.

Conniesmum

•6 years ago

7 Replies

Anxiety at night ☹️☹️

Hi all , the last few nights i have wakened up about 4.00 or 5.00 with a racing heart and feelings of anxiety, ive also been having weird disturbing dreams ....

Hi all , the last few nights i have wakened up about 4.00 or 5.00 with a racing ...

weathervane

•6 years ago

36 Replies

Re-arrange docs appointment

So I wrote in here last week that I was worried about going to see my lovely doctor on Friday about a butt load of blood tests, urine sample and a three month...

So I wrote in here last week that I was worried about going to see my lovely doc...

Peppytea

•6 years ago

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Morning hope everyone doing ok...

Morning hope everyone doing ok ive realised im putting on so much with steriods has anybody else got this problem my face is like round as a football was alwys...

Morning hope everyone doing ok ive realised im putting on so much with steriods ...

Naz2005

•6 years ago

5 Replies

Is this anything?

Hi I'm not sure if I'm in the right area, I'm just trying to figure out what's wrong with me. Does this mean anything, Anti-tTG IgA ( 0.1-5.0) 2.1 So does...

Hi I'm not sure if I'm in the right area, I'm just trying to figure out what's w...

PagingDrbumbrain

•6 years ago

2 Replies

OH report

Hey , So I got my occupational health report emailed to me last Thursday. I totally agreed with what the doc had wrote. His told them I am fit for work...

Hey , So I got my occupational health report emailed to me last Thursday. I ...

LouLamb

•6 years ago

5 Replies

Lung issues with lupus

Hi! Has anyone been diagnosed with bibasilar chronic interstitial lung disease ? I’ve just found out that I have this. I read that lupus can cause it but...

Hi! Has anyone been diagnosed with bibasilar chronic interstitial lung disease ...

Cindymc

•6 years ago

2 Replies

Has anyone here also struggling with Lupus and DVT at the same time

My name is Anna, 28 yo. I was diagnosed with blood clot in may 2017 and lupus feb 2018. I also have tendonitis, arthritis and varicose vein problem. I am in...

My name is Anna, 28 yo. I was diagnosed with blood clot in may 2017 and lupus fe...

Hidden

•6 years ago

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Persistant peripheral neuropathy

I am sick and tired of lack of sensation in my hands,feet and legs. It is really worrying me. So much so am going to get in touch with my rheumatologists...

I am sick and tired of lack of sensation in my hands,feet and legs. It is really...

Wrexlu

•6 years ago

9 Replies

Has anyone had cataracts removed with a "Lupus protocol" that alters the follow up in the days after?

I had a pre-op assessment on Friday and am booked to have the first cataract removed on 9 Nov. Very keen on having both done asap as they have grown quite...

I had a pre-op assessment on Friday and am booked to have the first cataract rem...

Lupiknits

•6 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2018

Dang! I need sympathy!

Hi new here!

Advice

Flare continues.

Could it still be SLE???

Very worried for my daughter

'The NHS in Scotland is not financially sustainable and its performance has continued to decline, the public spending watchdog has warned.'

Increase in Mychophenolate

Live vaccines

Rheumatoid appointment

Today's Rheumy Appt: Wish You'd Been There! 👍⭐️🌈

physical pain

Lines on nails.

Adrenal Insufficiency update

Skin condition s

Changing symptoms

Skin Lesions and itchy rash

Symptoms in your children? I have a 5 year old son who I am concerned about.

Do you have a visible difference as a result of your lupus? Please participate in this research study.

At the Imaginary International Rheumatologists Conference...

ANA

Anxiety at night ☹️☹️

Re-arrange docs appointment

Morning hope everyone doing ok...

Is this anything?

OH report

Lung issues with lupus

Has anyone here also struggling with Lupus and DVT at the same time

Persistant peripheral neuropathy

Has anyone had cataracts removed with a "Lupus protocol" that alters the follow up in the days after?

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