London hospital : My Gp surgery called today , to... - LUPUS UK

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London hospital

LouLamb profile image
17 Replies

My Gp surgery called today , to tell me my referral for London hospital was in. I have to book the appointment online myself, earlist is beginning of December.

It’s for Guys & St Thomas. Just wondering if anyone goes there and can tell me what it’s like.

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LouLamb profile image
LouLamb
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17 Replies
Wendy39 profile image
Wendy39

Hello.

That sounds good to me! I’ve never been there but isn’t it a Centre of Excellence for Lupus?

Xx

LouLamb profile image
LouLamb in reply toWendy39

Yes I believe so x

Wendy39 profile image
Wendy39 in reply toLouLamb

That’s brilliant! So pleased for you! Please let us know how it goes. Have you got a list of issues / questions that you need to discuss? xx

LouLamb profile image
LouLamb in reply toWendy39

I’m going to write a little list as I think of things and rank it most important.

I’ve got my Rheumy appointment at my hospital now on 13th nov. Which I’m going to attend as I need some meds now!

Wendy39 profile image
Wendy39 in reply toLouLamb

I’m terrible, my memory is bad but even worse in appointments where you can get side tracked. I have even taken a list but forgotten to check it before I left the room! Last time I took two copies of my list and handed one over to the doctor for him to keep. xx

Lisalou19 profile image
Lisalou19

I am waiting to get there too. I think you will be in good hands assuming they have referred you to the right department.

I see a doctor privately who works from guys, it is him I am waiting to see. December is not to far to wait either. I’m sure you will get some answers xx

LouLamb profile image
LouLamb in reply toLisalou19

Thanks.

Loopyloo43 profile image
Loopyloo43

Hi I was dx there and dr D’Cruz I found was excellent I travelled from north wales the night before and stayed in acc they have there fir my app the next day . It did get extremely busy there and I found that they were very thorough I eventually couldn’t do the travelling even though it was only twice a year but am sure you will at least get good informative information from Drs who actually know how to treat you . Good luck with it all x

LouLamb profile image
LouLamb in reply toLoopyloo43

Oh wow !

Thank you

Kevin53 profile image
Kevin53

You always get the best!

LouLamb profile image
LouLamb in reply toKevin53

Thanks.

I just need somewhere that will treat me right !

MDHa246 profile image
MDHa246

Isn't that the Louise Coote centre. It is one of the best. Where do you live to get that NHS referral, not Pembrokeshire I take it!!

LouLamb profile image
LouLamb in reply toMDHa246

I live in Hertfordshire so it’s a direct train ride to London and then will be another train closer to the hospital

Wendy39 profile image
Wendy39 in reply toMDHa246

Brilliant! Definitely not Pembs! xxx

baba profile image
baba

Found this via the hospital website, hope the link work.

guysandstthomas.nhs.uk/our-...

LouLamb profile image
LouLamb in reply tobaba

Thanks

tjo52 profile image
tjo52

Hi Loulamb..I have been attending for about 8 years now and they are brilliant.everyone I have seen has been caring and compassionate..initially had +++test eventually diagnosed with auto immune..Ple and Hughes. I go to derm and derm/reum combined..been st Thomas's in the past too..I'm from Leicester..(Yes the football champions 😂)..just wondered how your getting there..there is a shuttle bus from st Thomas's I usually catch to guys..(think it's for staff really but patients use it too)..I go by coach to London C10 from across the road..then to guys..( I Don't do underground 😀)..I always receive a copy of my consultation and they are most helpful..Generally I see a senior Dr who with then clarify any changes with consultant..clinics are large and can run late..especially the combined clinic..if you are given a prescription allow yourself plenty of time to collected it.say at least an hour as it's a tiny pharmacy in Sainsburys (which I cant quite understand?).apart from that the hospital have a great team of professionals and experts at what they do..good luck with everything and take care..xxx

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