LUPUS UK
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Optic nerve

My lupus may be causing damaged to my optic nerve. I had an eye test this morning and the opticians done a picture of the back of my eye and he saw that the optic nerve on my right eye is lighter and looks damaged. 😭 I am seeing my lupus consultant on the 19th September. I am so worried. Does lupus sle cause problems to your optic nerve? Any advice? Xx

8 Replies
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Hello Tulipano,

It's understandable to be worried. As you probably know, lupus can cause practically any and everything, but of course that doesn't necessarily mean that all our problems *are* caused by lupus. I guess there is no way of knowing until your rheumatologist gets to see the optician's report.

I would check with the optician that s/he will be sending a report to your GP and/or rheumy and consider speaking to your GP or specialist rheumy nurse about it before the rheumy appmt if you are concerned?

Keep in touch here too x

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Plaqenil can damage your eyes.

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It is a rare cause of NA-AION - non-arterial Anterior ischemic optic neuropathy to give it its full name.

It is a good thing it has been identified and they will follow you closely. Opticians are very good people to visit regularly - they can identify all sorts of things at an early stage.

All the best.

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I understand that my colleague Paul has now provided you with some relevant information about lupus and the optic nerve in a response to you on Facebook.

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Yes Paul was very kind to me. Very helpful thank you so much xx

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Optic neuritis has plagued me for years, so yes lupus can involve your eyes. I have visual field changes but manage to keep my independence. Ask for a referral to an ophthalmologist / neurologist for a correct diagnosis. Let us know how you get on.

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I will thank you. 😭 xx

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Just catching up on your posts and various symptoms.

I think louise-a has eye involvement. Maybe she'll be able to give you some advice.

Wendy

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