Just thought I'd update you on my Rheumy appointment today and I could really do with your thoughts about it.
Expect the unexpected from the NHS as Whisperit wrote so well!. Had such a surprise to be seeing a different Consuktant as my usual one has decided to have Tuesday's off!. Nice work if you can get it!. He said he's joined the department as third Rheumy.
Anyway , I was pleased I had my symptom list and showed it him ( new strategy) and I asked about adrenal insufficiency. He said I'd only have a problem if I suddenly missed one day of no steroid. This I musnt do and he said if unwell and couldn't take my medication I must come to hospital for IV steroids etc. I also must have a medic alert bracelet so will get onto that!. It looks like I won't be able to come off them ever and they would like me down to 5 mg if possible as its regarded as a safer daily dose!. As I'm not well due to the flu jab and steroid reduction he said to stay on 7.5 mg daily for 6 months to see if next time I go I might be able to do another reduction!. At least on these lower doses there's more flexibility which pleases me.
No Dexa scan result available yet. He will chase it. All in all I'm pleased with how it went and look forward to feeling much better. Thanks for all your support , do appreciate it. Xx