Increase in Mychophenolate

[awareness75]

My consultant is concerned I'm not settling with my medication after 12yrs (A different and better consultant than the previous) and has told me, he's going to increase my Mychophenolate to 6 a day@500mg.

When I first went on these, I was on 5, but I was getting various side effects of headaches, water infections and mild constipation. I'm now on 4 tablets and these symptoms have calmed down/manageable. This consultant says those symptoms were my Lupus, but im not so sure, so a bit weary about going up to 6 tablets this time.

Ive been on Mychophenolate for 8 years now, so any advice/thoughts if anyone is on 6+ tablets? What/not to expect?

Thanks.

[Bebe76]

I am on the same dose (6 tablets x 500mg). I started 5 years ago and slowly went up to the 6 tablets after 4 tablets resulted in some improvement. For me, the 6 tablets worked best and I don't have side effects. Unfortunately, everyone is different, so I cannot say if you will have the same experience, or whether what you felt were side effects or lupus. If you are nervous, you can ask to increase slowly in order to see if your headaches, etc. return.