Lupus rash or something else?: Is this a lupus rash... - LUPUS UK

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Lupus rash or something else?

Kmeyer profile image
15 Replies

Is this a lupus rash? It's moving up my arms and now on my neck

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Kmeyer profile image
Kmeyer
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15 Replies
SHEILWEIL profile image
SHEILWEIL

Hi, that looks like hives from an allergic reaction. Does it itch? Is your tongue swollen or mouth itchy?

Kmeyer profile image
Kmeyer in reply toSHEILWEIL

It does itch, but my mouth isn't itchy or swollen. I was given cortisol cream to try first

SHEILWEIL profile image
SHEILWEIL in reply toKmeyer

Did you try taking Benedryl?

Kmeyer profile image
Kmeyer

Yes I took benadryl for two nights and it didn't seem to help. I have had this rash for a about 4 days and it's slowly getting worse. I went to the doctor today and he just gave me a steroid cream to try over the weekend.

AgedCrone profile image
AgedCrone

Did your doctor tell you to stop using soap? A lot of rashes that start on hands & arms are caused by soap. Ask your pharmacist.....they often get straight to the point by thinking outside the box......doctors tend to think "what can I prescribe"?

You can buy creams that you use instead of soap which are very effective.

Also use rubber gloves any time you put your hands in water....when I first moved to NY I had an intolerance to the water.....but only on my hands & after a few months it subsided.

Kmeyer profile image
Kmeyer in reply toAgedCrone

I recently had a baby so i have been washing my hands a lot! I going to try these things you suggested. Thank you!

sarahsch profile image
sarahsch

Hi kmeyer,

I used to have this rash, like a heat rash, on my hands before I was medicated. It was very itchy & would stop me sleeping.

Never found out what it was. Eventually just went away. I found using cold packs was the only thing that helped with the itching.

Sorry I can't be more helpful.

Sarah x

Kmeyer profile image
Kmeyer in reply tosarahsch

Why are you being medicated?

sarahsch profile image
sarahsch in reply toKmeyer

Replied with personal message.

leslieliesel profile image
leslieliesel

Perhaps you could ask for a skin biopsy of your rash...that is how I was dx'd

Biloxi profile image
Biloxi

My rash looked very much like that, but it started on my chest and moved up to my shoulders, then arms. I had a skin biopsy, and it came back as Discoid Lupus. It's an abnormal response from the sun, or for me it is. Try staying out of the sun, wear natural sunscreen (zinc oxide, titanium dioxide), and wear long sleeves to experiment.

I've heard pregnancy can trigger it, but so can medications, stress, genetics, ect... In some cases it can be easily reversed (if it's from a medicine). Have you started or changed up any medications?

Kmeyer profile image
Kmeyer in reply toBiloxi

No I have not changed medications but my son is very sick so I am under lots of stress. Did you have any other symtopms or just this rash and did any creams work to clear it up?

Biloxi profile image
Biloxi

A steroid cream cleared it up witin 2 weeks. The dermatologist I went to wrote a prescription for it.

I know it might sound a little strange, but my dr. suggested I try a cream for diaper rash. She says it helps the skin heal itself. It works pretty well on my eczema. I only have 1 bump left of my lupus rash, and I think it might be a scar.

I think it's easier to get rid of the rash soon after getting it. I've let some of the bumps stay around for months, and they are difficult to get rid of. It's almost like I need something stronger each time to get rid of.

I hope you find what works for you, and that your son makes a speedy recovery!

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Kmeyer ,

I'm afraid that we are not medically qualified here, so we're not able to say whether your rash could be caused by lupus or something else. Have you shown it to your doctor yet?

If you'd like more information about skin involvement in lupus, we have a booklet which you can read/download at lupusuk.org.uk/wp-content/u...

Kmeyer profile image
Kmeyer in reply toPaul_Howard

Yes, I have seen my doctor. Thank you for the information

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