Are you in worse condition when you are having pe... - LUPUS UK

LUPUS UK

31,598 members28,008 posts

Are you in worse condition when you are having period? Because I am

Babymilo profile image
3 Replies

Hi! I noticed that my symptomps are worse when I have my period. I have more hairloss, I have more headache, and I feel more tired. Anyone experience this too? Is this because of the hormone thing?

Written by
Babymilo profile image
Babymilo
To view profiles and participate in discussions please or .
3 Replies
Wendy39 profile image
Wendy39

Hello. I get this too. Lupus can definitely be triggered by hormones. In fact I think mine was set off by the birth of my third daughter in 2008 - although with hindsight now I think I'd had warning signs from an early age. I was diagnosed in 2013. I get worse with my monthly cycle. The week before I am wiped out! I'll be lethargic and need more sleep etc. It still catches me out. I'll think to myself, I hope I'm not coming down with a flare and then I'll come on and the realisation dawns that that was why I was so low. Once my period starts the lethargy and fatigue improve. I told the doctor this recently and he agreed, so I guess rheumies are aware of this. How do you cope with yours?

Babymilo profile image
Babymilo in reply to Wendy39

At first I thought this just a normal women response but I think it is not normal if I get more hairloss when I have my periode. My doctor didn't give response about it, and I don't mean to be rude but he seems confused about hormonal thing, because last week I tested DHEA and mine was low then he adviced me to go to hormone doctor. Not sure what to do. I hope I will get the result after I go to this doctor.

Still don't know how to cope with this because the headache is getting worse. Actually it is not the kind of headache that very painful but its disturbing a lot and making me feel tired all the time.

Wendy39 profile image
Wendy39 in reply to Babymilo

I can totally empathise with you regards the headaches. I have experienced every type I think at some point or another. Migraines. Headaches with myalgia. Ice pick headaches. Cluster migraine. Etc. My recent flare started with a tenderness and pains in my head and built up slowly over a period of 6 weeks. It was a new type of headache with me and the tenderness on my scalp was new. I suffered pains in my jaw and neck, again new to me. The whole thing was very scary. Please seek advice on any new symptoms, especially headaches.

As for hair loss, I do get quite a lot of hair loss anyway and had this recently with this flare. We have wooden floor boards in our bedroom so I can often see a blanket of hair on the floor, shining in the sun light form the window. I also notice bad hair loss by the way it blocks the drain in the shower at times. But I am not sure I have ever noticed it more so with my period. Just with flares/disease activity.

My periods are closer together and last longer when I am ill with my lupus, just to add to the misery. I seem to suffer more when I am ill. But now I am coming out of the flare, I am getting more time off in between.

Oh the joys of being a woman with lupus. There is always something to learn and despite being diagnosed in October 2013, I am still noticing trends and patterns re my lupus. I guess we'll never stop learning about lupus as it does seem to effect every aspect of your health and well-being. Plus the doctors are discovering new stuff all the time. Best wishes. Hope you have a good day today.

You may also like...

D.O.M.S is it worse if you have lupus?

about two years, yesterday and today I have the WORST DOMS I have ever had I can’t even lift my...

Does anyone get lead-like legs? I seem to get it when I have over done things or am tired.

literally feel like they are filled with lead making walking or stairs extremely hard. I noticed a...

Can I have children? as periods are regular but have unprotected sex?

think I can have children, but dont understand why I am having periods still? May sound like a...

Should I start medicaiton again to stop my condition get worse?

started feeling my Lupus is getting active again, feeling weaker and weaker, more stiffness, more...

Have To Go Barefoot Because Of Lupus

There are times when having to go barefoot is an inconvenience, so I have to be extremely careful....