Update - Started Ciclosporin

[Cellul]

Good evening!

Sorry I haven’t posted for a while.

I started Ciclosporin on Wednesday - and so far I feel achey, a tad unwell, and have abit of a cough. I’m not sure if this is coincidental or whether my body is simply reacting to the drug.

I was planning on giving my consultant a call tomorrow morning, but please could you reassure me that this is normal? Or not normal?

Thank you!

Carly

[Cann]

I react to all drugs, but then were we meant to put such drugs into our bodies. My body just wants good food!

[Cellul in reply to Cann]

Hi Cann,

I’m not sure what you mean?

[Cann in reply to Cellul]

It is complicated and I suspect I am one of the unusual ones, but using muscle testing I found I could take no drugs or supplements and my body tells me what food to eat. I was tested by several methods and my suspicions were confirmed.

I was seriously ill and damaged by drugs so perhaps I am different, but I always found even before that I could take something once like a flu remedy which seemed to help, but the second time all the symptoms would return and I would feel worse than when I started.

I eat whole food and of certain types with no additives or preservatives taking only what my body tells me through muscle testing. If my muscles are weak when I hold the food, I don't eat it. It is a method that has been used for 1000's years to find what the body needs.

[Cellul in reply to Cann]

So, you literally hold the food and if your muscles feel weak you don’t eat it?

I apologise if I sound ignorant, but I have never heard of this before!

[Cann]

If you go on you-tube and put muscle testing in you should get some information.

[Cellul in reply to Cann]

Thanks, I’ll have a look

[MVJohn62]

Hai cellul

I am on cychlosporin for the last one year.

Faced the same problems in the initial stages, drink more water.

Chances of fat deposit in lever is more.

Wish you all the best

[Paul_Howard Partner LUPUS UK]

Hi Cellul ,

Did you call your consultant?

Arthritis Research UK have some helpful information about ciclosporin - arthritisresearchuk.org/art...

Their advice is to tell your doctor or rheumatology nurse if you experience side effects such as; nausea (feeling sick), diarrhoea, headache, gum overgrowth, tiredness, excess hair growth or any other new symptoms or anything else that concerns you.

[Cellul in reply to Paul_Howard]

Hi Paul.

I did call - pretty much said that as it’s only my first few weeks to carry on and see how I feel. If my throat becomes sore, or I feel worse I’m to call back and he’ll see me ASAP!