Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for January 2017

Incidence of Lupus

My sister in law is visiting from New Zealand. She ❤ loves statistics...and asked me how many people have lupus...I thought 🙄 DUH...and grabbed my iPad to...

My sister in law is visiting from New Zealand. She ❤ loves statistics...and ask...

EOLHPC

•8 years ago

37 Replies

Lupus diagnosis help...

So I've been unwell for 3 years and I'm still not fully diagnosed, originally diagnosed with fibromyalgia but specialist say I have something else. Have had...

So I've been unwell for 3 years and I'm still not fully diagnosed, originally di...

Dwarman

•8 years ago

9 Replies

Polymyositis Help please share with me thankyou

I was diagnosed with polymyositis over a year ago now on my 3rd.immu and still muscle wasting and pain my rheumatologist has retired out of the blue and not a...

I was diagnosed with polymyositis over a year ago now on my 3rd.immu and still m...

Pineapple01

•8 years ago

27 Replies

Want to take advantage of all our features? Just log in!

Prednisone reduction

I am reducing my prednisone I take hydroxychloroquine sulfate 200 mg. I would like to stop taking hydroxychloroquine are there any side effects if I stop...

I am reducing my prednisone I take hydroxychloroquine sulfate 200 mg. I would li...

Knox-kephart

•8 years ago

23 Replies

Does anybody know what this is?

Hi Everyone, This is quite random but for around 6 weeks maybe longer I've had a rough, raised patch of skin on the top of my foot. It's discoloured to a dark...

Hi Everyone, This is quite random but for around 6 weeks maybe longer I've had a...

Hnewman2

•8 years ago

9 Replies

Huge Boil And then Meds Dispensed. Rant!

I have a rapidly expanding boil on my neck. I visited a friend in hospital yesterday and hope I haven't picked up a nasty, or passed it on. I did the...

I have a rapidly expanding boil on my neck. I visited a friend in hospital yeste...

Lupiknits

•8 years ago

6 Replies

Sensitive feet what Boots & shoes ?

Hi all some days my soles feel so sensitive and am finding my normal footwear no use...want to wear padded slippers all day Has anyone found any particular...

Hi all some days my soles feel so sensitive and am finding my normal footwear no...

kelpie21

•8 years ago

17 Replies

Update on my rheumatologist appointment

Hi all hope everyone is ok. Had my first rheumatologist appointment yesterday and to be honest don't know what to make of it. She asked me what symptoms I got...

Hi all hope everyone is ok. Had my first rheumatologist appointment yesterday an...

Ems666

•8 years ago

8 Replies

Flare

Hi. I'm having another flare with severe eczema, it's the second time in a month. I don't have the blood results necessary for a diagnosis but I do have a...

Hi. I'm having another flare with severe eczema, it's the second time in a month...

Suecon

•8 years ago

2 Replies

Lupus and Cataract Surgery

I've had lupus for 20 years (possibly more, before it was diagnosed). Recently I had to have cataract surgery. I asked them before they went ahead if there...

I've had lupus for 20 years (possibly more, before it was diagnosed). Recently ...

LeopardGizmo

•8 years ago

4 Replies

Laser Hair Removal & Lupus

Has anyone had or is having laser hair removal treatment with lupus ?

MsTMP

•8 years ago

2 Replies

Positive DNA results

Hi Sorry to be a pain but had anyone gone from having a positive dsDna result to a negative one, as that's what has happened and I don't understand it, is it...

Hi Sorry to be a pain but had anyone gone from having a positive dsDna result t...

ajanjua

•8 years ago

3 Replies

Pip assesment .

Hi I'm wondering if anybody has applied for pip . I had my assesment yesterday with atos as I am diagnosed with lupus . It affects my joints and my skin and I...

Hi I'm wondering if anybody has applied for pip . I had my assesment yesterday w...

steph86

•8 years ago

6 Replies

PIP

Hi, I expect there have been loads of post regarding this, but I have been on DLA since 1993 and it was for life, of cause it's now going to PIP, I have just...

Hi, I expect there have been loads of post regarding this, but I have been on DL...

loober

•8 years ago

11 Replies

Had diagnosis in December struggling

Hi all I'm struggling on quinoric and vit D I still feel awful most of the time achy in pain exhausted,mood swings,headaches neausea. I am fed up being told I...

Hi all I'm struggling on quinoric and vit D I still feel awful most of the time ...

Mockingbird13

•8 years ago

7 Replies

Zika and immunosuppression

Hiya, a quick question about travelling to Zika-prone countries. Have you been to one and if so, did you take any extra precautions about mosquitoes? Most...

Hiya, a quick question about travelling to Zika-prone countries. Have you been ...

Purpletop

•8 years ago

9 Replies

Medicinal Marijuana

I currently live in the U.S. and have started reading up on the advantages of medicinal marijuana for Lupus. It is supposed to reduce inflammation and take...

