Cannabis oil (cbd) for lupus

Hi. I have had lupus for many years and due to a prolonged period of stress I have had a flare now for many months with all the achy, fatigue and other miserable symptoms. I am very reluctant to go on to more toxic drugs with their potential (and likely in my experience) side effects and am seriously considering trying cbd oil to see if it provides any relief. I am very law abiding but desperate now to have some relief and quality of life. Ii don't want to smoke it or get high just want some normality as I am sure other sufferers will appreciate. Does anyone know if it helps, and have any advice? Many thanks.

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  • Hi,

    I have both M.E & Lupus

    Im pretty much in a constant cycle between the 2, as 1 triggers the other by the immune system being under or over active

    I have used cannabis for years

    It provides more relief as a painkiller & muscle relaxant than i wud of thort

    As have stopped & started smoking many times, plus its natural plant extracts instead of manmade chemicals

    I no ppl who dont smoke but use it in food instead to help

    U mention law abidding, but instead ask urself why only in less than the last 100yrs in this country, some guy in a suit behind a desk, has decided we are no longer allowed a natural, herbal, form of treatment that humans have used for tens of thousands of years! & still do use medically in many other countries

    1 tip for the natural plant

    Solid isnt as strong & can b put in more foods like yogurts & butter etc

    At the end of the day, its a natural, herbal plant extract treatemt that humans have used for tens of thousands of years

    Hope u find sum relief soon, whatever u decide

  • Hi Blueeyes57,

    I have been buying CBD oil capsules for over a year now for my brother who has MS. I started buying it for him after a conversation with a nurse when he was in hospital. This nurse had worked in Calafornia & seen great results. I have UCTD & suffer from awful fatigue amongst other things & tried it at first. I honestly can't say it made it any difference to me except made my headaches worse. But I didn't try it for long. CBD brothers who I buy the oil form, grow their cannabis in the Netherlands from a strain of without the other chemical ingredient THC (this is high in Scunk) which causes the highs etc. so in a way is a grey area as to whether illegal. There is a legal prescribed cannabis drug licensed for MS sufferers who have severe spasm. This does contains both chemicals (but low THC) as it's recognised cannabis works better with small amounts of THC in it as well. It's very expensive. Unfortunately the NHS will only pay for it in Wales & Scotland & you have to get it on private prescription here. I don't really have any evidence CBD oil helps my brother either as he is declining but hard to know if he could be worse without it. It's a nightmare getting him to remember to take it as he's in a care home & I feel it's not right to ask the staff to give it to him. I feel there is no harm in it though. Neither of us have ever felt in any way high unfortunately! If you go to certain states in the US they can give you the right quantities of course but we are stuck with a limited drug on a trial & error basis.

    Hope this helps & it helps your fatigue

  • CBD oil was legal in the uk until December last year. It has now been classed as a medicinal product and the manufacturers need a medical licence to sell it. Making it more expensive. It's still legal if they have a licence. It's a grey area whether importing from Europe is legal.

    There is a drug available on prescription in some countries called epidiolex. It is cbd based as opposed to sativex which also has thc. It has recently been prescribed for the first time in the uk for epilepsy. But that was a special case.

    Personally I have tried cbd oil for my symptoms of joint pain and fatigue but for me it made my fatigue worse and didn't change the pain. I have heard positive things from others.

  • Hi that's very interesting. Thanks for getting in touch. I will do further research into it.

  • Hi all. 3 years ago I used to be a smoker but stopped when I found out I was pregnant. A year after my son was born I found out I had ITP and SLE and have since been on medication for this prior to this I never even took paid killers for headaches. After a year of being on pills and chemo I went to Amsterdam for a hen party and was easily convinced to try smoking as we'd walked the city all day and I was aching. Since I have found that having a smoke on an evening helped to completely relax, I've not tried the oil but I have a friend who had cancer and after they cough it she used the oil daily and she said she feels it works wonders. Now I watched an interview where a lady had a young boy who was dying I think know it was blood cancer and as the Dr's would not prescribe him cannabis she took it upon herself to give him oil, she had nothing to loose and within days hus white blood count steed to rise, no one undersold why. She stopped giving him it after 2 weeks and his counts steed to fall again. After she told the Dr's what she was doing thy gave him the drug and he eventually overcame the illness. I'm not saying it was comely the oil but before I was ill I probably had my illness but it never came to light. I have come to my own conclusion that it works for me. But getting it is a risky business but we'll worth the risk. I plan to speak to my specialist about this to see her reaction.

  • I purchased it legally here in California for my PMR disabling pain and only used it once. It made me throw up and have a horrible night. I want you to know it is a serious drug and to not be swayed by all the good examples.

  • Thanks for the warning. It is a minefield with the legal AND not so legal (in UK) drugs and I am off the mind unless I have something life threatening to be very cautious of anything, as all seem very toxic. All the best to you.

  • Hi Blueeyes57,

    This is a possible treatment option that is being researched for lupus, but I am not aware of any published clinical findings yet that suggest it is safe and effective.

  • Thanks Paul.

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