I currently live in the U.S. and have started reading up on the advantages of me...

LucyK5821

•8 years ago

4 Replies

Features

Hi Just wanted to know if anyone has suffered from multiple fractures, I ended up having a pelvic fracture and now have two fractured ribs. Is this due to...

Hi Just wanted to know if anyone has suffered from multiple fractures, I ended u...

ajanjua

•8 years ago

10 Replies

Infusion hurrah!

In the day unit connected up to rituximab!! I wasn't sure if it would be happening today but came prepared with kindle, warm cardigan , eydrops and lipsil . I...

In the day unit connected up to rituximab!! I wasn't sure if it would be happeni...

weathervane

•8 years ago

13 Replies

Invisibility Illness Bingo!

How many have you guys had others try on you?

quirkytizzy

•8 years ago

11 Replies

Getting Diagnosed

Hello everyone! I'm new here and wanted to ask how long it took you folks to get a diagnosis or are some still not? I have a rheumatologist appointment next...

Hello everyone! I'm new here and wanted to ask how long it took you folks to get...

hunnybuns79

•8 years ago

18 Replies

Anti-ds DNA

I'm Musfiq. My Wife's Anti-ds DNA is measured 81.0 IU/ml and ANA-Screening 3.8 IU/ml and both are positive.The symptoms are joint pain in both hands and feet...

I'm Musfiq. My Wife's Anti-ds DNA is measured 81.0 IU/ml and ANA-Screening 3.8 I...

Musfiq

•8 years ago

1 Reply

Any parents supporting children recently diagnosed with Lupus?

Hello, I am new in here though i have looked in in the recent past as the worried mum of a !5 year old daughter who was diagnosed in Sept 2014 with Mixed...

Hello, I am new in here though i have looked in in the recent past as the worrie...

Scout68

•8 years ago

16 Replies

Cold

Has anyone else had a cold they couldn't shift. Mine has gone on for weeks

Lancslass1962

•8 years ago

6 Replies

Relative success?!

So after my post earlier today my lovely GP chased the rheumatologist for their letter. It is the most vague thing I have ever seen. It literally says 'we...

So after my post earlier today my lovely GP chased the rheumatologist for their ...

DenverKUK

•8 years ago

7 Replies

Just been diagnosed

Hi All, I have just (19th Dec) been diagnosed with Lupus (SLE specifically) and I am finding it hard to digest and come to terms with it. I just wanted to...

Hi All, I have just (19th Dec) been diagnosed with Lupus (SLE specifically) an...

MsTMP

•8 years ago

13 Replies

LUPUS UK wins £1000 in Starbucks' Red Cup Cheer 2016 Campaign

Hi everyone, I wanted to share some excellent news. LUPUS UK was one of 250 charities to be chosen for Starbucks' Red Cup Cheer campaign in December 2016. Each...

Hi everyone, I wanted to share some excellent news. LUPUS UK was one of 250 char...

Paul_Howard

Partner•8 years ago

8 Replies

Still waiting for confirmed diagnosis

I'm going nuts. Saw rheumatologist and had bloods on 21st December. Rheumatologist only just sent letter with results and recommendations to gp on Tuesday....

I'm going nuts. Saw rheumatologist and had bloods on 21st December. Rheumatolog...

DenverKUK

•8 years ago

5 Replies

👣👣👣👣👣👣👣👣👣👣👣👣Barefoot with lupus 👣👣👣👣👣👣👣👣👣👣👣👣

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi everyone; We are having our first cold snap here in Alabama, winter storm watch for tomorrow and Saturday. Up to 3...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi everyone; We are having our first c...

Tiras

•8 years ago

1 Reply

Just to say Hi

Although I have had SLE now for many years I am now coming up against so many hurdles and now too top it all I am going to lose my job due to this last 9...

Although I have had SLE now for many years I am now coming up against so many hu...

Marley1

•8 years ago

18 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2017

Incidence of Lupus

Lupus diagnosis help...

Polymyositis Help please share with me thankyou

Prednisone reduction

Does anybody know what this is?

Huge Boil And then Meds Dispensed. Rant!

Sensitive feet what Boots & shoes ?

Update on my rheumatologist appointment

Flare

Lupus and Cataract Surgery

Laser Hair Removal & Lupus

Positive DNA results

Pip assesment .

PIP

Had diagnosis in December struggling

Zika and immunosuppression

Medicinal Marijuana

Features

Infusion hurrah!

Invisibility Illness Bingo!

Getting Diagnosed

Anti-ds DNA

Any parents supporting children recently diagnosed with Lupus?

Cold

Relative success?!

Just been diagnosed

LUPUS UK wins £1000 in Starbucks' Red Cup Cheer 2016 Campaign

Still waiting for confirmed diagnosis

👣👣👣👣👣👣👣👣👣👣👣👣Barefoot with lupus 👣👣👣👣👣👣👣👣👣👣👣👣

Just to say Hi

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive